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#826
Oct 19, 2017, 01:51 AM
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you could hear my screams from across the road i'm sure
that's how bad it was |
 BlueEyedMama, January, jaynedough, Kiya, lizardlady, possum220, spondiferous, Wild Coyote
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 Gus1234U, January, Wild Coyote
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#827
Oct 19, 2017, 02:06 AM
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Quote:
In the middle of the night ...I too often wonder who can hear my silent screaming and flood of tears down my face like a dam that just broke. I guess no one... for the relief never comes and this magical nurse I have conjured in my head that perhaps a good soul called never shows up with the annoying yet comforting noise of the heart monitor the taste of the injection in my mouth and the presence of being in healing hands..., |
| January, jaynedough, Kiya, lizardlady, spondiferous, Wild Coyote
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| Gus1234U, January, spondiferous, Wild Coyote
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#828
Oct 19, 2017, 03:38 AM
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Since I can't sleep I thought that I'd post an update. My lupus has been flaring big time for the past two months causing complications that nearly killed me six weeks ago. This week has been a rough one with me fighting a high fever of 103.6 and having a grand mal seizure on Tuesday. To top things off I had a reaction to a med which caused me to be covered in hives and puke for two hours straight, thus the reason I am not sleeping. I am ready for the war lupus has declared on my body to be over. I am exhausted. I am in pain. I am barely holding on and fighting this battle.
I don't often post but I keep you all in my daily thoughts and prayers. I know that a lot of us are suffering and I pray for that to ease up. *Leaves gentle hugs for all that may want or need one* |
| January, jaynedough, Kiya, spondiferous, Wild Coyote
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| Gus1234U, January, La.Last.Lucy, spondiferous, Wild Coyote
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#829
Oct 19, 2017, 09:36 AM
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Wishing you all ease today, wherever and however you need it. Lots of people going through heavy stuff. I'm too scattered to respond to all of it individually but just know that I see you.
  I actually walked up to campus and back yesterday, somewhere around 4-6 blocks which is a gargantuan feat for me. I go out again today for a doctor's appointment so I'm a lot more hopeful about it than I was this time last week. I have another appointment tomorrow as well.
__________________
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| January, jaynedough, Kiya, Wild Coyote
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| Gus1234U, January, jaynedough, La.Last.Lucy, Wild Coyote
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#830
Oct 19, 2017, 04:19 PM
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Wow! Participation here is up! Sweet! The only problem is I cannot address each participant.
jan, Congrats on the great news!  Blue eyed mama, I am sorry for all you endure.   Cake, Please stay safe. Kiya, Hi! Child, You are doing a good job of being patient. Gus, That was quite a walk! Thanks for the picture! Shattered, Spondi, ~Christina, Went on a day trip with DH yesterday. Colors are muted a bit, yet still beautiful! I was exhausted. We ate out and I was ill through the night. Rested today. Love to All! WC
__________________
May we each fully claim the courage to live from our hearts, to allow Love, Faith and Hope to enLighten our paths.
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| jaynedough
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| Gus1234U, Kiya
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#831
Oct 19, 2017, 05:22 PM
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Belle has no idea she's having her surgery tomorrow, so she's just fine. I'm trying not to be a nervous wreck,
but you know how I am about her. I have to go buy special food for her tomorrow while she's in surgery because they have to remove two teeth her abuser broke. The Dr. said since Belle is so afraid of cages, I can hang around until she's ready to go home. They are going to take her first. Please send good thoughts/prayers our way for tomorrow.
__________________
I still dream and I still hope, therefore I can take what comes today. Jan is in Lothlorien reading 'neath a mallorn tree. My avatar and signature were created for my use only and may not be copied or used by anyone else. |
| Kiya, lizardlady, spondiferous, Wild Coyote, ~Christina
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| Gus1234U, spondiferous, Wild Coyote
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#832
Oct 19, 2017, 07:00 PM
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i love fall, it draws me out~ of my bed, my house, my self-absorption and inactivity~~!   
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AWAKEN~! Last edited by Gus1234U; Oct 19, 2017 at 07:18 PM. |
| January, Kiya, lizardlady, Wild Coyote
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| January, lizardlady, spondiferous, Wild Coyote
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#833
Oct 19, 2017, 08:39 PM
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Jan - I am thinking of you and Belle. I will hold you in my prayers tonight and tomorrow.
Gus: I too love fall. To me it holds the promise of change. Plus the colours, the smells, and the air finally cooling after what are generally miserably hot summers...plus the rain, the rain, the rain...my favourite.  Wild: to the rest of you would like them. Hoping your days have been, at the very least, manageable.Well, it's official y'all: my doctor concurs with me that I do in fact have fibro.   I don't know why I'm so happy about that. I guess because it's validation that all of this stuff I've been experiencing since I was about 18 (before that actually, but acutely since I was then) is not all in my head. I love my doctor, I absolutely love her to pieces and I am going to be really sad when neither my wife nor I are students here and we have to give her up. (She works out of the university clinic.)Peaceful dreams, my friends and family.
__________________
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| January, Kiya, lizardlady, Wild Coyote, ~Christina
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| Gus1234U, January, Wild Coyote, ~Christina
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#834
Oct 19, 2017, 11:41 PM
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(((Mama)))
Hoping and praying for ease for you! This round sounds particularly nasty on you may you get some relief!!!Hugs
__________________
Credits: ChildlikeEmpress and Pseudonym for this lovely image.   alt="Universal Life Church | ULC" border="0">
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| January, Wild Coyote
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| Gus1234U, January, spondiferous
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#835
Oct 19, 2017, 11:45 PM
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((((Cake))))) lots of thoughts, not coming together- you’ll have to mind read hugs.
And I pray your daughter will get the help she needs in time.
__________________
Credits: ChildlikeEmpress and Pseudonym for this lovely image. alt="Universal Life Church | ULC" border="0">
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| cakeladie, January, Wild Coyote
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| cakeladie, Gus1234U, January, spondiferous, Wild Coyote, ~Christina
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#836
Oct 19, 2017, 11:46 PM
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Tests came back on my mom. Lymphoma, slow growing. Bone marrow biopsy Tuesday.
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Credits: ChildlikeEmpress and Pseudonym for this lovely image. alt="Universal Life Church | ULC" border="0">
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| January, lizardlady, spondiferous, Wild Coyote, ~Christina
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| Gus1234U, January, spondiferous, Wild Coyote
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#837
Oct 20, 2017, 08:42 AM
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Quote:
(((((( Jan and Belle )))))) Sending positive vibes.
__________________
May we each fully claim the courage to live from our hearts, to allow Love, Faith and Hope to enLighten our paths.
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| January
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| Gus1234U, January
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#838
Oct 20, 2017, 08:44 AM
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Quote:
__________________
May we each fully claim the courage to live from our hearts, to allow Love, Faith and Hope to enLighten our paths.
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| January
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| Gus1234U, January, ~Christina
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#839
Oct 20, 2017, 08:47 AM
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Quote:
(((((( Kiya and Mom )))))) Thinking of you and your mom. WC
__________________
May we each fully claim the courage to live from our hearts, to allow Love, Faith and Hope to enLighten our paths.
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| January, Kiya
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| Gus1234U, January, Kiya
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#840
Oct 20, 2017, 08:52 AM
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Quote:
It's healing to have such a great relationship with your doctor. WC
__________________
May we each fully claim the courage to live from our hearts, to allow Love, Faith and Hope to enLighten our paths.
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| January, spondiferous, ~Christina
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| Gus1234U, January, spondiferous
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#841
Oct 20, 2017, 08:55 AM
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It's another beautiful day!
Family arriving later today and will be in the area all weekend. I hope everyone has a good weekend! WC
__________________
May we each fully claim the courage to live from our hearts, to allow Love, Faith and Hope to enLighten our paths.
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| January, ~Christina
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| Gus1234U, January, Kiya, ~Christina
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#842
Oct 20, 2017, 09:21 AM
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Wild - wishing you a good weekend with your family. Hard to believe it's Friday already!
Jan - wishing all the best for Belle today. I will keep the both of you in my thoughts. Cake - I hope you're doing okay. Christina - hope your journey with your meds is amounting to something helpful for you. Everyone else - wishing you ease and light today. for those who want/need them. Gus, this is for you - 
__________________
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| January, Wild Coyote, ~Christina
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| Gus1234U, January, Kiya, Wild Coyote, ~Christina
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#844
Oct 20, 2017, 10:18 PM
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After literally hours, Belle drank a little bit of water but she won't eat anything. I've given her all her favorite treats but she won't touch food. I can't give her the pain medicine without food and she's shaking with pain. Liz, if you're there,
or if anyone of you knows what I can do, please write back to me.
__________________
I still dream and I still hope, therefore I can take what comes today. Jan is in Lothlorien reading 'neath a mallorn tree. My avatar and signature were created for my use only and may not be copied or used by anyone else. |
| cakeladie, spondiferous, Wild Coyote
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| cakeladie, Gus1234U, spondiferous, Wild Coyote
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#845
Oct 20, 2017, 11:02 PM
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Jan-can you dissolve it in water and syringe it slowly down her throat?
__________________
Credits: ChildlikeEmpress and Pseudonym for this lovely image. alt="Universal Life Church | ULC" border="0">
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| cakeladie, January, spondiferous, Wild Coyote
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| cakeladie, Gus1234U, January, spondiferous, Wild Coyote
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#846
Oct 20, 2017, 11:07 PM
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With confusion coming in and ability to write/say coherent thoughts Keelung away, I want to tell you all that you mean a lot to me- just in case one day I can’t say it. Or can’t remember you. You’ve all touched my heart and helped me along my path.
Graditiude
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Credits: ChildlikeEmpress and Pseudonym for this lovely image. alt="Universal Life Church | ULC" border="0">
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| cakeladie, January, lizardlady, possum220, spondiferous, Wild Coyote
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| cakeladie, Gus1234U, January, lizardlady, spondiferous, Wild Coyote
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#847
Oct 20, 2017, 11:13 PM
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You'll always remember us, Kiya. You just have to. We're too close to ever forget each other. I love you, my friend.
__________________
I still dream and I still hope, therefore I can take what comes today. Jan is in Lothlorien reading 'neath a mallorn tree. My avatar and signature were created for my use only and may not be copied or used by anyone else. |
| cakeladie, Kiya, Wild Coyote
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| cakeladie, Gus1234U, Kiya, Wild Coyote
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#848
Oct 21, 2017, 12:41 AM
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Hey
 new to psych central and have made a few replies in this FMS check in thread... glad to see FMS is included under a psych thing... is there a consistent forum for Fibromyalgia (well this seems very consistent lol and faithful friends) but like aside from check ins? For like questions or new discussion topics? Thanks everyone!
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| January, Wild Coyote
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| Gus1234U, January, Kiya, spondiferous, Wild Coyote
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#849
Oct 21, 2017, 04:19 AM
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Jan one time when Sunny the cat got real sick and they told me he had to eat to get better and to give him his meds I had to use can cat food from the vets office and use a syringe to force feed him. It worked but it was messy and it took a lot out of both of us but it worked.
Ususally the first day out of surgery is the worse. Good luck and keep us posted Hugs
__________________
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| January, Wild Coyote
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| Gus1234U, January, Wild Coyote
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