[weird artist]

Does anybody have this condition?

I know it is rare, but I have been diagnosed with hyper-mobile joints, and I have checked out the symptoms online.

I think I fit enough of the symptoms to warrant a genetic test, and I know my sister has hyper-mobile joints too.

Is it worth getting tested? Is there any better treatment/understanding? Is there any kind of tailored pain relief or physiotherapy help. Or is the treatment pretty much the same?

Thanks for the advice I hope to receive!

[Perna]

I think if you have been diagnosed with hyper-mobile joints, the doctor would have considered Ehlers-Danlos. Do you have the stretchy skin? It's very "odd" looking, one can pinch the skin and pull it "up" several inches like it's plastic. There appear to be four types of the syndrome but they all have other major body defects so I think a doctor would know if you were suspected of having it?

Here, maybe this will help answer some of your questions: http://www.mayoclinic.com/health/ehl...ndrome/DS00706

[weird artist]

well, you'd think, but I do have quite stretchy skin, and I have the thin, wide scars assosciated with the condition, as well as a few other problems, I think I will talk to my doctor next time I visit, I just wanted to know if there were any huge differences in treatment.

I live in the UK and different doctors are better at getting diagnoses correct... And you can't self reffer like the US, so I have to go via a general doctor, who doesnt have a huge awareness of unusual illnessess...

I'll update when I talk to my doc.

[Perna]

Hey, Terry, you might want to print out and take some of the Mayo clinic stuff about Ehlers-Danlos with you to your doctor; it's one of our better/more famous U.S. clinics, your doctor will have hear of it.

http://www.mayoclinic.org/about/