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  #1  
Old Dec 13, 2023, 11:36 PM
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jesyka jesyka is offline
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I just found out that taking this medication can cause stress incontinence which is something I’ve been having an issue with for the last month.

I started taking it not to long ago. I stopped taking it a few days ago. This is scary & upsetting.

Has anyone else had any issues taking this medication?
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  #2  
Old Dec 14, 2023, 01:34 AM
Tart Cherry Jam Tart Cherry Jam is offline
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I had multiple issues each time I tried taking Topamax, even at tiny dosages, but I did not have stress incontinence on it.

Apparently it is a rarely reported side effect, or at least it was in 2014: Topiramate-Associated Urinary Incontinence: A Case Verified... : Clinical Neuropharmacology.
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Bipolar I w/psychotic features
Last inpatient stay in 2018

Lybalvi 10 mg
Naltrexone 75 mg


Gabapentin 1500 mg+Vitamin B-complex (against extrapyramidal side effects)

Long-term side effects from medications, some of them discontinued:
- Hypothyroidism
- Obesity BMI ~ 38
  #3  
Old Dec 14, 2023, 02:41 AM
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Quote:
Originally Posted by Tart Cherry Jam View Post
I had multiple issues each time I tried taking Topamax, even at tiny dosages, but I did not have stress incontinence on it.

Apparently it is a rarely reported side effect, or at least it was in 2014: Topiramate-Associated Urinary Incontinence: A Case Verified... : Clinical Neuropharmacology.
Sorry to hear that. What issue did it cause you to have? I have an issue with acid reflux which makes me cough which causes the leakage issue too. So it’s not just the Topamax doing this.

However I don’t recall having this issue on Cymbalta which was only a few months ago. Weird.
  #4  
Old Dec 14, 2023, 05:22 PM
Tart Cherry Jam Tart Cherry Jam is offline
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I had depression, difficulty with word recall, dizziness, and general malaise.
__________________
Bipolar I w/psychotic features
Last inpatient stay in 2018

Lybalvi 10 mg
Naltrexone 75 mg


Gabapentin 1500 mg+Vitamin B-complex (against extrapyramidal side effects)

Long-term side effects from medications, some of them discontinued:
- Hypothyroidism
- Obesity BMI ~ 38
  #5  
Old Dec 15, 2023, 05:04 PM
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Sorry to hear that.
Thanks for this!
Tart Cherry Jam
  #6  
Old Dec 30, 2023, 12:20 AM
Tart Cherry Jam Tart Cherry Jam is offline
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I have had to restart it to control hunger. I have only taken two smallest doses (25 mg tabs) and I have already had one episode of forgetting a word. As is typical of such memory lapses, the word suddenly came back to me several hours later when I was not looking for it but rather was simply eating dinner.

But I have to control hunger so I am afraid that I will need to live with occasional word retrieval problems. Luckily I know a lot of synonyms, so there are workarounds...
__________________
Bipolar I w/psychotic features
Last inpatient stay in 2018

Lybalvi 10 mg
Naltrexone 75 mg


Gabapentin 1500 mg+Vitamin B-complex (against extrapyramidal side effects)

Long-term side effects from medications, some of them discontinued:
- Hypothyroidism
- Obesity BMI ~ 38
  #7  
Old Dec 31, 2023, 07:09 AM
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I've had no issue with it other than it adding restricting to my eating disorder and helping me become even more underweight. I had a friend say it screwed with her eyes pretty badly.
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  #8  
Old Dec 31, 2023, 10:09 AM
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Sorry for the tmi. But I've crapped my pants twice in my sleep this year and I never really thought it could be the topamax or something else I was dealing with.
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  #9  
Old Dec 31, 2023, 10:17 AM
Tart Cherry Jam Tart Cherry Jam is offline
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Originally Posted by Mountaindewed View Post
Sorry for the tmi. But I've crapped my pants twice in my sleep this year and I never really thought it could be the topamax or something else I was dealing with.
You are on a bunch of meds. Could be something else.
__________________
Bipolar I w/psychotic features
Last inpatient stay in 2018

Lybalvi 10 mg
Naltrexone 75 mg


Gabapentin 1500 mg+Vitamin B-complex (against extrapyramidal side effects)

Long-term side effects from medications, some of them discontinued:
- Hypothyroidism
- Obesity BMI ~ 38
  #10  
Old Dec 31, 2023, 10:22 AM
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I just googled it because I've been so stressed and anxious in general recently and it says Topamax can cause all that. I was in a good mood this morning before I took my AM dose. Now I'm all down and depressrd. I'm thinking of asking my pdoc to take me off it when I see him on the 8th.
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  #11  
Old Dec 31, 2023, 11:55 AM
Tart Cherry Jam Tart Cherry Jam is offline
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Why have you been put on it in the first place? it is an odd decision to put someone suffering from an eating disorder on topamax.
__________________
Bipolar I w/psychotic features
Last inpatient stay in 2018

Lybalvi 10 mg
Naltrexone 75 mg


Gabapentin 1500 mg+Vitamin B-complex (against extrapyramidal side effects)

Long-term side effects from medications, some of them discontinued:
- Hypothyroidism
- Obesity BMI ~ 38
  #12  
Old Jan 02, 2024, 04:56 AM
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Quote:
Originally Posted by Tart Cherry Jam View Post
Why have you been put on it in the first place? it is an odd decision to put someone suffering from an eating disorder on topamax.
Pretty sure you were asking MD, but I was put on it in a last ditch attempt at halving my IQ so I'd turn from an annoying smartass to a harmless dumbass. I'm not on it anymore.
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  #13  
Old Jan 02, 2024, 07:52 AM
Tart Cherry Jam Tart Cherry Jam is offline
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Yes, I was asking MD.
__________________
Bipolar I w/psychotic features
Last inpatient stay in 2018

Lybalvi 10 mg
Naltrexone 75 mg


Gabapentin 1500 mg+Vitamin B-complex (against extrapyramidal side effects)

Long-term side effects from medications, some of them discontinued:
- Hypothyroidism
- Obesity BMI ~ 38
  #14  
Old Jan 02, 2024, 03:19 PM
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jesyka jesyka is offline
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Quote:
Originally Posted by Tart Cherry Jam View Post
I have had to restart it to control hunger. I have only taken two smallest doses (25 mg tabs) and I have already had one episode of forgetting a word. As is typical of such memory lapses, the word suddenly came back to me several hours later when I was not looking for it but rather was simply eating dinner.

But I have to control hunger so I am afraid that I will need to live with occasional word retrieval problems. Luckily I know a lot of synonyms, so there are workarounds...
Sorry to hear that. I recently stopped taking it since I didn’t feel a difference in how it made me feel.

I’m OK without it. i’m taking vitamins now & will look into trying natural herbal pills instead.
  #15  
Old Jan 02, 2024, 03:19 PM
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Quote:
Originally Posted by MuddyBoots View Post
I've had no issue with it other than it adding restricting to my eating disorder and helping me become even more underweight. I had a friend say it screwed with her eyes pretty badly.
Omg, these side effects are scary!
  #16  
Old Jan 02, 2024, 03:21 PM
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Quote:
Originally Posted by Mountaindewed View Post
Sorry for the tmi. But I've crapped my pants twice in my sleep this year and I never really thought it could be the topamax or something else I was dealing with.
Sorry to hear that. Try pearl probiotics. It might help balance your gut bacteria. It’s small & easy to swallow. You can find it on Amazon or Sprouts market.
  #17  
Old Jan 02, 2024, 03:21 PM
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jesyka jesyka is offline
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Quote:
Originally Posted by Mountaindewed View Post
I just googled it because I've been so stressed and anxious in general recently and it says Topamax can cause all that. I was in a good mood this morning before I took my AM dose. Now I'm all down and depressrd. I'm thinking of asking my pdoc to take me off it when I see him on the 8th.
Stop talking it then.
  #18  
Old Jan 02, 2024, 03:34 PM
Tart Cherry Jam Tart Cherry Jam is offline
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Originally Posted by jesyka View Post
Sorry to hear that. I recently stopped taking it since I didn’t feel a difference in how it made me feel.

I’m OK without it. i’m taking vitamins now & will look into trying natural herbal pills instead.
What were you taking Topamax for? It is prescribed for a wide variety of needs by doctors of different specialties.
__________________
Bipolar I w/psychotic features
Last inpatient stay in 2018

Lybalvi 10 mg
Naltrexone 75 mg


Gabapentin 1500 mg+Vitamin B-complex (against extrapyramidal side effects)

Long-term side effects from medications, some of them discontinued:
- Hypothyroidism
- Obesity BMI ~ 38
  #19  
Old Jan 03, 2024, 02:23 AM
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Originally Posted by Tart Cherry Jam View Post
What were you taking Topamax for? It is prescribed for a wide variety of needs by doctors of different specialties.
Depression & anxiety. My psychiatrist is stubborn & she’ll insist on increasing the dosage first before starting me on anything new Nothing works, so I give up. She’s a free psychiatrist. I only get prescription ls from her.
  #20  
Old Jan 03, 2024, 12:53 PM
Tart Cherry Jam Tart Cherry Jam is offline
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There is low evidence tif any hat Topamax helps with bipolar and yet it keeps getting prescribed. I do not know about depression and anxiety but certainly not the first line of defense. Is the psychiatrist though County mental health?
__________________
Bipolar I w/psychotic features
Last inpatient stay in 2018

Lybalvi 10 mg
Naltrexone 75 mg


Gabapentin 1500 mg+Vitamin B-complex (against extrapyramidal side effects)

Long-term side effects from medications, some of them discontinued:
- Hypothyroidism
- Obesity BMI ~ 38
Thanks for this!
unaluna
  #21  
Old Jan 03, 2024, 02:48 PM
Tart Cherry Jam Tart Cherry Jam is offline
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Quote:
Originally Posted by jesyka View Post
Depression & anxiety. My psychiatrist is stubborn & she’ll insist on increasing the dosage first before starting me on anything new Nothing works, so I give up. She’s a free psychiatrist. I only get prescription ls from her.
The pdoc might be increasing the dose to find a therapeutic dose and not out of stubbornness. Just a thought.
__________________
Bipolar I w/psychotic features
Last inpatient stay in 2018

Lybalvi 10 mg
Naltrexone 75 mg


Gabapentin 1500 mg+Vitamin B-complex (against extrapyramidal side effects)

Long-term side effects from medications, some of them discontinued:
- Hypothyroidism
- Obesity BMI ~ 38
Thanks for this!
unaluna
  #22  
Old Jan 03, 2024, 04:00 PM
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Discombobulated Discombobulated is offline
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I haven’t taken topamax but it was one of the drugs they considered for my migraines, I’ve since read about the link to cognitive dysfunction and even possibly dementia. I would refuse this drug with this knowledge and urge anyone on it to carefully research the long term effects.

It scares me what irreversible long term effects many medications can have.
  #23  
Old Jan 03, 2024, 04:43 PM
Tart Cherry Jam Tart Cherry Jam is offline
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Every time I start and then stop Topiramate, word finding difficulty immediately disappears upon stopping. The dementia associated with Topiramate appears to be reversible, too.
Reversible Dementia Secondary to Topiramate : Clinical Neuropharmacology.
__________________
Bipolar I w/psychotic features
Last inpatient stay in 2018

Lybalvi 10 mg
Naltrexone 75 mg


Gabapentin 1500 mg+Vitamin B-complex (against extrapyramidal side effects)

Long-term side effects from medications, some of them discontinued:
- Hypothyroidism
- Obesity BMI ~ 38
Thanks for this!
Discombobulated
  #24  
Old Jan 03, 2024, 04:43 PM
Tart Cherry Jam Tart Cherry Jam is offline
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Member Since: Mar 2021
Location: California
Posts: 3,389
Every time I start and then stop Topiramate, word finding difficulty immediately disappears upon stopping. The dementia associated with Topiramate appears to be reversible, too.
Reversible Dementia Secondary to Topiramate : Clinical Neuropharmacology.
__________________
Bipolar I w/psychotic features
Last inpatient stay in 2018

Lybalvi 10 mg
Naltrexone 75 mg


Gabapentin 1500 mg+Vitamin B-complex (against extrapyramidal side effects)

Long-term side effects from medications, some of them discontinued:
- Hypothyroidism
- Obesity BMI ~ 38
  #25  
Old Jan 03, 2024, 11:32 PM
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jesyka jesyka is offline
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Quote:
Originally Posted by Tart Cherry Jam View Post
The pdoc might be increasing the dose to find a therapeutic dose and not out of stubbornness. Just a thought.
Idk, maybe. She doesn’t seem to really know what she’s doing at times tbh.
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