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  #51  
Old Dec 31, 2010, 06:58 PM
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Quote:
Originally Posted by hayward View Post
Ok, I have read a lot of the great insight and wonderful information that has been both posted and linked here. My head is spinning, and really the bottom line for me now is this:

Should I see a psychiatrist or not?
Do I take meds or not?
Hayward, this may seem like a cop out answer, but only you can decide what is right for you.
Thanks for this!
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  #52  
Old Dec 31, 2010, 07:11 PM
hayward hayward is offline
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Originally Posted by lizardlady View Post
Hayward, this may seem like a cop out answer, but only you can decide what is right for you.
Hi LL-
No, it doesn't seem like a cop out answer at all, and I know that you are right. I am just frustrated, and I was actually sort of trying to be funny...

I know I know... My husband always tells me that I should warn people ahead of time if I am trying to be funny, just so they will know.
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  #53  
Old Dec 31, 2010, 11:42 PM
Dark_Dreams Dark_Dreams is offline
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Hayward, as lizardlady said, only you can make that decision. I think in a lot of cases meds are seen as a quick fix without a full treatment plan. Medication, for the most part, is useless without the added support of therapyu, behavioral modification and the likes. Medication only helps with symptoms but never take away the cause.
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  #54  
Old Jan 01, 2011, 12:08 AM
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I've run into anti-psych people before
it really makes me mad

...and that's all I'm gonna say on this subject.
  #55  
Old Jan 01, 2011, 12:52 AM
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I'm not so sure that most people even know what what "Anti-psychiatry people" are Kaika.

What does seem important is that someone said they're bad so, without bothering to investigate or research, people go along with the pack -- mob psychology, mass psychosis.

That doesn't make me mad. It does, sometimes, create a feeling of deep sadness within me. And sometimes, it makes me want to turn my back on humanity and walk away from the people who would say that this is okay.

Meantime, I'm trying to rummage up some support for a young man who has been kept in the hospital for five years. He's not been offered psychological treatments, he's not been able to curl up next to his partner at night, he's had to carry out the vast majority of his relationship with his young son in a locked visitor's ward, his teeth are rotting due to his treatment with Thorazine and no one is addressing that, he can't control his bladder due to the medications, and the doctors won't let him out of the hospital because they say he just doesn't seem to have any ... motivation to live ... he's not getting any better and they say this is evidence that he is very, very sick.

His partner made a video about him. Before you watch it, I have to warn you, she's an anti-psychiatrist:


Would you be willing to sign his petition even though the psychiatrists who are treating him say they know what is best for him? Would you still be willing to do the same if that meant someone might call you an "anti-psychiatrist" too?

If your answer is yes, you can sign his petition here: http://www.gopetition.com/petitions/free-john.html

While you're at it, you can take a look at this mother's plea. She's on a hunger strike, trying to get help for her son: http://www.mindfreedom.org/as/act/us...edium=facebook

Meantime... I'll have to reflect on your words and wonder if maybe you're right. Maybe, the people who say that the field of psychiatry isn't always right... maybe they're wrong.

[Those who might wish to know more about John can try here: http://www.politics.ie/health-social...ping-john.html ]


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Last edited by spiritual_emergency; Jan 01, 2011 at 01:08 AM.
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  #56  
Old Jan 01, 2011, 07:22 AM
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there are brain chemistry disorders, and there are chemicals which affect brain chemistry, and no one knows which will do what, until it's tried. doc's have all be thru medical school, which is essentially a brain washing cult, and they can only see out of one eye,, the Medical Model. if you want to be part of that,,, roll the dice~~~ best wishes,, Gus
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  #57  
Old Jan 01, 2011, 08:18 AM
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elliemay elliemay is offline
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Originally Posted by Gus1234U View Post
there are brain chemistry disorders, and there are chemicals which affect brain chemistry, and no one knows which will do what, until it's tried. doc's have all be thru medical school, which is essentially a brain washing cult, and they can only see out of one eye,, the Medical Model. if you want to be part of that,,, roll the dice~~~ best wishes,, Gus
I'm beginning to think that Einstein was correct: "You can't solve a problem with the same mind that created it".

Of course physicians come out of medical school employing the medical model and "evidence based medicine". It's what they were trained to do.
Clearly the mind, and the so-called disorders of it are a complex system of problems that medicine does not deal very well with. Medical research, with its over-reliance on statistical probabilties doesn't either. We simply do not have the mathematical or systems-based tools to apply what is essentially chaos theory to the system of the mind.

It also doesn't help that with almost any clinical trial of a new psychiatric medicine, that a 30% placebo effect almost invariably shows up.

Personally, I find the medications for bipolar disorder to be especially, well, just bad. Yet, I do think that some people are significantly helped with medication available.

However, in my opinion, all is not lost. One thing that has clearly surfaced in the just the last decade is an increasing awareness of mental health and an influx of monies, both from gov't and private sources, earmarked to understand it better. Genome wide studies are looking promising, but again, we do not have the mathematical tools to understand the complex interaction between multiple genes, each potentially contributing a small effect to the whole.

In reality, psychiatry is still in its infancy, and in a real way, we are its guinea pigs.
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  #58  
Old Jan 01, 2011, 08:31 AM
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I think the placebo effect is well worth investing. You can get drunk on placebo. You can get better on placebe (it works for pain killers as well). Imagine... you could get better... on your own. Current psychiatry makes this thought impossible ("it's not in your head" = you cannot get better on your own, you damaged goods). We need to get back into giving people the power over their lifes.
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  #59  
Old Jan 01, 2011, 08:43 AM
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elliemay elliemay is offline
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Originally Posted by VenusHalley View Post
I think the placebo effect is well worth investing. You can get drunk on placebo. You can get better on placebe (it works for pain killers as well). Imagine... you could get better... on your own. Current psychiatry makes this thought impossible ("it's not in your head" = you cannot get better on your own, you damaged goods). We need to get back into giving people the power over their lifes.
In principle, I would agree with you, however, imbedded in that placebo effect, I suspect that there are people that actually respond to the drug in the experimental group. Further, the placebo effect is sometimes transient, yet, at present, there aren't the monies to continue the trials long enough to determine long term benefit that may be due to the drug.

Now clearly, there are concrete things that people can do to improve themselves (lifestyle changes etc...) but I would not be so quick to throw the baby out with the bathwater so to speak.
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  #60  
Old Jan 01, 2011, 08:51 AM
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Originally Posted by elliemay View Post
In principle, I would agree with you, however, imbedded in that placebo effect, I suspect that there are people that actually respond to the drug in the experimental group. Further, the placebo effect is sometimes transient, yet, at present, there aren't the monies to continue the trials long enough to determine long term benefit that may be due to the drug.

Now clearly, there are concrete things that people can do to improve themselves (lifestyle changes etc...) but I would not be so quick to throw the baby out with the bathwater so to speak.
some would still need traditional medicine... but many could be helped with killing (literally... damaged thyroid or diabetus is no joke) side effects of the drugs. But willpower does not create cash flow.
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  #61  
Old Jan 01, 2011, 08:54 AM
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Originally Posted by VenusHalley View Post
I think the placebo effect is well worth investing.
Now let's see -- do a double-blind study, with one medication the placebo, and the other -- another placebo?
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  #62  
Old Jan 01, 2011, 09:06 AM
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I know you are joking, but I consider psychiatry soft science... and these are *female dog* to measure. Especially when results of the treatment are often self-reported.
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  #63  
Old Jan 01, 2011, 09:14 AM
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Originally Posted by MentalIllnessPolicy View Post
There is a desperate need for an organization that focuses on serious mental illness only....

Likewise the Treatment Advocacy Center focuses only on assisted treatment and discrimination in Medicaid law.
There is an agenda here: that only the mental illnesses that you have defined as "serious" are worth paying attention (or money) to. Notice how you characterize others in demeaning terms...

And, characterizing the mission of the TAC as "assisted treatment" I think is a bit disingenuous too: some see it as "forced treatment". If you will not address respectfully the fears of those who see it that way, then suspicion of you will continue.
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Last edited by pachyderm; Jan 01, 2011 at 10:48 AM.
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  #64  
Old Jan 01, 2011, 12:42 PM
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Originally Posted by PAYNE1 View Post
I hope I'm not getting off the subject too much, but haven't we now gotten to the point where most folks are being told that at least, as someone suggested, the "real" mental illnesses such as schizophrenia and bipolar disorder, ARE biologically based? For example, that bipolar disorder is just like diabetes......

Psychiatrists no longer even bother, it seems, to "talk" to patients. They are medical doctors who dole out medications that somehow treat the disorder. Even the drug companies admit that they don't know how the drugs work. I suppose that ignorance is true of other kinds of drugs, too, but it does bother me.

The questions are: Does something in the person's life trigger the brain changes? Are the brain changes themselves the cause of the "abnormal" behavior? Or is it a combination of both?

I am "labeled" (shades of Szasz?) as having bipolar II disorder. However, I found it interesting that one psychiatrist told me that I would always be prone to depression because of an abusive childhood.

I am looking forward to the day when the professional who does the therapy with the patient is also the professional who dispenses the drugs. I still think it's a strange dichotomy, perhaps ironically.
Payne, among the "schizophrenics" I've spoken with there has nearly always been a triggering event that precedes the collapse / fragmentation of their ego (one's sense of self-identity). Sometimes this may be recognized by those around them as a significant cause of stress or trauma whereas other times, it might not be. Whatever those events are however, they will be of great significance to the individual in crisis.

Out of respect for the many personal accounts I've heard -- accounts that did include physical or sexual abuse in childhood or adulthood -- I have to say that yes, I believe these life experiences play a role in psychotic episodes. For some reason, we accept that childhood abuse can cause severe disorders of the psyche such as "splitting" into multiple personalities or dissociated states but we are supposed to accept that schizophrenia/bipolar disorder can only be caused by one thing: an underlying biological factor that can be explained neurologically or genetically.

My belief that other factors can play a significant role is part of what places me in the "anti-psychiatry" camp however I'm not alone in my belief. Other psychiatrists who are also "anti-psychiatrists" (according to some), also believe the same...

Quote:

The fact that some two-thirds of people diagnosed as schizophrenic have suffered physical or sexual abuse is shown to be a major, if not the major, cause of the illness. Proving the connection between the symptoms of post-traumatic stress disorder and schizophrenia, Read shows that many schizophrenic symptoms are directly caused by trauma.

The cornerstone of Read's tectonic plate-shifting evidence is the 40 studies that reveal childhood or adulthood sexual or physical abuse in the history of the majority of psychiatric patients (see, also, Read's book, Models of Madness). A review of 13 studies of schizophrenics found rates varying from 51% at the lowest to 97% at the highest.

Source: http://www.guardian.co.uk/society/2005/oct/22/health.socialcare

That is not to suggest that all individuals who have experienced psychosis/schizophrenia came from abusive backgrounds. I've spoken with many people who also had loving parents. Meantime, other examples of stressors that have played a role in ego collapse / fragmentation include:

- The loss of a significant relationship.
- Failure to meet a self-imposed standard or goal.
- Discovering that a significant relationship was not as you had believed, i.e., your father is not your biological father; your wife has not been faithful to you.
- A significant loss of personal status, i.e., being fired from a job, being humiliated in a public context.

Additional actions that are associated with the onset of psychosis include sleep deprivation, drug use, trauma, spiritual practices such as meditation or contemplation, food sensitivities, Lyme disease, brain tumors, etc.

For years it has been believed that there are biological, psychological and sociological factors that contribute to mental distress. This made up the frame of the bio-psycho-social model but over the past few decades, that model has become the bio-bio-bio model and anyone who suggests otherwise is -- you guessed it -- an "Anti-Psychiatrist."


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  #65  
Old Jan 01, 2011, 01:51 PM
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Psychiatry is arguably the least science-based of the medical specialties. Because of that, it comes in for a lot of criticism. Much of the criticism is justified, but some critics make the mistake of dismissing even the possibility that psychiatry could be scientific. They throw the baby out with the bathwater. I agree that psychiatry has a lot of very dirty bathwater, but there is also a very healthy baby in there that should be kept, cherished, nourished, and helped to grow – scientifically. http://www.sciencebasedmedicine.org/?p=353
Hello, spiritual_emergency. Your contribution to this thread has been useful to me as a means of better understanding the issues. It is very disconcerting to me to read about what I perceive to be turf wars and exaltation of form (style) over substance.

Nonetheless, there are opposing viewpoints. This series of articles presents one:

http://theness.com/neurologicablog/?p=168
http://theness.com/neurologicablog/?p=169
http://theness.com/neurologicablog/?p=170
http://theness.com/neurologicablog/?p=171
http://theness.com/neurologicablog/?p=172

In my ideal world, the pros and antis would sit down and agree upon methods to resolve their differences. We all would benefit if these antagonists were more a part of the solution than the problem.
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  #66  
Old Jan 01, 2011, 01:56 PM
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I don't really think that in my case you can even be speaking of rehabilitation; my symptoms started so early that I seroiusly doubt that I would have ever been able to hold down the type of job I do now or have stayed in a relationship as long as I have been able to if it had not been for combine medications and therapy.

I have a friend who has severe asthma, and one of the things that is happening to him as the result of his medcations is that he is developing a very bad form of glaucoma and is in effect going blind. I more or less see myself in the same postion as he is in. It wasn't so much a question of quick answers and how do we pad the pocket of one of my father's fellow practitioners. It was how do we keep this kid alive long enough to find out what is happening? then it was how do we keep her alive long enough to get some weight on the bones? Until the therapy starts to take? Until the baby gets weaned? Then it was OH MY GOD YOU MEAN SHE WAS BIPOLAR????

You see, I was, and to an extent still am, on a minimum of what was considered desirable by practitioners in the field when it came to antidepressants, and later, stabilisers and/or antipsychotics; first, because of hereditary thyroid problems and kidney problems, (which, by the way, yes, if you use any pain killers, you HAVE to watch out for) and later, because I am willing to live with a certain amount of anxiety and/or instability because I know what it is. The problem was, the therapy was not working, and I was being blamed.

Right now, with all due respect, I readily understand why people might not want to go through all the medications that are marketed to handle schizophrenia (by the way, the study that you keep citing of healthy people who were diagnosed and institutionalized as schizophrenic was just that, a "study" done decades ago by journalistic students who arrived at the hospitals with, I believed, phony reocrds showing that they had histories of schizophrenia). These are heavy, nasty ammunition and unless the disease is worse (and mine is, ask my family, if you don't believe me) I would not recommend taking them.

But the language of the debate is so close to another aspect of both my "recovery" (of what to what?) and my life in general that I find that more than the actual subject matter rather triggering. it comes far too close to the times when I have had people walk up to me in church or in a prayer group and say I have no faith, that am a drug addict because I take medications. As a college student i was stupid enough to fall for that. See? It's all WILL POWER!

As I've mentiond before, neither the meds alone or the therapy alone have been able to get me where I am. I need the meds to stabilize, I need the therapy to 1. Keep my stress and symptoms managed and 2) help me manage my issues to keep my med use down. But I feel the warning bells going off with certain black/white tendancies that I see and hear going on in the discussion.

Lord knows, where there is money, greed and lies will follow, where there is power, blood will flow. This is true whether we are talking about big pharma or insurance, military complex or organic fertilizer. Critical thinking is OK, but perhaps it is a bit much tio say that everyone who studied traditional medicine is completely hoodwinked by all this? This is one last post before I follow quietly; sometimes I say what I should not. HUGGGS all, and Happy New Year.
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  #67  
Old Jan 01, 2011, 02:33 PM
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Originally Posted by spiritual_emergency View Post
For years it has been believed that there are biological, psychological and sociological factors that contribute to mental distress. This made up the frame of the bio-psycho-social model but over the past few decades, that model has become the bio-bio-bio model and anyone who suggests otherwise is -- you guessed it -- an "Anti-Psychiatrist."
I posted this link at least once before:

http://pn.psychiatryonline.org/conte...c-542d5b198362

in which the then-president of the American Psychiatric Association used that phrase lamenting about the bio-psycho-social model becoming the bio-bio-bio model. So the psychiatric community is itself not monolithic, and one can find some discussion within it of alternatives.
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When all have given him o'er
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Thou might'st him yet recover
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  #68  
Old Jan 01, 2011, 02:59 PM
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I find these conversations distressing too, lonegael. Part of what distresses me is that, for example, in a number of conversations I've had with people over the past several months I have posted some links to a series of studies demonstrating the high rate of mortality among schizophrenics. Studies strongly suggest that this mortality rate is associated with anti-psychotic drug use. I've yet to have anyone respond with so much as, "Gee, that's a shame." People say nothing. Nothing.

I am not sure what to make of their complete lack of response. It feels like people don't care. It feels like no one gives a damn. Meantime, I've been working for months trying to drum up some support for John Hunt and it's like pulling teeth trying to get signatures. People don't care. I'm afraid that John will die in that hospital and everyone who's read about his plight knew that could happen but to actually make the effort of signing a petition? Apparently, that's too much effort to make on behalf of another human being.

I find it very discouraging. It does cause me to lose faith in the goodness of humanity. It does feel like no one cares if those people die because they didn't consider them worthy of living to start with.

Meantime...

lonegael: by the way, the study that you keep citing of healthy people who were diagnosed and institutionalized as schizophrenic was just that, a "study" done decades ago by journalistic students who arrived at the hospitals with, I believed, phony reocrds showing that they had histories of schizophrenia).

Just for the point of clarification -- they didn't have phony records. They arrived in the ER and reported hearing one of three words. That was enough to get them admitted. Once admitted, they reported they were no longer hearing anything and otherwise, reverted to their everyday behavior. In spite of this, once admitted, even their routine daily actions were interpreted as symptoms of mental illness and all of them were diagnosed as having a form of severe mental illness.

lonegael: As I've mentiond before, neither the meds alone or the therapy alone have been able to get me where I am. I need the meds to stabilize, I need the therapy to 1. Keep my stress and symptoms managed and 2) help me manage my issues to keep my med use down. But I feel the warning bells going off with certain black/white tendancies that I see and hear going on in the discussion.

I think you're right. People do get triggered whenever we talk about people who have made recoveries. I suspect this is because of their own internal dialogue and voices in the past, exactly as you describe. Many of the people I've met who make use of medications, deep down, feel like it does demonstrate some sort of deficiency within them. I can say to them, "There is no shame in using a tool you identify as helpful," but unless they fully believe that within themselves, they don't hear me. Instead, they hear that internal dialogue that whispers, maybe there is something wrong with them for being who they are, for getting the life they got, for making the choices they made.

Alternatively, some people -- particularly those who are dependent upon financial support -- can become very threatened by talk of recovery because they're afraid some government official will say, "Oh, well, it's been demonstrated that some people recover so you can recover too. We'll be taking that check back, thank you very much." I can understand their concerns because it's been such a hard battle to get financial support in the first place and it is necessary to their very survival. I've been told by more than one such person, they'd like me to shut up.

This is why, I, merely by existing, merely by having an experience I didn't orchestrate anymore than you orchestrated yours, am considered threatening to people. It's not like I said, "Okay, I need someone to traumatise me to the extent that it causes my sense of self-identity to implode and fragment. Then, I'm going to put myself back together all nice and tidy-like and really show those doctors a thing or two!" That's not the way it happened.

Nonetheless, some people find it tremendously discomforting to hear what I have to say. They'd prefer that I not talk about recovery, especially not recovery without medication. It triggers feelings in them that they should have done something more, or something less, or something different. I think that's where people need to really get to an okay place within themselves and fully accept that "their own way of doing things" is fine.

In an ideal world, there might be a machine we could plug into and it would take a reading that specifically told us: Your problem is 38% biochemical, 23% psychological and 39% environmental. Therefore, you need to take precisely this much medication, seek precisely this much therapy, and make precisely these changes to your environment.

We'd probably all get a different reading because we're all different people. No matter, we don't have those kind of diagnostic tools at our disposal -- besides, we're not cars, we're human beings. We all have different experiences, different options at our disposal, different responsibilities, different goals and dreams.

Meantime, what are we to say to the people who are struggling to get better, who are trying to craft the best recovery they're capable of? That it can't happen and if it does, they should be ashamed of themselves? What are we to say to the people who have been harmed by psychiatric practices? That they should take one for the team, call it 'collateral damage' and get over it? What about the people who have suffered abuse? Do we tell them it wasn't abuse, it was just a faulty collection of neurons and chemicals in their brain? What about the mother whose child died from neuroleptic malignant syndrome? What about people like Grainne who can't get her partner the help he needs because he is locked away and has no power to get out? What about people like Cindi Fisher who can't get her son out of the hospital and may not win her plea to become his legal guardian?

The answers are not easy, they're complex. And yes, they can stir up a lot of emotion that's difficult to sit with. My own experience tells me you need to let that come up, then, you sort through the pieces and find your own answers. Self-compassion can be a good companion during this process, but so, too, is knowledge.

~ Namaste


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  #69  
Old Jan 01, 2011, 03:06 PM
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Thanks, pachyderm, for pulling out this APA address for us to see. I note that it was given in 2005. Would that the psychiatric world would listen.....I have to admit that I cringe when I even see pens, clocks, note pads, and other rather inexpensive items that docs are given by drug reps, much less think about the docs being wined and dined by these people.

I first asked early on in this thread what it meant to be "anti-psychiatrist," and I have certainly received a lot of enlightenment here. Thanks to everybody!

I still go back to the idea that drugs should be used to try to get people to the point where they are able to benefit from therapy. I can't say, then, that I perceive myself as "anti-psychiatrist," although I don't like the trend that the field has taken.

I myself have told people that "bipolar is like diabetes," even though I feel some discomfort when I say that. However, I see that it can be useful in trying to reduce the stigma that people who are mentally ill are "weak," "don't have enough faith," "are the victim of labeling," or whatever.

I will continue to take the least amount of drugs that I can and stay in psychotherapy. Meanwhile, I hope that more and more discoveries will be made about the causes of mental illness and better and better treatments will be created. And that the men and women who are psychiatrists will start listening to people such as a certain former president of the APA.

Last edited by Travelinglady; Jan 01, 2011 at 03:08 PM. Reason: typo correction
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  #70  
Old Jan 01, 2011, 03:22 PM
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the Byzantine: Hello, spiritual_emergency. Your contribution to this thread has been useful to me as a means of better understanding the issues. It is very disconcerting to me to read about what I perceive to be turf wars and exaltation of form (style) over substance.

Byzantine, I consistently promote the work of two psychiatrists -- Loren Mosher and John Weir Perry -- and one clinical psychologist, Jaakko Seikkula. I promote their work because I think they offer superior methods of treatment to the medical model. In spite of this, I still get called "anti-psychiatry". If I was promoting pumpkins, I could understand why. But I'm not. Nonetheless, those links are there. For those who are reaching for their own best recovery from psychosis/schizophrenia... they can follow up on them.

Those programs were not modeled upon the socially acceptable paradigm so you can't find them for yourself or your child. People will need to do their research and unless they're fortunate enough to live in Lapland, they'll probably have to create those programs for themselves to the best of their ability. They might be able to find some professionals who are open to working with them but they will likely have to pay for them out of pocket. Psychotherapy is not covered by most insurance programs for people who have "broken brains".

Meantime, I've heard that, in America, there is now the equivalent of an Underground Railway for people like John. It's a shame he's in Ireland.

~ Namaste



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  #71  
Old Jan 02, 2011, 12:21 PM
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Payne: I first asked early on in this thread what it meant to be "anti-psychiatrist," and I have certainly received a lot of enlightenment here.

As noted, I've been taking part in a similar conversation elsewhere and some of the comments made me wince. One of the problems was that some people were categorized as weak or stupid or supportive of Big Pharma's unethical tactics if they made use of medications. These sort of accusations hurt them because it invalidated their personal experience and efforts to move forward. The people who made those sort of comments get categorized as "Anti-Psychiatrists" although I think a more appropriate term might be "Insensitive".

The people I think of as "Anti-Psychiatrists" are the people who have the capacity to challenge our perspectives and perhaps, alter our views of what "mental illness" is and how, we, as a society should respond to it. You have to climb some ladders to get there. Thomas Szasz, R.D. Laing, Peter Breggin, David Healey... these are some examples of such people. They challenged the status quo, they shook things up, they made us look and prompted us to question what was going on. As a result, they helped to shape policy, treatment, laws.

Meantime, I have been hanging out with this...

Quote:

... If indeed, John was a misunderstood modern-day Jesus, I was not prepared for the chemical crucifixion that ensued. With hindsight John was silently preparing, which may have accounted for the terror and untrusting, shut-down fear state into which he had entered. He further retreated into himself and was most likely terrified beyond measure. It turned out he had been sectioned before and 'bled' as he put it and put through a range of humiliating brain tests. He broke down and cried and pleaded with me not to become "one of them".

Later I realised this was a reference to the bio-psychiatric medical model and it's staff who treated him as sub-human, a 'chemical imbalance'. He fought them all the way, violence being familiar territory. He was held down and injected with clopixol depot shots, known by patients as 'the needle'. He was crucified and battered with chemicals every time he reminded them of their pseudo-science. If he refused their drug-treatment, it was forced on him. Behind closed and locked doors, isolated in a forensic maximum-security 'treatment centre' with no visitors, it is no wonder that he experienced more paranoia and more terror.

I shut down. Silently and alone I wept at the injustice of it all. I wept at my powerlessness, at John's powerlessness in the face of the psychiatric machine. I railed at the heartless wall of psychiatry and society, for wanting to assimilate and crush people, rather than heal or empower them. I knew John was 'difficult' and 'defiant' and 'spirited' and 'stubborn' but it didn't warrant chemical sedation or incarceration.


I soon realised that bio-psychiatry was also suffering from 'delusions of grandeur' and it's autocratic nature did not like to be challenged. I slowly realised that society at large didn't like to tolerate the discomfort of distressed and fragile people. And psychiatry, at least the biological model, punished trauma survivors and didn't view madness as meaningful.

Their priority, as far as I could see, was to control the symptoms and behaviour rather than address the root of the problem and society, by it's very silence, colluded in this. And I painfully colluded with their fear. I was stuck between a rock and a hard place, between prejudice and discrimination. And John was at the sharp end of the needle.

... The chemical crucifixion continued and they called him 'treatment-resistant', 'unpredictable' and 'deviant'. Continuous use of largactil rotted his teeth, he turned yellow from liver damage, his hands shook, he couldn't sit still, or he shuffled and his composure was stiff from the 'chemical straitjacket'. They tried him on every drug in the 'schizophrenia' market until they moved on to the 'bipolar' market. They kept him inside, so he could only breathe in the fetid, stagnant air of the hospital. When he wasn't sleeping off the effects of their toxic medications, he paced up and down corridors, agitated and frustrated, smoking endless cigarettes, hassling and pestering staff for cups of tea and coffee and cans of coke, reminding everyone of his right to his place on this planet, in the only way he knew how, until he was injected again for talking too much or for raising his voice or for being anxious. Anyway, the drugs induce anxiety.

He was described as 'chronic'. If he slept too much or withdrew, he was called 'un-cooperative'. He was punished for having his own opinions. He talked transparent nonsense, gleaned from TV shows and newspapers in a futile effort to keep them on their toes. He has become a tragic figure with no shoelaces, a broken spirit, sleeping in his clothes, until they become rags, for weeks on end and stinking of hopelessness.

And after four long years of this soul-destroying 'treatment', they wonder why he isn't 'improving'. And through all of this he forgives, in his chemical-induced haze, them all. He bears no grudge to psychiatry and has now accepted the medical framework. The multi-layers of drugs have made him somewhat stupid and passive. This wild colt has been broken in; it took two years to break his spirit and a further two to institutionalise him. He is now maintained and contained; a shadow of the passionate, intelligent and mixed-up young man I once met. It is the single most heart-breaking thing I have ever witnessed.


Source: The Campaign to Free John


I was not a very good schizophrenic and I'm not a very good Anti-Psychiatrist either because I can't get people to look and I can't change society's perspective.

There is no pill that exists that takes that kind of pain away and the fact that I can feel John's pain and Grainne's pain and the pain of so many others like them, this is what tells me I am well, that I am human. I am not so sure, at times, about everyone else.


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sunflower55
  #72  
Old Jan 02, 2011, 01:03 PM
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John's story does terrify me. The last time I was hospitalized, I did NOT have good experiences with the pdocs there. One tried to insist, for example, that I go back on a low dose of a drug (Lamictal) that I had been taken off of for bad side effects. For one thing, I was hardly able to move! He said "then they would watch me to see what would happen." "How long will that take?" I asked. "I don't know," he responded. I had been on the drug for 9 years, the last 3 years at the highest therapeutic dosage!

They kept trying to push the drug on me. Even one morning the "medicine dispenser" just gave me my drugs as a handful. I noted that THE drug was in there and I took it out. "Oh, I forgot," he said. Right! I'm just glad it isn't available as a shot. At least the nurses were willing to tell me in personal conversations that I had the choice to refuse. One even was willing to agree with me that the pdoc was wrong!

Several of us patients believed that one patient was being overmedicated. Talk about the proverbial zombie! But what could we have done?

I have never been psychotic. I am Bipolar II. But what if I had been "officially" labeled as psychotic?! We have all seen the movies that show the patients in mental hospitals moving around like zombies.

That said, even as a person with Bipolar, I have been zombified at times on drugs. At one point I kept getting lost when trying to drive around, for example. I got lost one time on the way to a pdoc's office, after I had been there a good many times. He put me in the hospital to adjust my drugs. Later on I got lost on the way to another pdoc's office. He just charged me for missing my appointment. Several years ago, the pdoc I was seeing said I "was overmedicated." Well, whose fault was that? My memory is limited, and I now function at a fairly low level. I am now on disability. I have a Ph.D. in psychology, of all things, and was a college/university professor (with tenure) for years. Yes, I am angry! I even have trouble following threads sometimes.

I am on a fairly low level of meds right now, after being taken off almost everything. One drug I'm on is Tegretol. I do think it is negatively affecting my mental capacity.....But, what can I do?

Well, thanks for letting me vent. I guess I tell my story in part to point out that there are cases of less damage being done, but it still greatly impacts people's lives.

What IS the answer? Big Pharma is not motivated to come up with new drugs for Bipolar II. They just push the anti-psychotics and anti-epileptics used for other disorders. At what peril?

I do think people ought to be complaining and campaigning for mental patients. We are still being shafted, some more than others.
Thanks for this!
FooZe, lonegael, sunflower55
  #73  
Old Jan 02, 2011, 01:24 PM
TheByzantine
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The task of persuasion is made more difficult by the implication those who disagree are less than human.
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lonegael, sunflower55
  #74  
Old Jan 02, 2011, 01:47 PM
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Byzantine. I don't need your chastisement. If I lack faith in the goodness of humanity, it's because I lack faith in the goodness of humanity.

I've spent months trying to help John and trying to convince people to invest 17 seconds of their precious time trying to help another human being. They're not going to take that time. And my fear, that he will die in that place, while people stand by and do nothing, is a valid one.

No, Byzantine. I don't have to feel good about humanity right now. My faith is spent.


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  #75  
Old Jan 02, 2011, 02:54 PM
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Sometimes it's best just to agree to disagree........
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attentionThis is an old thread. You probably should not post your reply to it, as the original poster is unlikely to see it.




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