I've had this a long time. It was misdiagnosed once as MS. After the initial correct diagnosis it was pretty much static. I just realized that two toes of my right foot and a part of my left leg have gone numb. Anybody else had a long stasis and then new symptoms?

[Little Lulu]

Could be a lumbar disc/nerve problem radiating to your lower leg and foot.

[PoorPrincess]

Originally Posted by George H.

I've had this a long time. It was misdiagnosed once as MS. After the initial correct diagnosis it was pretty much static. I just realized that two toes of my right foot and a part of my left leg have gone numb. Anybody else had a long stasis and then new symptoms?

I am sorry to hear that you are dealing with this bugaboo also, George.
Degree of pain/discomfort seems for me to be mediated by the duloxetine/Cymbalta..
No change is the numbness however, of course. I well know the disconcerting feeling upon awareness that PN symptoms are spreading/growing.

Followup testing with new neurologist next week and to go over results of mri, labs, etc. I shall be inquiring about bouts of exacerbation, possible causes and what if anything I can do, i.e. preventative self-care to minimize.

I'm sure that you have likely gone over to the neurotalk forum to consult with those excellent folks on the PC companion forum for neurological concerns.

Keep me posted.

Originally Posted by Little Lulu

Could be a lumbar disc/nerve problem radiating to your lower leg and foot.

That's a possibility

Originally Posted by PoorPrincess

I am sorry to hear that you are dealing with this bugaboo also, George.
Degree of pain/discomfort seems for me to be mediated by the duloxetine/Cymbalta..
No change is the numbness however, of course. I well know the disconcerting feeling upon awareness that PN symptoms are spreading/growing.

Followup testing with new neurologist next week and to go over results of mri, labs, etc. I shall be inquiring about bouts of exacerbation, possible causes and what if anything I can do, i.e. preventative self-care to minimize.

I'm sure that you have likely gone over to the neurotalk forum to consult with those excellent folks on the PC companion forum for neurological concerns.

Keep me posted.

I haven't posted in that forum but I may. My PN symptoms have been very minor in my view. I had an active music career and some 9-5 jobs and it never hindered me. I could ask you some questions if you don't mind. Yours seems to be more serious than mine. I've been lucky not to have had any pain or at least nothing that I attributed to the PN. I have a pretty good pain threshold. I have had some unusual muscle weakness recently but I figured that was from this respiratory thing I've had. Do you know the cause of your PN? I don't know the cause of mine. Not diabetic, never much of a drinker and no exposure to heavy metals or whatever exotic substance that may cause PN. My left hand is slightly clawed and hurts a bit at times but nothing serious. I very rarely get any noticeable twitches or involuntary movement anymore. I've had it for a couple of decades so it seems odd that there would be any changes after so long. For now this is just a new small difference in life. Hoping it stays that way