[healingme4me]

I just posted on another thread, about being hard pressed to get dx's.

Maybe, I'm having this adrenaline, let down, not sure, hard to explain what I am feeling.

From the speech pathologist at the school, saying I need to practice more with my son, to the school this year, having a more difficult time with my son, to him, last year, having kids insisting he was swearing, when his speech is so difficult to understand. Apraxia, was vocalized, at the IEP review, but not listed. So, I appealed, for the first time ever(two kids, IEP's since 2008), and waited for the finalized IEP, which DID NOT include the use of apraxia(fear of legal liability), to walking that into my son's pediatrician. One referred place, wouldn't take my insurance, not for speech therapy. To finally having the appointment, today.

I walked in, sans, IEP. Just a referral. Told, that they could only evaluate, but unless they saw something, blah blah....((I'm thinking, why don't you see for yourself, what we are all talking about, those of us, who deal with my son, most of the time)).

Went in, to the pediatric speech pathologist, for the initial assessment. I did, toss out the apraxia word. She stated, that its been too common a dx, and sometimes it's wrongly so. But said, she knew what to look for, thanks, she'd pay attention during the assessment, told me, in laymans terms what she'd look for. Yes. It's there. She is taking him, back, next week, more testing, one aspect of apraxia stands out, but there's another one, and I forget the two terms she used.

Um, this isn't about me, the mom, not practicing hours and hours, try that with three kids, all those visitations their dad used to have. I do what I can, with my kids. But, with this, this isn't about me!

It's like, a light at the end of the tunnel, but no light, at the end of the tunnel.

[Bird Feeder]

How old is your son? My grandson is almost 3 and has been dx with apraxia. There is a good book called "speaking of apraxia" that is a great resource.

[too SHy]

what on god's green earth is Apraxia? I know that my grandfather said if you had those behaviors, yo.,u would get hit with a harness strap until you coud'nt stand up. I swear it's true. Just to say, I don't know of anyone evr having a disorder of this kind. Maybe as in the old days they hid the unfortunate ones.

[healingme4me]

Originally Posted by Bird Feeder

How old is your son? My grandson is almost 3 and has been dx with apraxia. There is a good book called "speaking of apraxia" that is a great resource.

He's 6, going to be 7, next month. 3 is young, for a dx, but glad they caught it early for your grandson. The speech pathologist, said, it's more evident at 7. I will look, into that book. Thank you.

[healingme4me]

Originally Posted by too SHy

what on god's green earth is Apraxia? I know that my grandfather said if you had those behaviors, yo.,u would get hit with a harness strap until you coud'nt stand up. I swear it's true. Just to say, I don't know of anyone evr having a disorder of this kind. Maybe as in the old days they hid the unfortunate ones.

It's a speech disorder. It's not behavior, it's neurological, affecting the fine motor skills of the mouth and throat.

Glad, my son, is coming of age, in a time of not being beaten with a harness strap, until he can't stand, because he doesn't articulate well. I cannot fathom, that happening to him. Out of my three sons, he is the best behaved. Just defiant, in refusing to do writing work on weekend in review, for weekly story writing. His fine motor skills, also translate to his hands. Give the kid a word processer, aka computer, and he can type the words better than he can hold a pencil and paper. Or frustrated with not being 'heard/understood', when the book, he wanted at the library was taken by another child.