[SandyWeb]

Does anyone here deal with PolyCystic Ovarian Syndrome? We just found out my 15-year old daughter has it (yes, the same girl who will be getting her jaw wired shut in April for 6 weeks).

When it is time for her period to start (which doesn't happen), she will get these intense pains that just kill her lower back. She can't get comfortable (standing, sitting, laying down), and it makes her cry. It only lasts for a day or two. I am assuming this is pain from her ovaries radiating into her lower back? We can't really do anything about this right now because of her upcoming jaw surgery. After the summer, I will take her to an endocrinologist.

Should I ask the oral surgeon for extra liquid pain medication to cover the times she'll be experiencing this type of pain? And when she can open her mouth again, what have any of you done about this pain....or did you even have it?

Curious mum wants to know.

God bless,
Sandy

i have pcos

i dont get the pains well def not that severe
so i guess im lucky then but that doesnt help your daughter
im sorry she has to go thru it and it must hurt u to see her in pain

i would def get some liquid paracetamol or other pain meds to see if that relieves some pain

also use heat packs they do wonders sometimes

[InACorner]

Im sorry i have no idea what your daughter is feeling but it must be horrible and miserable
i just wanted to give you my support

good luck!!! Maybe it wouldnt hurt to ask about the pain med. if he says no.....could you give her some liquid over the counter meds? Just ask the doctor how it might interact with her other meds....

Thinking of you two, Inny

[jacq10]

I wish that i could help in this area! I'm sorry to hear that your daughter goes through so much pain with it ... she sure is lucky to have a mom who cares so much like you though!

[SandyWeb]

Thanks, everyone, for your replies.

We didn't find out about her PCOS until about 2 months ago. She started her period when she was 10 (YOUNG), and she has been regular as clockwork. It was amazing. But then in September she didn't have one and I just attributed it to the stress of her upcoming jaw surgery. Who wouldn't get all out of sync, right?

Well, it turned out to be 4 months before she finally had a scanty period. Before that time, I had taken her to the doctor to find out why she wasn't ovulating. Bloodwork was fine....the problem, however, lay with her hormones. And thank goodness she doesn't have extra testosterone or she would have manly features: mustache, hairy, small breasts, etc.

It turns out that she has cysts in both her ovaries. Not curable, but is treatable. I joined a group to find out more about this, and I've been told that sometimes when a cyst erupts into an open sore, it can be so painful that you're doubled over in the fetal position and need to go to the ER for pain relief. I didn't tell my daughter THAT part. She doesn't need to know that! Not yet.

She has a chance of getting Diabetes Type II (non-insulin). She produces enough insulin, but her glucose will become insulin resistant. I guess there are herbs that will help the two to bind. She also can have sudden weight gain (which she gained 15 pounds in those 4 months....but, dumb mum again, I just thought she was getting ready for a growth spurt). And she may have problems getting pregnant when she's married, but there are medicines to help with this. In fact, most of the people in the PCOS have kids....so that's encouraging. My daughter loves babies, and has always wanted three.

She hasn't had her period for the past 2 months again, and it's usually around that time of the month that she goes through a day or two of that awful lower back pain. I just haven't heard anyone mention this as a symptom yet, and maybe it's something altogether different. Poor thing. I'll bet she'll be soooo relieved when she's recovered from her surgery, and then we can get her started on meds on regulate her cycles and help with the pain.

Jeepers, the only problem I had as a kid was I broke my toe. Years later, two childbirths to monster INFANTS (certainly not newborns! Lol). Oh, and I broke my tailbone in two places when I gave birth to my first baby (who was 9 lbs 3 oz), and I was just a little thing. Ouch. But I was in so much pain that I didn't even feel the bone breaking.....twice! Lol. But I was in plenty of pain for about 7 years afterwards until it just magically disappeared.

Anyways, got off the subject. Thanks for your support.

God bless,
Sandy

[jbug]

I have PCOS. I do have the extra testosterone. I have hair that I shave and no boobs either.

I do get killer cramps and then no period which is just plain frustrating. I haven't had a period since October when I went off the pill. I had started to smoke again and the doc won't let me be on the pill til I quit. I just endure and go on.

I take metformin to keep my insulin in check. I was able to go down on the dosage went I lost weight. I am hoping that in the next year I can go off of it totally. If she ever has to take predisone or steroid shots beware of the insulin problem every year when I land in the hospital due to my asthma I end up having to have insulin shots because the steroids throw me into diabetes but when I stop taking them the insulin level goes back to where it should.

There are several meds your daughter can take when she is ready to have kids and the doctor will be able to help her with that.

Jbug

[SandyWeb]

Thanks Jbug, for your response. I'm sorry you have to go through all that. I guess my daughter has it pretty mild compared to some of the stories I've heard. At least we don't live in the days when they'd just give you a hystirectomy (sp), and solve all your problems just like that. Thank goodness for research and medications.

Right now we're not focusing too much on the PCOS. My daughter has her jaw surgery next week (Tuesday morning), so that is the main conversation and concern. I think she'll survive the PCOS (especially with the amount of pain meds they'll be giving her!) until we can get her into an endocrinologist.

Thanks so much for sharing your story. I can't imagine not having my period since October! And then having the cramps without even the satisfaction of running for a tampon! That's as bad as when I had my second child. All the pain of labor (big baby for my little frame....she was 8 lbs 6 oz), and then I wouldn't stop bleeding. So they put patosin (sp) in my IV to shrink up my uterus as quickly as they could. Goodness gracious, I was in labor again!!!! I even had to pant through contractions, it hurt so much!! I finally told a nurse that I felt like I was in labor again (without a baby this time!!), and she said, "Oh, you poor thing." Then she gave me some wonderful pain meds. Phew! I was getting to the point of giving birth again! LOL.

I wish you all the best. You take good care of yourself, and I hope the cramps get better.

God bless,
Sandy

[littlemissjess]

Wow, I am so sorry to hear about the news for your daughter. I am only 16, and I'd be terrified and your daughter is only 1 year younger than me But I wish you good luck with that, and that you and your daughter get through this.

[sabby]

My youngest daughter has PCOS. Her Physician's Assistant who's been treating her had put her on metformin for her insulin level also. Unfortunately, the metformin upset her stomach terribly, no matter what time of day or night she took it, before or after meals, and it didn't matter what dose. She would have awful cramps and potty problems from it.

She finally went to see a gyn last week and he referred her to a specialist who only deals with hormonal issues/PCOS/infertility. Her appt is on May 7th with the new doc. I can't wait to see what he has to say.

The gyn was very ticked off at the PA for trying to continue the metformin. He told my daughter that there are plenty of other kinds of meds she can try that won't upset her stomach so much.

I'll let you know more after her appt if there is any new news Good luck to you and your precious little girl!

Hugssssss
J

PS. My daughter has had tremendous weight gain in the past year from the PCOS and many many skin tags have grown too. (also issues from PCOS) Luckily she doesn't have much in the line of facial hair problems. OH, and the gyn told her that the meds this other doc will put her on will greatly reduce her weight pretty quickly. She's really psyched about that! LOL

i hate my pcos
its almost worse than the MI
my weight goes up and down and up and down
and hair my goodness its starting to get darker and i dont want it
argh
makes me feel super ugly
which makes my MI worse

the MI came first and i havnt dealth with all of it and
then pcos
and now hernia
omg whats next
i prob will end up with diabetes or sumthing.. i really hope not cos so far thats all ok and im stickin in normal weight range for the last 6mnths so yeah....

sorry ranting

sorry for u all
pcos sucks