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#1
Oct 07, 2009, 05:36 PM
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sorry guys... i posted first in chronic diseases but then realized that there arent many people using that forum... so i am copying it here.
for years i have struggled with multiple health issues... my whole life actually. It's been painful, debilitating and stressful. i discovered a family of disorders, connective tissue disorders, that fit everything that has happened and i've had to fight for years to get a final dx... well.. i did get it. The geneticist was certain and she was shocked this wasn't done before now. i have ehlers danlos syndrome. It means that the collagen in my body doesn't work right. It's the glue that holds everything together... it's all the soft tissues, blood vessels, muscles, ligaments.. everything. everything is at risk of damage, not the least of which being my blood vessels and heart. Some of you know from chat that i ended up in the ER for substantial blood loss due to an artery breaking. i have body-wide pain i wont go on and on... no point.. but i have decide to make a new committment to myself. i decided that i am going to have to treat this body better than it has treated me. i've decided to use my tiny little food budget to buy better food and aim to get good nutrition as i can... now, some of you know that there are other issues with that, but as best as i am able to manage i intend to eat better. it will mean eating less because i can't eat in quantity and still get fruit and veggies... today i had baby greens with chicken instead of my usual 1/2 box of KD. ive had to buy food and forego medications sometimes but i am intent now on finding the best middle ground i need to start planning a strategy to take care of me and this body of mine. open to suggestions
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   “This is my simple religion. There is no need for temples; no need for complicated philosophy. Our own brain, our own heart is our temple; the philosophy is kindness.” -His Holiness, the Dalai Lama I will not kneel, not for anyone. I am courageous, strong and full of light. Find someone else to judge, your best won't work here. |
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#2
Oct 08, 2009, 10:26 PM
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I do hope that you start to feel better and that the eating better helps with that. Keep up the good work!
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I'm here to deal with my "issues". 
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