[Inny2009]

Ive been dealing with some serious health issues for awhile now...and now its boiling over and NOW my doctors are getting frantic...if you want to call it that.

Two years ago I went to my family doc with swollen lymph nodes and fatigue and all over body pain. He gave me an antibodic, tested me for autoimmune, lymes, arthites, diabetes and thyroid. They were all negitive and the antibodic did nothing for my lymph nodes. I then went to an internist a couple months later because my fatigue was getting worse, my lymph nodes were still swollen and i was just all over miserable. She did a CT scan and found three swollen lymph nodes above my clavical and one on each side of my neck, a right lung nodule and an enlarged thymus (she told me that means my immune system is very low and not working properly). Gave me an antibodic and that didnt work. She said she couldnt figure it out and that it was all coicidental (cant spell sorry) so I left. Then in about dec i lost 20 pounds in two weeks. I was getting sick every day and then about a couple weeks of being 100 pounds all of a sudden my stomach became really bloated, severe abdominal pain, lower back pain, more puking...and periods were coming every two weeks 10 to 13 days, black tarry periods and brown spotting. Went to gyno told me i had a small cyst and it will go away. Present day, Still looking 5 months pregnant, and all my symptoms except they are all worse (i cant vouge for thymus or nodule lol) Im soo weak i feel like jello, I cant hold my son anymore im afraid im going to drop him and i take naps everyday just to make it through the day. Did I mention im only 22 years old??? Went back to gyno and said my reproductive organs are very swollen (it hurts to be touched in my pelvis area, causes me to sweat and all). Gave me more antibodics..which didnt work. Now she said i need surgery as soon as possible. I told her about my medical history and she wants me to literally make an appointment today with my internist for an emergency follow up. Ironically in all these years they brushed me off..and now i just lost my insurance and NOW they want to be serious about it. My internist is on medical leave right now but due to communication through the wonderful Godsend of an assistant she wants me to be seen immediately as well. My husband and I are cracking at the seams. I have been so sick for so long and now im so much worse we are constantly stressed and fighting. Im getting to the point where im no longer functional. Im so weak im actually shaking, i eat one meal a day at 4/5 pm and thats it, i get sick just eating a small meal. My blood work is kinda weird. My white blood cell count flucuates from really low to normal and i do have anemia..which could account for the fatigue...but that severe?? Im just mad because ive been going to doctors for two years who have brushed me off multiple times and now that i just lost my insurance and am barely functioning...now they are telling me i need immediate care, immediate surgery (laprascopy)..and from what i understand they still dont know, but they are talking about doing all this in a matter of days...im so blown away..Ive been telling them for TWO YEARS im sick and something is very wrong but no...its now when i cant afford health care that they take me seriously..irony?? I applied for medical assistance so I told them im gonna have to wait until i find out if i get it or dont get it. We will see. Dont get me wrong im glad they are actually taking me seriously..better late than never i guess..but i always did tell my husband its gonna take me falling over and non functional before they take me seriously...and sure enough..I just wish I didnt loose all this time being this sick and im afraid whatever i had..since my symptoms are getting worse that whatever I have is getting worse. Thanks for listening to my rant!!!

inny

[bachir]

wow! i am so sorry to hear that you're going through this, and have been having to go through all this. i'm really thankful that you were so bold to share this. some of the things you've shared here i have been experiencing myself. just one ie is in march i began loosing weight. i lost 19lbs in the first 8 days that my weight loss began. my weight loss is not as dramatic as it was then (thank goodness), but it is steadily continuing to happen even though i haven't changed anything! i'm now at having lost 35 unexplained lbs. and continue to drop. i just set my second appt today regarding this issue. the first time i took this up with them they didn't even have a clue as to where to begin. i had a blood test done just a month before i first approached this and it came back normal. so we'll see what they have to say about it now. i've lost 15lbs since the last time i saw them.

i can relate to other issues you are having as well. so just know you're not alone and again i send my thanks for your willingness (need or not) to share about this. maybe giving me some indicators as places to begin to search. i have no family medical history to go by given i was adopted so this could be fun. (ok or not)

i hope that your medical coverage issue can be sorted out quickly so these issues can be handled the way they need to. i'm also glad they are finally starting to listen. i guess better late than never. please take care and keep us posted. i'd be interested to hear how this pans out for you.

best wishes and please take care

[Aunt Donna]

Feel free to vent. You have the right too. I hope they find out what is wrong real soon. Please keep us up-dated.

[Inny2009]

Thanks you guys. Im so glad to have some support. I never complain to people around me because I dont want to get annoying and what good does it do other than waste air? No one knows other than my husband. People have made fun of me because i take naps during the day and say im just plain lazy. They see me laying on the couch while my husband takes care of the baby (i do as much as i can but sometimes i just cant even get up) and they think im a bad mom and just lazy. I wish..I wish i could say i was just lazy...I want to be lazy..at least i wont be in such severe pain. I can overcome laziness without the help of doctors and surgeries and all. Im just alittle worried about my two doctors want to set everything up in days...they are like frantic and i dont know doctors who are frantic.

Im so glad I could help. Have you had your thyroid checked? That can cause weight loss or weight gain. Thats what they originally thought for me but my thyroid came back healthy as a horse...

Thank your for supporting me. I really appreciate that.

As soon as I hear anything new i will keep my thread updated.

[bachir]

thanks for updating us, and putz on those who think you're just being lazy. it's foolishness and really shouldn't be considered as anything valid, cause they DONT know.

i haven't had my thyroid checked. thanks for the suggestion. i think i've heard this said a long time ago. my next appt is this wed. the dr i'm seeing is pretty aggressive (in a good way) in trying to address issues and i'll see if she's willing to consider this. i'm sure she will though. hopefully, at least some of my recent physical issues will be resolved and soon at that.

thanks again for the update on how things are coming along for you. i will continue to follow this as i'm interested in hearing how this progresses. take care

best wishes

[Inny2009]

Yea let me know how it goes for you too. Well I applied for medical benefits and they said i should know in 30 days or less if I qualify. So hopefully I get it and then in 30 days I should get my surgery and hopefully something will happen cuz my pain is crrraazzzyyy.

[Inny2009]

Well i realized my doctors were getting antsy but never like this. I was at work and my internist called me and told me i need to get into the office tommrow morning bright and early. I said i work tommrow and i dont have benefits yet. She basically told me to tell my boss to shove it and said money doesnt matter right now. WHAA??? I said i have no money to bring to the office or anything she said she didnt care she wanted me in her office tommrow morning ...now im really getting nervous. It must be serious for her just to not worry that I have no money...normally they say oh just call us when you get benefits or something...but no. I got my coworker to cover me and i go in tommrow. Maybe...now i should start to worry.

[bachir]

hon, as i've heard others share here maybe you can visualize taking me in your pocket (or purse) for support. it does sound very important that you follow through with this, but it also sounds like they feel they can do something to help. run with it, and please keep us posted. i'll be thinking and praying for you in the meantime.

btw..i did go to my dr yesterday. i ended up seeing one i've never seen before because the one i was suppose to see was so busy. it was a guy to boot. but it went ok i guess. they did a test on me a while back, and i didn't know then but i do now that apparently i have a benign tumor. although to be honest i'm not sure where, and i don't recall him saying. they just know this cause of the test. they are doing this test again to see if it has grown and is causing these problems. i guess they checked my thyroid a couple yrs ago and it was fine then. he did ask if i would be willing to have an ultrasound done on my overies and you know those womanly parts inside. again i was like but i told him i would be willing to do it. well, i need to run that's the update with my whole ordeal.

please take care and keep us posted.

[Inny2009]

I went to the doctors today, apparently whatever i have is now affecting my brain. I completely bombed the neuro exam, my reflexes are completely gone. The doctor told me at this point i need to go to a larger hospital like John Hopkins or Hershey because im so ill and im losing my quality of life rapidly and no one here in my small town is going to be able to figure it out. meh.

[bachir]

awh hon, sorry to hear that. i just went through neuro testing too. isn't that exhausting in and of itself or what? i felt like my brain was mush at the end of the day. i won't find out my results till next tues though. hang in there hon. you'll get through this. take me in your pocket. i'll keep checking in here for updates too. gotta run now need to go home and get ready for work. take care and i'll keep you in my prayers.

best wishes

[Inny2009]

well honestly their "neuro" exam was all but 5 minutes of my time.. where i live its such a small town, like you can walk from one end to the other and it wouldnt take you all day..maybe half a day if you walk slow...lol. They do have updated technology and stuff but not to the extent that i need. Thank you for all of your support and good luck with your results!

[bachir]

5 min?! wow i wish i could of been so lucky..between the tests and initial screening i invested ten hours of my time doing them...the testing stuff took 7 hrs by itself and i finished that an hour early...i had to take 30 tests that day...just one test consisted of answering 338 ?'s...

i'm pulling for ya hon..i'm sure you're frustrated with not having any solid answers..so are you going to do the johns hopskins thing? i know you're having financial issues surrounding taking care of this...you should definitely double check on this but i believe if you've applied for medicaid i think they'll cover your medical expenses from the date you applied..i could be very wrong here given my memory rarely serves me well..maybe you could ask about that though...

keep us posted...take care and best wishes