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#26
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Old annoyance that just got me annoyed again two days ago.. people saying: you have x diagnosis, so you must try y, that will definitely help you.
What? Of course, there are cases where this might be true. For certain infections, certain antibiotics will work just about all the time. If you have severe blood loss, a blood transfusion will probably always work. In the case of two days ago, though, my mother brought up the idea of getting me a Squease vest again. It's a bodywarmer with air compartments that you can fill, which MUST obviously help me because I have autism, and it helps other people with autism. "It's like getting a hug!" .. I don't always like hugs, especailly not if I'm overstimulated. Also, I don't like the idea of something being AROUND me. "But you always liked to be tucked in real tight!" Difference is that you can throw a blanket off you, even if it's tucked in tight. A vest, even if you deflate the compartments, stays on. It's even intended to wear under your clothes so no one sees, which means you can't even tear it off and throw it in a corner if you're in public. And then the clincher (I had just explained all this, including the fact that it simply scares me): "I just don't get why you won't try it. I mean, we're driving you all around the country to all sorts of therapies and you won't even try something this simple." Honestly, I get a panic attack at the thought of something like that around me. And I don't believe it will help. No thanks. Also: About a year ago a teacher (homeroom teacher or whatever you want to call it) told me to read book x, it was about a man who also had been severely depressed and he got a certain medication, and that medication could probably help me, too. .. 1. There are hundreds of thousands of books about depression, at least a 100 of which have been recommended to me by people around me. I can't read them all and I don't even want to read most of them (usually they are either too depressing - they match my situation, and it doesn't really make me happy to read about them not getting better also -, or they are too cheerful and I'm left thinking "Yeah, so you got better, but I never will." Or: "So therapy x helped you. Well, I've tried that, and it didn't help me. I'll never get better."). It's one thing to say "Hey, I just read book x and it was about y, which you also have.. maybe it's something for you. Just saying, you don't have to do anything." but "You should read x because it has information that WILL help you too/that you SHOULD try?" 2. I prefer to leave medication up to my pdoc, not up to you. 3. Want to know a secret? I've already tried that medication.. it didn't work. Sigh. But the first annoys me the most. If someone works for 80% of people with a certain issue or diagnosis, that also means it doesn't work for 1 in 5. Also, those 100% is made up only of people who tried - not those who had a very good reason to not try. For (most of) them it probably wouldn't have worked either. And just because it (or similar things) worked for Temple Grandin doesn't mean it'll work for me. She's a well-known example of someone with autism, not the embodiment of autism and it's 'remedies'. |
![]() Curry, KYWoman
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![]() Albatross2008, KYWoman
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#27
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My Mom said I was a bad child to all my relatives when I was growing up. I never let them say it was okay that she hurt me because she was an alcoholic. When I was a teenager everyone said I was troubled and depressed and wild. I got really pissed off and lost after moving to fifteen different schools and living in fifty different houses from Africa to Asia and then being dumped in a house in Canada with just my mom and me. When I was married and divorced my husband told everyone I drove him into his mistress's arms by being crazy. My ex's counsellor told my kids I was the product of my environment and they shouldn't blame me. So now I am in love again and am telling my boyfriend and his family who I am. I am someone who is full of love and if he wants to dance with me then I would be very happy. If my kids want me to kiss and hug them lots then they just need to come around. If people want to share my laughter and tears then they can come near. I have a lot of parts to me and a soul that my god loves. I never looked good on paper.
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![]() Albatross2008, KYWoman
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![]() KYWoman
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#28
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People assume I'm the one who's always wrong if we have a disagreement and if I get upset, it's because I'm bipolar, not because I'm human.
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![]() You're only given one little spark of madness. You mustn't lose it. ~ Robin Williams Did you exchange a walk on part in the war for a lead role in a cage? ~ Pink Floyd |
![]() Curry
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