[lizardlady]

Coco, no advice, but very gentle hugs for you.... (*(*(*(*Coco*)*)*)*)

[Pflowers]

Just popped in to shout howdy!



I meet with my SSDI Attorney in person today.

Maybe he'll have some good news about my case ...

I tend to overly pfret stuff so what a relief a little good news would be!

Hope all have a pfairly decent day!

[lizardlady]

Pflower, how did the meeting with the attorney go?

[Cocosurviving]

Not Many Symptoms Right Now
A Few Symptoms But They’re Manageable
☔️Recovering From A Few Heavy Symptom Days
In A Flare
Symptoms Feel Unmanageable

Currently: In A Flare

It’s been raining again, I’ve been sleeping a lot and getting necessary rest. Both my rare diseases have been flaring up and causing symptoms. I did leave early Saturday morning to check my mail, grab fresh fruits and vegetables.

Hashimoto-I was recently approved for medical financial assistance. I need a Thyroid Uptake Scan and my total portion is $500.00. Yes, $500.00 to check if I have thyroid cancer. I find this corporate greed disgusting. My anxiety will be at ease once I receive the formal letter.

I’ve been doing much better with regularly taking my vitamins, supplements, inhaler and ulcer medication.

Fibromyalgia-I’ve been trying to do a few rows of knitting each day. I miss coloring. When I color, I start having muscle spasms in my hands.

Depression- I’ve been getting a lot of natural sunlight. I don’t stay outside too long because of the humidity.

Grief and Loss- Grief is so weird. One day you think of them and you don’t feel so... affected. You miss them but you’re okay. Another day, you’re minding your business and something minor reminds you of them. Next thing you know, you’re in tears and sad for the rest of the day. Sigh. -Jadoirian [Twitter].

Protection: I still wear masks, recently received new masks I ordered.


Sent from my iPhone using Tapatalk

[Cocosurviving]

Originally Posted by lizardlady

Coco, no advice, but very gentle hugs for you.... (*(*(*(*Coco*)*)*)*)

((((Thank you)))))

Sent from my iPhone using Tapatalk

[Pflowers]

Originally Posted by lizardlady

Pflower, how did the meeting with the attorney go?

He still pfeels that I have an excellent case and was quite surprised they didn't approve it the pfirst go round.

He did his best to calm my pfears & concerns ...

I'm doing my best to trust & believe it, but it's hard.

I hope you're doing well & thanks pfor asking!

[Pflowers]

Originally Posted by Cocosurviving

Not Many Symptoms Right Now
A Few Symptoms But They’re Manageable
☔️Recovering From A Few Heavy Symptom Days
In A Flare
Symptoms Feel Unmanageable

Currently: In A Flare

It’s been raining again, I’ve been sleeping a lot and getting necessary rest. Both my rare diseases have been flaring up and causing symptoms. I did leave early Saturday morning to check my mail, grab fresh fruits and vegetables.

Hashimoto-I was recently approved for medical financial assistance. I need a Thyroid Uptake Scan and my total portion is $500.00. Yes, $500.00 to check if I have thyroid cancer. I find this corporate greed disgusting. My anxiety will be at ease once I receive the formal letter.

I’ve been doing much better with regularly taking my vitamins, supplements, inhaler and ulcer medication.

Fibromyalgia-I’ve been trying to do a few rows of knitting each day. I miss coloring. When I color, I start having muscle spasms in my hands.

Depression- I’ve been getting a lot of natural sunlight. I don’t stay outside too long because of the humidity.

Grief and Loss- Grief is so weird. One day you think of them and you don’t feel so... affected. You miss them but you’re okay. Another day, you’re minding your business and something minor reminds you of them. Next thing you know, you’re in tears and sad for the rest of the day. Sigh. -Jadoirian [Twitter].

Protection: I still wear masks, recently received new masks I ordered.


Sent from my iPhone using Tapatalk

I really like the symptom rating system at the beginning of your post!

Can I borrow it?

Hope you're having a relatively decent day today!

[lizardlady]

Twelve hour day at work yesterday. Am paying for it today. Everything hurts.

[Pflowers]

((( @lizardlady ))) ...

Twelve Hours?

That's a looooonnnnng time!

I am hoping that, either today or tomorrow, I am going to get a delivery of a new chair that is really going to help my back pain

she hopes and crosses her fingers..

[lizardlady]

Good luck with the chair RV

[Pflowers]

Pflower's pfingers are x'd pfor you too RV ... 🤞

Originally Posted by lizardlady

Good luck with the chair RV

thanks. looks like it may be tomorrow now because it's getting pretty late (1530), but they did say today or tomorrow, so...

and it is here!

it arived this morning, and is now set up. it is a lot more comfortable, for sure and provides a lot more support (this one even has arms and my other one didn't!), so I'll see how I get on with it.

in other news it's been raining all night. it's what we've needed though- it's really cooled the air and it's going to rain some more today I think (it's really quite cloudy)

it's still raining today, has been all night. like I said though, it's really needed, cooling the air nicely.

shower really hurt today, and in the longrun did nothing for my mood at all apart from making it worse because of the pain.

chair's still nice though, really comfortable

and I have a mcdonalds to look forward to later, should be nice..

[Cocosurviving]

Originally Posted by Pflower

I really like the symptom rating system at the beginning of your post!

Can I borrow it?

Hope you're having a relatively decent day today!

Thank you and absolutely. It helps me to interact with others that experience symptoms from chronic illnesses.

Sent from my iPhone using Tapatalk

[Cocosurviving]

Originally Posted by lizardlady

Twelve hour day at work yesterday. Am paying for it today. Everything hurts.

(((((Sending you cyber hugs)))))

Sent from my iPhone using Tapatalk

[lizardlady]

Had a flare yesterday that had me hurting, braindead and exhausted.

I'm really struggling with my life/work balance. I got through the last few months of craziness at work by telling myself to hang in there because things slow down in the summer. Thing is it's the end of June and we are still petal to the metal at work. I want to take some time off, but am so far behind now. Taking time off will put me even further behind.

[Pflowers]

((( @lizardlady ))) ...

That is a tough one!

Maybe a couple of extended weekends would benefit you while not making the falling behind get too much worse?

It seems most employers don't care if their employees crash & burn, they'll just kick them aside and find someone else to do the work until they also crash and burn!

It's an endless, vicious cycle so I'm for ...

Self-care! ... First & Foremost! ... Always!

[Cocosurviving]

I’ve been on a new medication for IBS for 30 days and I notice a huge difference.

Based on labs my immunologist found that my Hashimoto is causing my rare diseases and other autoimmune diseases to have a domino effect, constantly flare up.

I’ve completed a thyroid scan and next will be a thyroid uptake scan. The purpose is to test for thyroid cancer. I fund funding for my co-pay [$500].

Fibromyalgia
I’ve been soaking regularly, doing stretches, walking, I declined big pharma meds commonly used for Fibromyalgia. I decline all medications that have possible side effects that concern me.
I’ve still been experiencing tender points. I’ve had my medical cannabis license since May 2020. When the pain is very severe, I cover up with a blanket like a mummy and try to not move at all.