[Yismymindblank12]

I am happy and relieved I am finally being treated and wasn't expecting to have a very rare disorder. I found out it affects from my doctor told me it on gets 1 and a million people. It's stiff man syndrome, I cannot move without my muscles all over my body in excruciating pain and my nerves are hyper sensitive to every sense especially touch from anything hot and cold and loud noises hurt my head. It's very rare, but I truly get it now. I'm being treated with baclopen the only out of two muscle relaxers and it's working I need to get my next dosage soon. I'm glad I have answers and treatment the medication is finally letting me move without pain and I'll have to take something else for my nerves. I can't believe how I was right the whole time and have something out of the ordinary my whole life and proved these doctors I was right all along. It's finally relieving.

[gayleggg]

Glad you finally found out what it was. I can see where it might be hard to diagnose. I'm glad they have medication thet is working for you.

Hi...was just passing by the main page, saw your post heading and so decided to see who and what the post was all about. Always good to hear when someone finally has a Dx. It can be so important...sometimes lifechanging in huge ways.

Well I'm glad I did stop and read...you've obviously been having a tough time getting the right help...Really happy to hear you're getting some relief. Right on and good luck on the progress. Take care and cheers Y12!

It's great that you've received an accurate diagnosis!! This reminds me of some doctors from documentaries like Mystery Diagnosis where most doctors try their hardest to identify the cause and are insensitive and just brush it off as a rash or fever.

I know that was random, but I wanted to share what popped in my mind :3 Glad things are working for you the way you want it to!

[Nicks_Nose]

It is peculiar how patients can often have a very good idea of the problem with their body but it takes forever for the medical professionals to finally acknowledge it.

Thanks to science, nothing can be fact without years of tests, research and data collection to say "You're right. The ball is red."