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#351
Oct 31, 2021, 10:00 AM
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Bad Day Check List
1). Have you been eating healthy? What have you been feeding yourself lately? Are you hungry right now? Could you make yourself some food? 2). Are you hydrated? Do you need some water or juice? 3). Have you been sleeping enough lately? Do you need to lay down right now and take a nap? 4). Do you need to shower? Would a change of clothes help? 5). Are your surroundings neat and tidy? Could you tidy up your room a bit? 6). Have you been in nature recently? Have you gotten some sunshine? Could you take some vitamin D right now? 7). Have you moved your body? Do you need to go for a walk? Or go for a run? Would working out help? 8). Have you spoken to someone who can help you work out your thoughts and feelings? Is there someone in your life that you can open up to and be vulnerable with? 9). Do you need peace and quiet? Would meditation help? Or would listening to music help? 10). Do you need to cry? By Claudia Kai Sent from my iPhone using Tapatalk
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#SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
 Pflowers, Travelinglady
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 Pflowers
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#352
Nov 01, 2021, 11:14 PM
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I DONATED PLATELETS IN SEPTEMBER. I RECEIVED A LETTER FROM THE RED CROSS ABT MY WBC (WHITE BLOOD CELLS).
WHITE BLOOD CELLS ARE AN IMPORTANT PART OF YOUR IMMUNE SYSTEM, HELPING YOUR BODY TO FIGHT OFF DISEASES AND INFECTIONS. IF YOU HAVE TOO FEW WHITE BLOOD CELLS, YOU HAVE A CONDITION KNOWN AS LEUKOPENIA. I’LL BE GOING TO A HEMATOLOGIST SPECIALIST TO TEST FOR “AUTOIMMUNE LEUKOPENIA.” I SPOKE TO THE NURSELINE THROUGH MY HEALTH INSURANCE AND IT DID HELP. A FEW MONTHS AGO, I WAS HAPPY ABT NOT HAVING ENDOMETRIOSIS. STAYING BUSY HELPS ME NOT WORRY. I’M LOOKING FORWARD TO VOLUNTEERING WITH A LOCAL UNHOUSED OUTREACH PROGRAM THIS MONTH. Sent from my iPhone using Tapatalk
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#SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
| lizardlady, Pflowers, Travelinglady
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| Pflowers
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#353
Nov 02, 2021, 03:24 PM
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Did a short mountain road trip to look at the Autumn leaves today ...
 I kept it short & sweet as I just don't have the stamina & energy I used to. Besides, I hate public restrooms ... They're like a box of chocolates - You never know what you're gonna get! Pfortunately a well tended state park, with handicap access right at the door, was just a pfew miles up the road - Whew! I only got one shot, and that was pfrom the driver's seat in a pull off by the lake ...  Lake Seed - Wikipedia May The Remainder Of The Day Be Kind To Us! 
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| Travelinglady
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#354
Nov 02, 2021, 07:40 PM
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Lovely pic Pflower!
I have similar feelings about public bathrooms since Covid. I know you don't get Covid from the toilet seat. I just feel uncomfortable. Like you said, you never know what you're going to get. Icky.... |
| Pflowers, Travelinglady
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| Pflowers
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#355
Nov 23, 2021, 12:19 PM
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I got my Covid booster and flu shot yesterday. Feeling kinda meh today. *sigh*
Edited to add.... meh turned into full blown flare. Somebody just shoot me. Last edited by lizardlady; Nov 23, 2021 at 02:57 PM. |
| Pflowers, Travelinglady
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| Pflowers
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#356
Nov 23, 2021, 04:29 PM
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| lizardlady
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#357
Nov 23, 2021, 08:17 PM
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Thanks pflower
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| Pflowers
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| Pflowers
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#358
Nov 25, 2021, 10:55 AM
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 May The Day Be Kind To Us!
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| lizardlady, Travelinglady
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| lizardlady
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#359
Nov 27, 2021, 09:12 PM
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TRIGGER WARNING ⛔️ (long post)
Crimes Against Individuals with Disabilities •I Recently Spoke with an Elder Family Member Abt This Topic. It’s Still Weighing Heavy on My Mind. Crimes of Opportunity •Some People will “Befriend” Folx with Disabilities, Seeking to Gather Info with the Sole Intent to Rob a Person with Disabilities. •These People Ask If You Receive SSI/SSDI. •Ask Your Disabilities and What Medications You Take. •Ask If You Use a Bank or SSA Direct Express Card. •Suddenly Take an Interest in YOU. TRIGGER WARNING ⛔️ •My Auntie’s Best Friend from Childhood, an Elder was Robbed and Murdered along with her Son. •They Left a Check Cashing Place, was Followed Home by a Complete Stranger. Who Robbed Them, Beat Them and Attempting to Cover Up the Crime by Setting Their Residence on Fire. •When I Experience Brain Fog from Medications, I DO NOT Divulge the TRUTH to Most People I Interact with. I DO NOT Care What People ASSUME When I Experience Brain Fog. •I Blame Insomnia/Sleep Deprivation, Out of Concern Someone will Target Me with the Intent to Rob a Disabled Person. •Befriending is NOT the Only Method. Acquaintances, Family Members, Friends, New Romantic Interest, Can Prey on Individuals with Disabilities. •While Visiting My Grandma, a Local Pastor and Family Friend, Asked What I Received Disability for. I Told Him it’s Private. I Learned He’s a Pain Med Addict. I Told My Mama and Grandma to use Caution. •One of My Sisters was “Love Bombed”, a New Romantic Interest Came Over to “Netflix and Chill.” She Fell Asleep, Woke Up, He was Gone and so was Her Prescription Meds. •My auntie, who transitioned December 20th, 2020, was born with a rare disease called “Arthrogryposis Multiplex Congenita.” She was in a wheelchair her entire life. My auntie was robbed while in her WHEELCHAIR. •Individuals with Arthrogryposis Multiplex Congenita require home healthcare for LIFE. This rare disease is NOT a DEVELOPMENT disability. It DOES impact joints, joint/bone development, range of motion and susceptibility to bone fractures. •If You have One Chronic Illness, important to remember Others have multiple Chronic Illnesses. Although this Might Not Pertain to You, It Does Pertain to Others. Sent from my iPhone using Tapatalk
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#SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
| Pflowers, Travelinglady
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| Pflowers
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#360
Nov 30, 2021, 10:16 PM
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Been awhile since I've checked in here, too. Here's an article I saw that might be helpful to us. This cold weather seems to make my pain worse.:
9 Ways to Avoid Fibromyalgia Pain and Fatigue |
| Pflowers
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| lizardlady, Pflowers
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#361
Dec 01, 2021, 06:09 AM
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Good Morning Pfibro Pfriends!
Today's Ornament ...  May The Day Be Kind To Us! *Due To Ambulatory Difficulties I am unable to do a real tree at home, so I'm doing a virtual tree here instead ... Enjoy! |
| lizardlady
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#362
Dec 01, 2021, 06:58 PM
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Ooooooh, pflower I like the idea of a virtual tree. I thought of putting up my tree this year, but am afraid Miette (cat) would destroy it. Maybe I'll do a virtual one.
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| Pflowers
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| Pflowers
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#363
Dec 01, 2021, 07:54 PM
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#364
Dec 01, 2021, 08:11 PM
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Healthcare Open Enrollment Got Me Like
 Accepting Applications for Quality Private Health Insurance w/Excellent Coverage in Exchange for MONTHLY Spooning, Home Cooked Meals & a SEXLESS Marriage. #OpenEnrollment #SpoonieLife #Memes #Healthcare #ChronicIllnesses Sent from my iPhone using Tapatalk
__________________
#SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
| Pflowers
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| Pflowers
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#365
Dec 02, 2021, 06:26 AM
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Good Morning Pfibro Pfriends!
Today's Ornament ...  May The Day Be Kind To Us!
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| lizardlady
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#366
Dec 02, 2021, 10:07 AM
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Th*nks-Massacre Celebration Aftermath.
6 Adults, 4 Received a Covid Vaccine. My Mama is the Only One Who Received the Booster. 2 Teenagers, 2 Toddlers & 2 Babies Also Attended. My Niece + Her 2 MN Old Baby Have Covid. I Stopped By Fixed 2 Plates & Immediately Left. My Teenager Did NOT Accompany Me. We Don’t Celebrate Native Indigenous Genocide but Do Observe National Day of Mourning. I Was the Only Person Wearing a  Mask. I Am Immunocompromised, I Have NOT Received a Covid Vaccine. I Explained to My Mama, You Have to Set Boundaries with Everyone Including Family. My Mama is Mad But Was Well Aware, She Invited Family Over Who Have NOT Received a Covid Vaccine + None of Them Wore Masks . Sent from my iPhone using Tapatalk
__________________
#SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
| Pflowers
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| Pflowers
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#367
Dec 03, 2021, 05:41 AM
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Good Morning Pfibro Pfriends!
Today's Ornament ...  May The Day Be Kind To Us!
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#368
Dec 03, 2021, 06:34 AM
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my whole body felt numb in the shower today, absolutely numb
I need to start looking in to alternative ways to do this, because seriously, showers hurt! maybe 1 day you'll find me sat on a chair pouring water on myself from a cup, though to be fair, my arms will probably go. it's just easier to smell, honestly. |
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#369
Dec 03, 2021, 06:35 AM
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I even have a shower chair which seems to be more bad than it is good
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#370
Dec 04, 2021, 07:48 AM
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Good Morning Pfibro Pfriends!
Today's Ornament ...  May The Day Be Kind To Us!
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#371
Dec 04, 2021, 11:43 AM
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in so much back pain (still from the shower yesterday)
I said it yesterday, I'll say it today. showers need to stop |
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#372
Dec 05, 2021, 06:23 AM
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Good Morning Pfibro Pfriends!
Today's Ornament ...  May The Day Be Kind To Us!
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#373
Dec 05, 2021, 06:31 AM
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I dunno, it's like this thread just up & died so I think I'm going to refrain pfrom making pfurther posts here.
We're all in pain & suffering and some of us are so angry with it that it pfeels slimy & toxic and makes me just want to stay away! Safe Journeys To All ...  ,Pflower |
| lizardlady
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#374
Dec 05, 2021, 08:54 AM
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Pflower, do what you need to take care of yourself but you will be missed.
I haven't been posting much in any of the forums. There is some truly ugly nastiness going on at my work. I'm so disturbed by it I find myself withdrawing from the world and isolating. PS I am enjoying your virtual tree. |
| Pflowers
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| Pflowers
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#375
Dec 05, 2021, 01:42 PM
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I'm sorry to hear about your work situation @lizardlady ...
 I'll continue to post the Virtual Tree here. I'm glad it's bringing you some joy! 
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| lizardlady
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My Support Forums is the online community that was originally begun as the Psych Central Forums in 2001. It now runs as an independent self-help support group community for mental health, personality, and psychological issues and is overseen by a group of dedicated, caring volunteers from around the world.
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