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#601
Feb 13, 2023, 11:06 PM
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((( @lizardlady ))) ...
 That was a good reply, and hopefully it encourages them to educate themselves further regarding the condition. It amazes me how insensitive, dismissive, cruel & downright rude some people can be when it comes to the suffering of others! 
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 lizardlady
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 lizardlady
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#602
Feb 14, 2023, 12:19 PM
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The person I replied to was complaining their friend with CFS forgot to call them. I wanted to say "well pick up the damned phone and call them!"
Good thing this happened yesterday. I'm having a flare today, whole body hurts and my attitude sucks. I'd be likely to rip their head off today. |
| Pflowers, SlumberKitty
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| Pflowers
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#603
Feb 14, 2023, 05:43 PM
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I hear ya @lizardlady!
I just don't have the patience to tolerate the BS anymore ... Some people deserve to be given what for! Gentle hugs to you ...  Flares Suck!  PS: I cuss worse than a sailor when I'm flaring! 🤬 |
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#604
Feb 14, 2023, 07:27 PM
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Hehe, flares lead to me cussing too.
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| Pflowers
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| Pflowers
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#605
Mar 23, 2023, 10:18 AM
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Text from a meme I thought I'd share. So true!
Chronic pain be like Meh, I'm used to it Meh, I'm used to it Meh, I'm used to it Meh, I'm used to it Meh, I'm used to it Meh, I'm used to it IHATE BEING IN PAIN ALL THE TIME! I HATE BEING LIKE THIS! EVERYTHING IS IN AGONY! PLEASE MAKE IT STOP! I AM EXHAUSTED! Meh, I'm used to it Meh, I'm used to it Meh, I'm used to it Meh, I'm used to it |
| Pflowers, SlumberKitty
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| Pflowers
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#606
Mar 25, 2023, 08:03 PM
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Liz ! That is spot on perfect !
Sorry I haven’t been on here in ages. Life just wearing me down. You all know how that is. Gentle hugs Sent from my iPhone using Tapatalk
__________________
Helping others gets me out of my own head ~ |
| lizardlady, Pflowers
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| lizardlady, Pflowers
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#607
Apr 11, 2023, 03:26 PM
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I did a little Spring Cleaning ...
Now I'm in so much pain I can't hardly move. My other hip is starting to bark at me too ... I'm about ready & willing to be taken out behind the barn & put out of my misery! It scares me, what the future holds. Damn this Psoriatic Arthritis! 
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| lizardlady
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| ~Christina
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#608
Apr 14, 2023, 08:43 PM
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Quote:
I’m dealing with a giant flare of my psoriatic arthritis due to my insurance refusing to cover Zeljanz that’s worked amazingly well for over 2 years. Started Skyrizi 7 weeks ago and it’s not helping anything. I have huge plaques on scalp and hairline and joints are on fire. Hurry up and wait nonsense. The only thing that might help me is a combo of Tylenol and Aleve daily. Hope you find relief soon Sent from my iPhone using Tapatalk
__________________
Helping others gets me out of my own head ~ |
| Pflowers
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| Pflowers
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#609
Apr 15, 2023, 02:04 PM
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I'm so sorry you're having to deal with all that @~Christina ...
I think it's wrong that insurance gets to say what kind of treatments we're allowed. The system is broken & needs to be fixed, but I don't see that happening in our lifetime! In the meantime, it's almost as if they enjoy making us suffer ... The Sorry Bastids! 
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| lizardlady
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#610
Apr 23, 2023, 10:34 AM
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Hello all. I need to whine....
I posted in the pets forum about my dog BG dying. It was an emotional and physical nightmare. I ended up pushing my body beyond its limits. I knew at the time I would pay the price, but felt I had to take care of him. Sure enough it triggered my fibro and CFS. I hurt all over and just want to sleep 24/7. Add to that I decided to go out in the world without a mask. Now I have an upper respiratory infection. This is the second time I've decided to not wear a mask and got sick. I tested negative for Covid. It's a pain old infection, still I feel even more like chit. Needless to say I'm back to wear a mask if I leave the house since we catch this kind of crap the same way we get Covid. Thanks for listening while I whinge. I hope live finds all of you doing the best you can. |
| Pflowers, unaluna
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| Pflowers
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#611
Apr 23, 2023, 02:54 PM
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I'm sorry you lost your furry four-legged friend @lizardlady ...
The flare, pain & repiratory infection sucks too! I don't consider it whining ... I consider it unburdening one's self. Thank goodness MSF allows a safe place for us to do just that!
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| lizardlady
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| lizardlady
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#612
May 31, 2023, 02:41 PM
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This is not fibro, but is pain. I spent the last two days cutting down trash tress near the barn and hauling them away. Arthritis has my knees screaming obscenities at me today. *sigh*
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| Pflowers, unaluna
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| Pflowers
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#613
May 31, 2023, 03:46 PM
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| unaluna
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| lizardlady, unaluna
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#614
Jun 01, 2023, 06:49 PM
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Homer and I are walking the same.
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| Pflowers
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| Pflowers
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#615
Jun 18, 2023, 07:37 PM
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I've just been newly diagnosed with fibromyalgia and trying to learn.
I have very bad reactions to most medications so chose not to take any of the first line treatment meds. I am considering an anti-seizure as I've taken it before and did ok Are there any alternatives to Lyrica or gabapentin? Sent from my LM-G710VM using Tapatalk |
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#616
Jun 19, 2023, 03:51 AM
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I have been waiting for over 2 weeks for this brochure from a specialist chair company (they provide chairs custom to the support you need), but I still don't have it
I've rang several times, and the nice woman at the other end is like oh.. we've sent it we've sent it, it must be a delay in the UK post- nbut other things have arived fine. turns out, I looked them up and read reviews on them, and apparently they have a lot of unhappy customers- one person even said she got stolen from so maybe I'll just leave it and find somewhere else- though I imagine not many places like that exist in the UK |
| lizardlady
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#617
Jun 19, 2023, 09:20 PM
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I got stung by a wasp two separate times last week. I am just feeling unwell since the second one. Anyone know if wasp stings can effect fibro or CFS?
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#618
Jun 20, 2023, 04:43 AM
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Ouch! Sorry about that @lizardlady ...
I'm no expert, but I'd think stings could possibly impact either of those conditions. There's also the possibility of allergic reactions to those types of stings, so ... Be sure to monitor yourself for that in case you get stung again in the future. But let's hope there are no future stings - allergies or not, they just plain suck!
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| lizardlady
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#619
Jun 21, 2023, 12:39 PM
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I'm tired of being in so much pain and exhaustion and feeling so bad all the time ...
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| lizardlady
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#620
Jun 21, 2023, 06:26 PM
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So what meds have the least amount of side effects? I read somewhere that having adverse reaction to medication as a symptom of fibromyalgia. And always happens to me
Sent from my LM-G710VM using Tapatalk |
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#621
Jul 31, 2023, 04:29 AM
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Good Morning Fibro Friends ...
This Throw Pillow Sums It Up In One Word!  Might Just Have To Order Me One Of Those! May Monday Be Kind To Us ...
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| MuseumGhost
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| lizardlady, MuseumGhost
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#622
Aug 01, 2023, 08:29 AM
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I love it Pflower! I want one too.
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| Pflowers
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| Pflowers
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#623
Aug 01, 2023, 10:14 AM
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Hope you're doing well @lizardlady ...
I'm about to make another concession ... I hate doing that because it means being one step closer to no longer being independent! Gonna have to find someone to come in once or twice a month to vacuum & do a little light cleaning. I simply can't do it anymore ...
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| MuseumGhost
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#624
Aug 01, 2023, 02:43 PM
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Quote:
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| MuseumGhost, Pflowers
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| MuseumGhost, Pflowers
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#625
Aug 01, 2023, 05:50 PM
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Yeah ...
I like the way that sounds better @lizardlady ... The guy I rent from says he and his wife will do it for me. I'm okay with that too ... Better to have people you know helping out than people you don't know. I'm funny about who I let up in my personal space! I like the idea of giving them the money for it too ... They can use it around the farm & to help out with Benny's school needs.
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| MuseumGhost
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My Support Forums is the online community that was originally begun as the Psych Central Forums in 2001. It now runs as an independent self-help support group community for mental health, personality, and psychological issues and is overseen by a group of dedicated, caring volunteers from around the world.
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