[ForeverLonelyGirl]

This has just started a few months ago, but it is every day. Some days worse than others. I am attributing this to my protracted withdrawal of klonopin. I checked on a benzo withdrawal support site and there are lots of people having this. Although most doctors would be naysayers in this matter. I don't think it is a just a coincidence that lots of people in long term withdrawal are having it.

However, it is very distressing and it makes me feel like something is seriously wrong, deep down. Feels like I need a good doctor to evaluate me from head to toe. Of course that brings a sense of dread and I would not trust anything my current doctor has to say. She would probably just do another "referral". Truly I do need a better doc.

Just checking to see if anyone on pc has this and how they treat it. I finally broke down and took advil today, it helped some. I guess the main thing is now this is scaring me and I cannot do anything much, such as running around with little 6 year olds exhausts me. Any suggestions?

[HALLIEBETH87]

I can totally relate. This last couple weeks I sometimes do ok then later in the day I nearly crash where my body just feels weak and even going across my room is too hard-it hurts.

Sorry you don't feel well.

[ForeverLonelyGirl]

Originally Posted by HALLIEBETH87

I can totally relate. This last couple weeks I sometimes do ok then later in the day I nearly crash where my body just feels weak and even going across my room is too hard-it hurts.

Sorry you don't feel well.

Thanks...do you know what is causing yours? I am just getting worried because I have no desire to move. I have to go watch my father Wedsnesday after he has surgery and stay with him 48 hours. Out of the whole family I am somehow elected. Since I do not sleep well at all, getting up to go to his surgery at 8 am, I truly do not know how I am going to be able to stay awake and be worth 2 cents. I am already exhausted with getting the little bit of sleep I do. I have one sister and 2 grown sons but I bet they won't help out. I guess if I just cannot do it, I will just have to come home. Oh I dread that!

[~Christina]

It very well could be from the withdrawl of benzios. But it could also be a number of things. Any stress in your life and suck the energy right out of you, any mental illness is draining.

Could be thyroid or hormonal shifts, Interaction between any medications you are taking (if applies) I think its smart to just have a complete physical with all the blood work done., check also for lyme if you spend time outside in areas that ticks are a plenty.

I had the exhaustion and it hit with massive pain literally overnite .. Finally everything was ruled out and I was give Fibromyalgia and Chronic fatigue.

If you feel something is wrong with you, get it checked out, you know yourself better than anyone else. Don't let fear get in your way of feeling better.

[ForeverLonelyGirl]

Thanks Christina,
So how long did it take you to get the diagnosis from when the symptoms started? My doctor first sent me to a cardioligist, I was having some wheezing and lots of swelling in my ankles and hands, but those symptoms mostly went away by the time I went to see him.

The profound fatigue is disturbing and scary to me. Did it feel that way to you? The general aches seem to get better by the afternoon, but it does take it's own good time. This has just suddenly become very disabling.

Does it get better?
I know that going through benzo withdrawal is extremely stressful on the body, mind and soul.

[HALLIEBETH87]

Christina has good advice!

I have hypothyroid and before I was dxd I was simply exhausted ALL the time.

[~Christina]

Originally Posted by ForeverLonelyGirl

Thanks Christina,
So how long did it take you to get the diagnosis from when the symptoms started? My doctor first sent me to a cardioligist, I was having some wheezing and lots of swelling in my ankles and hands, but those symptoms mostly went away by the time I went to see him.

The profound fatigue is disturbing and scary to me. Did it feel that way to you? The general aches seem to get better by the afternoon, but it does take it's own good time. This has just suddenly become very disabling.

Does it get better?
I know that going through benzo withdrawal is extremely stressful on the body, mind and soul.

I say my PCP first then about 9 other doctors and specialist visits .. Start to finish about 4 months. My pain is pretty much always the same. I have had a pain level below a 6 maybe 3 times outta the last 5 years. Mine just stays at a 7 or above. I do know some people that have more trouble in the am and as the day goes along they feel better. Fibro and chronic fatigue is a finicky painful damn thing. I am always exhausted, sometimes its a little better than others, but its life altering .

Its a lousy illness to have no matter how you look at it.

I hope that your issues are related to something else that will go away and you wont have to deal with it all the time.

[ForeverLonelyGirl]

Thanks Christina. I am truly sorry that you have to deal with such pain every day. That must be really hard. I do not think my situation is the same. Of course, none of this started until I started really suffering with the benzo withdrawal. I truly believe my symptoms are because of that, due to the fact that they are very inconsistent and change constantly. Like going from one strange ailment to the next every day.

I started to write a new post tonight but I fear people getting tired of my whining. I do feel so very DAMAGED. It is impossible to explain the way my brain and head feel every day. Very strange and unpleasant. I don't know where to turn for help!

[AncientMelody]

Sorry to hear it ForeverLonelyGirl. As I said to my husband the other day, I feel like I've spent the last two years playing medical whack-a-mole: as soon as I get one symptom sorted I have to deal with a side effect of the medication that helped me, or a new issue pops up. Fatigue has been a longstanding issue for me. A lot of it I think has to do with my hormones being out of whack since my second child was born. Best of luck to you.

[~Christina]

There's nothing wrong with needing help and posting about it .. this is what PC is for