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  #1  
Old May 05, 2011, 09:44 PM
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Nammu Nammu is offline
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I've been getting invasive injections to my spine for nerve pain. I just had a reveiw with the T from the pain clinic. It blew my mind when he said the procedures were causeing the nightmares, the lost of time, all the other fun thing that come with triggers. It blew my mind becouse I relized he was right. When I look back at the past year and a half, it falls into place. I've been doing a lot of self blame for going backwards.

Have any of you experenced this? I never herad about this but it makes so much sence and I was dx 25 years ago. Why didn't any of my T's warn me?
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…Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …...
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  #2  
Old May 06, 2011, 09:34 AM
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Sidestepper, Now you know what's going on I hope you've ended the self-blaming.

Yeah, there are medical prodecures and medicines that can be triggers and I don't know why you weren't warned. Maybe it's such an individual thing of who will react and who won't that T's are reluctant to say. I just figure that whenever I receive a new med or procedure and something goes off that it's the new whatever to blame. Significant Other calls me The Side Effect Queen. You may be supersensitive to any new procedures. Have you talked with your T about the unpleasant experience?
I hope this finds you in a better place. You take care.
Thanks for this!
Hunny
  #3  
Old May 06, 2011, 09:34 PM
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Nammu Nammu is offline
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I think I too am supersensative. I haven't seen my T sence the pain clinic T told me what he believe what was happening. I see her next week and this will be the topic. Although I was Dx 25 years ago I spent a lot of years on chemical restraints. They kept me in a fog and I could never work on the problems. the doc's were always telling me that the medications didn't cause whatever side effects I was complaining about. Then I found out I should be see ing a tramia specilist. They are really hard to find where I live but I now have a super T, and the T from the pain clinic who's specilty is PTSD. So it getting better. It So helps to be validated! Congrats on your significant other! That super, I kept waiting til I'm "all better" and keep any one who interested at arms length positive they'll go running when they "find" out I have PTSD and can freak out if people crowd me. Thats really awesome.
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…Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …...
Desiderata Max Ehrmann



  #4  
Old May 07, 2011, 02:57 AM
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Can't Stop Crying Can't Stop Crying is offline
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It's terrible that you weren't warned - I'm glad you finally got the information now and are able to look at the past year and a half and identify the treatment as a trigger. I am also super-sensitive to any med in the beginning and certain medical procedures are very triggering - you are not alone in this!
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Thanks for this!
Nammu
  #5  
Old May 07, 2011, 08:00 PM
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Nammu Nammu is offline
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Thanks, It's really very nice to hear I'm no alone.
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Nammu
…Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …...
Desiderata Max Ehrmann



  #6  
Old May 22, 2011, 11:58 AM
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Quote:
Originally Posted by sidestepper View Post
Thanks, It's really very nice to hear I'm no alone.
The dentist freaks me out. I think because its an invasion of my personal space.
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  #7  
Old May 22, 2011, 02:52 PM
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Hi Sidestepper,

Yes, it is not fair that you had to suffer side effects and struggle only to find out that it wasn't you after all.

I have found this out the hard way too. I was given an inplant after surgery for endometriosis and went into full blown depression. I was not told about the medication causing this. I went for quite a few years fearing that it would happen again as it came on very sudden.

I was not told that the anethesia and pain medication after my extensive life saving surgery would also cause psycological issues, wasn't that nice too?

I dont know why this has to happen. Perhaps it may be felt that a patient who is informed about a side effect may just imagine it. But I am with you, I would sure like to know in advance. And not think that there was something wrong with me psychologically. I think that is cruel myself.

I honestly don't know why the patient is always the last to know. Hey Hippee, how many signs do you have now? Hippee knows right hippee?
I think that patients can be sometimes nothing but another cow. LOL

Oh, do I have stories. I wish I had met Hippee along time ago so I always had signs I could grab in case of emergency. Heck with the suitcase, grab the signs. Right Hippee?

Yes it is crowded in PTSD, but people are coming and going and so there is room to come and yell, get angry, hyperventalate, have a panic attack and review, review, review. Nice to know your not alone in misery huh?

Open Eyes
  #8  
Old May 22, 2011, 05:48 PM
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LavalampTerry LavalampTerry is offline
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Open Eyes : Did I understand you to say anaesthesia can cause side effects? That might explain the awful week I had last week.
  #9  
Old May 23, 2011, 12:10 AM
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Thanks everybody, it is really great to get validation! After each injection, (I was put out so I would not move when they put a big needle next to my spine, then injected dye with a smaller needle inside the big one to locate the right spot, then they would wiggle the needle around to get all three pinched nerves in S1,L5&4) and each time afterwards I spent the first few days crying, in bed but terrified to sleep and really depressed. When I did sleep it was all the old horible nightmares with new variations of being chased and they would tell me thats not a side effect! Well excuse me, I'm feeling it! The good news is after the third injection the pain is much less, I'm hoping now that the PT will work out and stop all talk of surgery. Thanks. It does help to know I'm not alone in this and my experences are real. Sometimes I get tired of being told what I experence or feel is not real. I really hate my new PCP, first she took a drug test with out telling me, when it came back negative she still could stop telling me I was an addict (of what?) and that my pain is all in my head! She's seen my MRI results and my pain management Dr found nerve damage in both arms and left leg, but no the pain is just my imagination! I did ask my pain doc why the test came back negitive because I do take pain meds, but they were short acting ones back then and are gone 4 hours after you take them. Since then I've been put on morphine, and other stuff the pain doc does believes I'm in a lot of pain. She knows exactly where to push, MAN! Plus the pain managment group includes a pdoc who is really well versed in PTSD and the rest of the docs there listen to him, which is great. But mostly from the medical personal I get a lot of negativaty so it is nice to hear from you all, again thanks .
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Nammu
…Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …...
Desiderata Max Ehrmann



Thanks for this!
LavalampTerry
  #10  
Old May 23, 2011, 09:05 AM
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Open Eyes Open Eyes is offline
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Yes Lavalamp, Anesthesia is especially known for bad effects on the elderly making their thoughts very distorted and often extremely angry. And it last for up to 6 months in the system.
And it is one of the reasons why they hesitate on performing surgery on the elderly.

I had to witness seeing my mother struggle for months being totally confused.

I also had such a hard time in my own recovery. It was especially hard for me because I had two surgeries withing 10 days. I was also on the table for a long time, hours during my life saving surgery. I had a tube down my throat and I can no longer sing because of it, but at least I can talk. And I never realized that when you are opened up, air gets trapped in the body and it too is very painful.

No, I had to find out later, and they should have prepared us for how my mother was going to behave after her surgery. Some can be extremely hostile.

I don't know if you had surgery or your father did, but it does take time, anethesia stays in the system for months.

Open Eyes
  #11  
Old May 23, 2011, 09:11 AM
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mgran mgran is offline
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Cervical smear tests and dental work cause me major panic and anxiety. Being forced to lie flat on my back while being poked and prodded in those areas is just about hell. So now I have to have all my dental work done under sedation. My next cervical smear, I might ask the doctor for a mild sedative.
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  #12  
Old May 23, 2011, 09:53 AM
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LavalampTerry LavalampTerry is offline
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Quote:
Originally Posted by Open Eyes View Post
Yes Lavalamp, Anesthesia is especially known for bad effects on the elderly making their thoughts very distorted and often extremely angry. And it last for up to 6 months in the system.
And it is one of the reasons why they hesitate on performing surgery on the elderly.

I had to witness seeing my mother struggle for months being totally confused.

I also had such a hard time in my own recovery. It was especially hard for me because I had two surgeries withing 10 days. I was also on the table for a long time, hours during my life saving surgery. I had a tube down my throat and I can no longer sing because of it, but at least I can talk. And I never realized that when you are opened up, air gets trapped in the body and it too is very painful.

No, I had to find out later, and they should have prepared us for how my mother was going to behave after her surgery. Some can be extremely hostile.

I don't know if you had surgery or your father did, but it does take time, anethesia stays in the system for months.

Open Eyes
No. I had that procedure done last Monday. Was under no longer than a half hour they told me. They used the same stuff that killed Michael Jackson. Propofol. But I gotta tell ya, the rest of the week I was a mess! All over the place... I wondered if that had something to do with it... I mean "stuuf happens" & I've gotten a little better at dealing with it - but not last week! "Stuff" continued to happen but the coping skills were nowhere to be found!! And I wasn't sure why. Maybe? I'll ask my T on Thursday. Thanks for the info!! Doesn't hurt to know this stuff!
  #13  
Old May 23, 2011, 03:18 PM
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Quote:
Originally Posted by Lavalamp View Post
No. I had that procedure done last Monday. Was under no longer than a half hour they told me. They used the same stuff that killed Michael Jackson. Propofol. But I gotta tell ya, the rest of the week I was a mess! All over the place... I wondered if that had something to do with it... I mean "stuuf happens" & I've gotten a little better at dealing with it - but not last week! "Stuff" continued to happen but the coping skills were nowhere to be found!! And I wasn't sure why. Maybe? I'll ask my T on Thursday. Thanks for the info!! Doesn't hurt to know this stuff!
Yes Lava, your were probably experiencing side effects. Anesthesia does effect the brain and it does last for a time. You were not under a long time but, your brain was effected.

Just keep it in mind Lava and let things calm down. That would make sense to me that you could not handle things normally last week. I don't understand why they cant just tell someone this. I have been under 4 times and for different lengths of time. All four times it did effect me.
And they never discussed it with me once. Somehow they just seem to assume we know this daaaaa.

Why don't you look it up on the computer, the after effects of anethesia and how long it stays in the system.

Sorry you had to go thru that

Open Eyes
Thanks for this!
LavalampTerry
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