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#1
Sep 11, 2006, 05:22 PM
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A couple of weeks ago I learned that I have Ehlers-Danlos Syndrome ( Hypermobility type ). This has made so much sense to me. It was like OMG this is it, This is the answers I've been looking for these last few years. I'm happy that the MS has finually been ruled out. It took my physical therapist to figure my puzzle out. It's wonderful to have someone take the time and the sit down and listen. This isn't all in my head. He took a complete history from birth. Things like dental history. Just all fits.
Lisa
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Back, I've lost months, months ! |
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#2
Sep 11, 2006, 06:21 PM
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((((( Lisa )))))))
Hugs, Jan
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I still dream and I still hope, therefore I can take what comes today. Jan is in Lothlorien reading 'neath a mallorn tree. My avatar and signature were created for my use only and may not be copied or used by anyone else. |
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#3
Sep 11, 2006, 06:34 PM
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Both my sister and her hubby has got Ehlers-Danlos Syndrome. My sister in a milder form, but her hubby in a worse form.
I feel for you and I know a bit about what you're dealing with. (((((((((((( Lisa )))))))))))))) Good that you got the right diagnosis! Now you can go further knowing that. There are some help. |
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#4
Sep 12, 2006, 09:05 AM
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(((((((((((((((((((((( Jan
 ))))))))))))))))))))))))))))))))Lisa
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Back, I've lost months, months ! |
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#5
Sep 12, 2006, 09:16 AM
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I'm so happy that I got the right diagnosis now. Now I know what I'm dealing with and where to go. Pain is pretty bad today. Thank You for understanding.
((((((((((((((((((((((( Poetrylover )))))))))))))))))))))) Lisa
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Back, I've lost months, months ! |
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#6
Sep 12, 2006, 09:20 AM
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So glad you have a diagnosis so can start making sense of things. Did you know there's a national foundation?
http://www.ednf.org/
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"Never give a sword to a man who can't dance." ~Confucius |
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#7
Sep 13, 2006, 11:59 AM
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Hi Perna, yeah I'm suppose to be getting information from them soon. I looked at their website and they have a message board there, but it cost to read and post there. I haven't found much info for here in the states though besides that site.
Lisa
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Back, I've lost months, months ! |
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#8
Sep 13, 2006, 12:23 PM
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Lisa, have you been to these addresses? http://www.nlm.nih.gov/medlineplus/e...ssyndrome.html
http://www.mayoclinic.com/health/ehl...ndrome/DS00706 |
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