[Cammiecat]

Is there anyone out there that has Ehlers-Danlos Syndrome? It is a genetic disorder of the protein Collagen which is found in the connective tissue of your body. So, all your tendons, ligaments, veins, arteries, lymphatic vessels and a large portion of your digestive system doesn't work the way a normal person's would work. My muscles do twice the amount of work to get up and walk to the kitchen than other people because my tendons and ligaments which are supposed to be holding my skeletal structure together, don't. My muscles have to engage and hold the skeletal structure together and then they engage again to walk to the kitchen. We EDS'ers come complete with chronic pain and chronic fatigue. But most of us can do the splits on command and all sorts of other body tricks. Pacing yourself to find the happy medium between moving and resting is the key and I haven't found it yet. It is also very triggering for mental health issues. If there are any other of us out there, let me know. It's hard to be alone out here.

There is a good EDS community at the Inspire health & wellness communities. I say it's good - it's very active.

I have psoriatic arthritis and also hypermobility syndrome, but I have never explored further to see if I actually have EDS. I kind of figured my symptoms weren't bad enough for it to be EDS. I've also been diagnosed with fibromyalgia and chronic fatigue syndrome.

I look at the "helping tools" for EDS patients sometimes. I want to get one of those funky pens and learn to use it.

Anyway, Inspire is a good site. I used to participate in the psoriatic arthritis group there.

[Cammiecat]

Thanks jo_thorne. I appreciate the tip. I have two of those funky pens. They are called the PenAgain. It takes a while to learn to use them. My handwriting changed slightly when I used mine for the first time. But they do help. Got mine on Amazon. Nothing like a little retail therapy when you're hypomanic.