[angelene]

The Spoon Theory: I just thought I'd pass this along for anyone who hasn't heard or read about it. I consider myself a "spoonie" and maybe you will, too.

From http://http://www.butyoudontlooksick.com/: " “spoonies” are people living with invisible disabilities or pain like: Lupus, Fibromyalgia, CFS, MS, ME, Arthritis, Diabetes, Cancer, and many more. Anyone who has to “ration” their energy and make difficult choices everyday just to live life despite their illness."

[jelly-bean]

I am also a "spoonie" and I have used this very thing to explain how it is for me. Thank you for posting this.

[kimmydawn]

That is so great. Thank you for sharing!

I'm sharing that with everyone!

KD

[Travelinglady]

Thanks for sharing!

[~Christina]

Thanks for sharing ! I have used this in the past many times... Altho sometimes I wanted to beat the people that dismissed it with actual spoons

[angelene]

Originally Posted by ~Christina

Thanks for sharing ! I have used this in the past many times... Altho sometimes I wanted to beat the people that dismissed it with actual spoons

That sounds intensely gratifying!

[Jayne Marple]

Originally Posted by angelene

The Spoon Theory: I just thought I'd pass this along for anyone who hasn't heard or read about it. I consider myself a "spoonie" and maybe you will, too.

From http://http://www.butyoudontlooksick.com/: " “spoonies” are people living with invisible disabilities or pain like: Lupus, Fibromyalgia, CFS, MS, ME, Arthritis, Diabetes, Cancer, and many more. Anyone who has to “ration” their energy and make difficult choices everyday just to live life despite their illness."

This is a terrific share. There are several others who I'll tell about the site.... I know that they'll find it very helpful too.

I only heard of this theory for the first time a few weeks ago. I think it's a great idea for explaining our energy rationing problems to other people.

Really, I wish I had heard of this 20 years ago when I was discovering on my own things like "if you scrub the bathtub, you won't be able to meet your friend for lunch".

Ha ha, thanks for making me laugh out loud!

[Nina Simone]

Thanks for sharing this!

[jaynedough]

I just ran across #spoonies on Twitter. Thought I'd reply here to bump this thread.

[Pierro]

Originally Posted by angelene

The Spoon Theory: I just thought I'd pass this along for anyone who hasn't heard or read about it. I consider myself a "spoonie" and maybe you will, too.

From http://http://www.butyoudontlooksick.com/: " “spoonies” are people living with invisible disabilities or pain like: Lupus, Fibromyalgia, CFS, MS, ME, Arthritis, Diabetes, Cancer, and many more. Anyone who has to “ration” their energy and make difficult choices everyday just to live life despite their illness."

Yes Angelene, I too am a spoonie. Thanks for sharing this. Maybe I can give you one of my spoons today as I dont feel too bad.. If only, right!!

[JuniperJuna]

I love the spoon theory, I am definitely a spoonie, very much so.
I did not explain it this way to anyone yet though, maybe I will use it at some point

Today I especially feel a 'spoony'.
An old friend that has the same age as me (31) called because she felt like meeting up and having a coffee somewhere in the city. To catch up and talk a bit about all the changes life had in store for us. She does not have much time, only an hour or two.
A wonderful idea, she is a nice person and I enjoy her company, so I said yes.

What she does not know is that I have POTS. Today I have set 'every other' activity aside to be able to meet her.
I am saving my medication until one hour before our appointment, so that I do not become as dizzy. That means that before that, I am dizzy.
And I am doing everything in my power to maximize my energy for those two hours. And then after.. I go to bed probably. Like an old lady.

We will probably talk a bit about how our lives changed. I know she became a doctor and traveled to Africa to help there. She did awesome and I am so proud of her. She changed from a friendly shy girl into a friendly super strong power woman that helps people. I want to hug her for that.
I did.. well nothing.
I could not study anymore, could not work, could not hold on to my career as an illustrator.
She will understand, she is not the type to put herself above another. But comparing yourself to people of the same age, old friends or people you knew from school, sometimes makes you realize how much of a spoonie you are.
And what a lack of spoons truly means.

A bit depressing, sorry
It do not mean it that way. I am actually lucky because a lot of people with POTS cannot even go for those two hours.