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Rose76
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Default Apr 29, 2021 at 08:19 PM
  #561
Today was better than yesterday. I had to go out to get my vaccine shot. Being forced to dress and leave the house did me a world of good. I shopped at Walmart. My back and neck and r. arm are sore. I'm staying off the Indocin for a bit. It did help, but I think I get side effects with it. I got weepy after shopping, thinking of my s.o. Recovered from that okay. My kitchen looks nice. Bought an additional rug for it.
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Default Apr 29, 2021 at 11:11 PM
  #562
I haven't posted on here lately because there wasn't much for me to talk about. Well, anyways, this afternoon I got talking to a co worker who normally works at home. He came in because I had a package for him. He told me that he had lunch with another co worker, who will be leaving next week for another job, and that co worker told him that the company will be holding on to the site for another four years. I asked some higher ups about it and they told me that it's just a proposal and that they will have a meeting about it next week.

Some people seem to be happy for me about this, if it turns out to be true, That I don't have to worry about leaving. But I don't feel all that enthused about it. I was looking forward to not going back to that place anymore. I made plans. I feel sick to my stomach about having to be there for quite a while longer, to be honest. But If I am going to stay on, than I want to have some changes made about my job.
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Heart Apr 29, 2021 at 11:46 PM
  #563
Quote:
Originally Posted by Rose76 View Post
Today was better than yesterday. I had to go out to get my vaccine shot. Being forced to dress and leave the house did me a world of good. I shopped at Walmart. My back and neck and r. arm are sore. I'm staying off the Indocin for a bit. It did help, but I think I get side effects with it. I got weepy after shopping, thinking of my s.o. Recovered from that okay. My kitchen looks nice. Bought an additional rug for it.
God bless you, @Rose76!!

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Default Apr 30, 2021 at 03:10 AM
  #564
Many Meds and Treatments for Rare Diseases are Available at Speciality Pharmacies Instead of local “Regular Pharmacies.” Pharmaceutical Companies want to Keep Our Business.

We are Assigned Patient Support Specialists. They Follow Up, Check-In Prior to Colonial Holiday Closing, Schedule Shipping and Handle Problems We Encounter Getting Adequate & Correct Medical Treatment.

If Your Provider Decides to Change Your Speciality Meds or Treatment. It Will be Your Responsibility to Notify Your Assigned Patient Support Specialists.

You Will Be Assigned New Patient Support Specialists Each Time Your Speciality Meds or Treatment is with a Different Pharmaceutical Company.

I’ve Opted for Sending My Patient Support Specialists, Dear Jane Emails. Lol Daily check in thread:Ups and Downs #29

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1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
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12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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Default Apr 30, 2021 at 03:21 AM
  #565
I received my first two Xolair injections (speciality monthly treatments) on Friday, April 23rd 2021.

So Far My Chronic Idiopathic Urticaria Flare Ups and Angioedema have *NOT Changed.

I’ve had an increase in my Fibromyalgia Pain. Daily check in thread:Ups and Downs #29 (I’m a 4:20 LICENSED Spoonie). I’ve purchased infused bath bombs, I have cannabis edibles and medical cannabis to smoke Daily check in thread:Ups and Downs #29.

It seemed like every pharmaceutical medication recommended for my Fibromyalgia has serious side effects like “suicidal ideation”, “increased depression”, “increased anxiety and “agitation.”

I understand what “possible side effects” mean, it means enough people experienced those side effects to become a warning.

Immunologist - A). Has Recommended I Continue Taking Hydroxyzine Twice a Day and using Clobetasol cream
for Chronic Idiopathic Urticaria.

B)Dexamethasone for Angioedema.

I have my fingers crossed Daily check in thread:Ups and Downs #29 that Xolair injections will eventually put me in remission or reduce my Chronic Idiopathic Urticaria and Angioedema flare ups.

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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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Default Apr 30, 2021 at 03:35 AM
  #566
I feel better today than I've felt in a long time. I'm semi-hopeful for a good day. I just hope I can stay calm most of the day. I don't have a lot going on.

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Default Apr 30, 2021 at 10:11 AM
  #567
I hope to improve.

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Default Apr 30, 2021 at 10:59 PM
  #568
It was an absolute horrible day for me. Today was supposed to be pay day and there had been a foul-up with my pay, so I didn't receive it, and I don't have enough to pay the rent this month because of it. I would have had plenty to cover me if it weren't for the foul-up. I have never been in this position before, ever! So I'm hoping for the best.

Also at work nothing much happened. Only one box was delivered in the whole day and that's it.
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Default May 01, 2021 at 09:46 AM
  #569
Another unexpected financial problem for me this morning. I checked on my
bank account and just got charged $19 for a maintenance fee. What is that all about? I never had one before in all to of the years I had the account. I can't talk to anyone at the bank today because it's closed. So I have to wait two days.
Wow, it seems like there's some kind of conspiracy against me suddenly. First,
I didn't get paid yesterday and my rent is due; and now this.

I'll try to make it through the day today. It's very hard when things are just going against me suddenly and for no reason. I feel like I'm living in a nightmare right now.
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Default May 01, 2021 at 11:06 AM
  #570
I'm doing alright this morning. I heard from my sister, which I thought was nice.

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Default May 01, 2021 at 03:58 PM
  #571
I had a bad day.

but it's not difficult.. not had a good one in so long I've forgotten what it feels like
 
 
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Default May 01, 2021 at 04:27 PM
  #572
I'm really sorry, @will19, about all that happening together like that. I remember an old saying, "when it rains it pours." My fingers are crossed for you. I hope it all turns out ok for you.

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Default May 02, 2021 at 05:32 AM
  #573
I did some things this morning to help me feel calm. Maybe I can relax today.

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Default May 02, 2021 at 04:29 PM
  #574
Was down but now up. I see a pattern. I wonder if I do have bipolar depression due to the time frame where I become back to baseline again. I never get ‘manic’, although I wonder if my anger and flight response is the mania part of bipolar.

It’s always the same few things that trigger me, though, and the people doing them don’t understand how to stop no matter how I try to make them understand.

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Default May 02, 2021 at 04:57 PM
  #575
Yesterday was a very busy day for me. I went to see a friend and he was able to help me with money to pay the rent, since there was the foul-up with being paid on Friday. I also called my friend from college to wish him a happy birthday and spoke to my brother, whom I haven't spoken to for a while.

This morning I went to get a haircut for the first time in six months. My hair was very long and now it's very short. Talked to my sister after that. It went OK but I get a sensation that something's wrong with her. I didn't go on a long bike ride like I always do on Sundays because of the wetness outside. I don't know if I can get any kind of bike ride in today since there are passing heavy drizzles throughout the day.
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Default May 03, 2021 at 03:48 AM
  #576
I worked hard on a creative project. I've been working on it for weeks and I got others involved. I think everyone did an outstanding job. I was so happy I shared it with my mom. She didn't have one nice thing to say about it. She criticized it. I can't get past it. That criticism is ruining everything. I posted on social media. It seems to be doing well there. I'll release it today. Then we'll really see what the world thinks. My mom is just an evil witch! How can a mother be so cruel? Everyone else thought it was great.

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Default May 03, 2021 at 07:28 AM
  #577
I've been fighting loneliness today. He works til 11am today. I should be glad that he has early morning hours. He has the rest of the day off. I wish I could sleep. I am really tired. Oh well.

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Default May 03, 2021 at 11:00 PM
  #578
Today was a repeat of last Friday at work. Only one package for the whole day and that's it. I called that bank, the one that charged me $19 for the maintenance fee last Saturday, and was told that I had a "premium" checking account; and that I was below the minimum amount for the month in direct deposits. Well, that made sense since I didn't have that last pay deposited. I was given an option to switch from premium to free checking and I took that option. I was planning on closing that bank out soon.

Felt depressed when I got home. I worked out at home today.
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Default May 04, 2021 at 04:25 PM
  #579
I had a successful day yesterday, so that was uplifting. Today I'm resting & reflecting.

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Default May 04, 2021 at 06:35 PM
  #580
I'm having a better day. I feel okay. Maybe a little, no a lot, tired from Cymbalta.

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