Any Tramatic Brain Injury (T.B.I.)

I was wondering if "Disabilities and Chronic Diseases" if Tramatic Brain Injury goes under Chronic Disabilities because I know it's a Chronic problem for me.

Tramatic Brain Injury causes me jobs, you name it, it's not okay for me have brain damage, I can't be the only one. Anyone out there???
ThaCrew

HI crew. I had a TBI due to the injury/accident... but no significant memory loss due to it... though other stuff. I sure could have benefited from therapy for TBI, but it was shoved under the rug and ignored. I ended up self learning most of the short cuts anyway, and now they are just a part of my life.

It was a minimal tbi I guess..seems because I still tested as a genius, they weren't concerned that I lost 30 IQ POINTS! Sorry, little miffed here lol. I wonder if they lost 30 IQ points how they'd feel!

Have you found any websites to help you cope?

You aren't the only one. I got a TBI in 3/07. Slipped on the ice, fell on my head, causing a small intracraneal hemorrhage. The mild TBI had a devastating impact on my life. It's chronic, yes, and it stinks! There is a great international chatroom to visit sometime. I'll have to search for the address ~ I always forget it!! Good ol memory. Give me a buzz if you'd like the link.

Take care!
Shez

Three CBIs
varying degrees of problems brought on by them.
there are days that I'm grateful that I can sit at the computer and read something once and it makes sense.
other days...nothing makes sense.
RE Gratitude Needs Fed...losses mean different things to different people, but I'm very grateful that for the most part I am intact. Not dumber, not smarter. Intact and coping, and hopefully without too much whining...

i have a TBI from when i was 2 years old
am unsure what it may have done to me
as i dont know what i would have been like if i didnt happen
but i have problems with spelling and cordnation

Ella

I've never had a brain injury that I know of, but falling down the stairs several times as a child probably wasn't beneficial to my brain either. My brother said he can't remember much before he was eight because he busted his head open on a cinder block (I know, I was there too!) he fell backwards off of a rotting picnic bench...we were trying to run away from a "rabid" dog.

Kaika,
In response to another member, I gave this website...
falling down the stairs numerous times will indeed have an effect on the brain, especially on a young child.
It's a bit lengthy but the first few pages may be of interest to you. Please note it is in PDF format.
http://www.cdc.gov/TraumaticBrainInj..._booklet-a.pdf

Catherine

I as well put my hand for TBI : unfortunately

costed me a lot as well but will have to wait for happier times to elaborate ok

My life changed forever, as I knew it, from a T.B.I. as well. Five years after a head on collision, I had my first grand mal seizure ever in my life. It was later related to scar tissue from the T.B.I. It is crazy how something can happen in an instant, and change things forever.

Yes, I think a T.B.I. can easily be considered a disabling chronic condition. The resulting diagnosis is what has become chronic for me. The epilepsy alone brings the inability to drive. That is the first hurdle for me in everything I do. Anywhere I want to go, or appt. I need to get to. I would consider that chronic and disabling. The meds to maintain the chronic conditions bring along with them a whole new set of issues.

My motto now is to "accept the things I cannot change"... "everything happens for a reason" and live within my limitations....and there are many. Finally, I have learned to say no, and not care what others think...most of the time.

It appears you are in very good company here ThaCrew!!

The Crew and others:

We have a family member with a so called 'mild' traumatic brain injury. We are convinced there is no such thing as mild. They use it to describe an event but it in no way describes an outcome.

We love him very much. We also think that he has made some very incredible and restorative leaps since it happened. Is it ever going to be the same as before? No.

We have a great deal of suppressed anger around the lack of ongoing support for the caregivers and the victims despite the wonderful leaps. We think chronic as a very 'correct' way to put it all.

We will continue to support everyone who suffers.

H

I had a grade 4 brain hemorrhage when I was born.

I have history of multiple head injuries starting when I was a baby where I had something fall on my head. Then in early adulthood I fell and hit my head on pavement and also had a sports related concussion. I never got much medical care for those things at the time, never got a MRI till a decade later when I complain about seizure migraines. I was having like 5 day migraines. Because of not having documentation, partly because it occurred in a different state, its been hard for me to get medical care or therapy, whatever. I'm not even sure what other's with TBI get in the way of treatment.

I can't remember much of anything, forget how to prepare meals or that I even need to eat, I get lost in town and drive somewhere then forget why I went to that store anyway. Yet some specialists swear there is nothing wrong with me. Yeah right normal people ain't like that! But I've gone to a speech therapist for memory training who swore I was normal as did a neuro-physical therapist who insisted because I could talk? that I didn't have a TBI. Yet I have ataxia bad and have difficulty walking, standing and keeping balance. I've had so many injuries, yet also have learning disabilities and trauma issues so the experts I've seen can't decide what caused what and they debate back and forth if I have TBI despite my telling them things like it was right after the sports concussion that I suddenly got so forgetful. My family doesn't understand or believe I got injured because they weren't around when it happened. So I get the same crap from them too.

I wonder, would my adopted mother having Menengitis 8x as a child through early adulthood - the fevers and such - she is considered to have "brain damage"...although its never been called TBI, i almost wonder if it might not be considered that.

There are specialists called NueroPsychologists. They are trained to determined what parts of your brain are effected by your injury. They also tell you specifically what your symptoms are and what kind of mental exercises, etc, you can do to get better.

IDK about the rest of you, but this death of Billy Mays due to a head injury has reminded me of my own TBI incident, and how I "should have" died myself.

Has it affected anyone else too?

It may have caused her problems. It would be considered a ABI or Acquired Brain Injury though. Traumatic Brain Injuries are from open or closed head injuries from accidents or other physical traumas. ABI's are the result of oxygen deprivation, infection, tumors and some diseases.

Who is Billy Mays? Is that a celebrity? Did someone else famous die? I guess maybe I should turn on the tv. Haven't in a couple days.

I've been told 3 times that I should have died (2 head injuries and a lightning strike). I have no clue why I'm still around.

It was just this time last year when 3 kids had a huge auto accident in front of my house of July 4. One girl was thrown out of the car not wearing her seat belt, the other girl was still in the car but had a piece of the fence in her. It was the boy who was driving that was in horrible shape. When I got there all I knew is that he was pinned in the drivers seat......no way to get out.....& I called the paramedics.

The only thing they thought of at the time was saving him as one of the fence posts had gone through the windshield, & through him, pinning him to the drivers seat.......they ended up saving him.....but it wasn't until later that night they realized the severity of his head injury. Sounded like his head was swollen 2 x the normal size & had to do surgery to release the pressure. I was in touch with them all summer as I was caring for the girls dog that had also been injured in the accident. It was sad but they said the boy had to learn everything all over again......from the very beginning.....they seemed to think that he would never be able to end up with the ability more than an 8 year old. He was a senior in high school. His father had died a few years ago, so he only has his mother's care & is sounded like she was not the kind of mother who could deal with things like this. The very sad part is that he was driving with a suspended license from a previous DUI flying over the roller coaster bumps in our pike at 100mph with the radio blaring. Flew off one of the bumps & into the air, hitting the wooden farm fence of the farm across the street from my house, rolled the car a couple of times, flipping it in the air where it came own & landed, taking out another section of the fence. Sadly for the family, the insurance wouldn't cover the accident How do you get the treatment you need for serious injuries like that when there isn't money or insurance to cover it?

I have only had minor concussions in my life......one on the racquettball court when I fell into the wall with my head, as I missed my shot.......the other when I fell off my horse landing on my helmet covered head......those were just a matter of feeling dazed for several days & not being able to focus with blurry vision.....but nothing like TMI.

Like with other conditions, it's important to learn the limitations it puts on life, accept them a being part of life rather than being in denial & find the things necessary to use as tools to work around them to function in life as close to normal as possible. Learn to love the life you have & enjoy the beautiful moments you do have.

Debbie