FAQ/Help |
Calendar |
Search |
Writing my way through...
Member Since Feb 2020
Location: In the desert
Posts: 7,239
(SuperPoster!)
4 5,775 hugs
given |
#801
I'm so glad to hear you haven't needed the pain meds for 3 days and hope you do get to see L in person!
|
ScarletPimpernel
|
LonesomeTonight, ScarletPimpernel
|
Writing my way through...
Member Since Feb 2020
Location: In the desert
Posts: 7,239
(SuperPoster!)
4 5,775 hugs
given |
#802
We found out yesterday that H qualifies for the NAFLD (non alcoholic fatty liver disease) study; that means he's either a stage 2 (NASH) or 3 (Fibrosis). I'm praying he's stage 2 and not 3, needless to say. His first study appointment is Tuesday morning, thankfully I'm already off work (I had already taken Tuesday and Wednesday off to have a 5-day weekend over thanksgiving, gotta use up my purchased PTO before the end of the year). Beyond hoping he's only stage 2, of course I'm also hoping he's among the 2 out of 3 participants that get the drug they're trialing. I forgot the name of it, but it's not technically new, it's being used for diabetes already, they're trialing it for treating NAFLD.
|
Lemoncake, LonesomeTonight, Polibeth, ScarletPimpernel
|
Lemoncake
|
Elder Harridan x-hankster
Member Since Jun 2011
Location: Milan/Michigan
Posts: 39,871
(SuperPoster!)
12 66.4k hugs
given |
#803
Artie! Boy if he is getting what i am on (there is a study for it for nafld), he will know! Hope he gets it. It is great stuff, so far.
|
ArtieTheSequal
|
Writing my way through...
Member Since Feb 2020
Location: In the desert
Posts: 7,239
(SuperPoster!)
4 5,775 hugs
given |
#804
Quote:
eta: it is. The drug is Cotadutide. I just googled it and it's actually in trial for diabetes too, I could have sworn they told us it was already in USE for diabetes. Huh. More questions to ask on Tuesday. |
|
unaluna
|
unaluna
|
Writing my way through...
Member Since Feb 2020
Location: In the desert
Posts: 7,239
(SuperPoster!)
4 5,775 hugs
given |
#805
h's liver dr just called (I guess he didn't realize they'd already texted h yesterday to tell him he qualified) and told us that he has stage 2 NASH aggressive form and he double-confirmed that H will be there on Tuesday. I really like this doctor, he gave us his personal cell number so we can text anytime with questions or concerns once he's started the trial medication.
|
ChickenNoodleSoup, Lemoncake, LonesomeTonight
|
Grand Poohbah
Member Since Apr 2017
Location: In a land far far away
Posts: 1,575
7 1,305 hugs
given |
#806
I hope the trial goes over well, Artie! It's scary, but at least it could be much worse.... the doctor sounds great tbh. I've never had a doctor telling me to just text them if issues come up, it's the small things that make it better.
I wish your H all the best btw. |
ArtieTheSequal, LonesomeTonight
|
Elder Harridan x-hankster
Member Since Jun 2011
Location: Milan/Michigan
Posts: 39,871
(SuperPoster!)
12 66.4k hugs
given |
#807
The Inner Thoughts of an Average House Cat - YouTube
I said this a LOT during my 15 year t with my last t. "Stupid, stupid, stupid!" One time i was sitting close to him on the kiddie chairs, i had my arms around his neck, and i got emotional and said this, and he morphed into Bart Simpson getting choked by Homer. It was hilarious, but i guess you had to be there! So i was thrilled today to find this on my feed. ETA - ARTIE - it looks similar to what im taking, ozempic. |
Lemoncake
|
Writing my way through...
Member Since Feb 2020
Location: In the desert
Posts: 7,239
(SuperPoster!)
4 5,775 hugs
given |
#808
Quote:
|
|
Writing my way through...
Member Since Feb 2020
Location: In the desert
Posts: 7,239
(SuperPoster!)
4 5,775 hugs
given |
#809
Quote:
yeah the long names do sound similar, semaglutide and cotadutide, I'm gonna ask him about that too. |
|
unaluna
|
unaluna
|
Grand Poohbah
Member Since Apr 2017
Location: In a land far far away
Posts: 1,575
7 1,305 hugs
given |
#810
Quote:
All he can do is some diet changes and all that, so if he's doing that already, that's great, the rest is just stupid genetics and life - in my opinion. |
|
ArtieTheSequal, unaluna
|
Always in This Twilight
Member Since Feb 2015
Location: US
Posts: 20,767
(SuperPoster!)
9 75k hugs
given |
#811
Quote:
I also hope it goes well, Artie! I imagine he's also getting frequent scans (MRIs or whatever they do for liver) as part of the trial, so then you'll know how he's doing.I understand that it's scary though! |
|
unaluna
|
ArtieTheSequal, unaluna
|
Always in This Twilight
Member Since Feb 2015
Location: US
Posts: 20,767
(SuperPoster!)
9 75k hugs
given |
#812
I offended Dr. T by something I said today, like a thought I had related to an insurance mixup (it's complicated, but my insurance company messed something up and is reimbursing us more than they should be--we are in contact with them). He's out of network, so I pay him his full fee directly, then I get partial reimbursement from insurance.
Something he said about it last session made me think a particular thing that I probably shouldn't even say here. I wasn't going to tell him, but it was stuck in my head, and we were talking about the topic. So I just said it. And he said. "That's very offensive." I started sobbing and said, "I'm really sorry...Do you want me to leave? I can leave." He said no, I didn't need to leave. We discussed the topic a bit more, and then he said something that really offended *me*. But I didn't say much about it. The rest of session was OK, mostly about other topics. I did start to reference the offensive comment, and he said, "It's OK, we don't have to revisit that." So I'd like to think he's moved past it. It's kind of gnawing at me though. And of course, OF COURSE this happened on a Friday. Part of me feels bad for offending him. But then another part of me feels like he let his own stuff get in the way. Yes, I know he's entitled to his feelings. But I also think there could have been value in discussing, "What would make you think that of me? What's going on here?" Like curiosity mixed in with the offense. I know I'm being really vague. If someone wants the actual details, feel free to PM. I just don't want to set myself up. |
ArtieTheSequal, Lemoncake, NP_Complete, Polibeth
|
Poohbah
Member Since Jun 2014
Location: Earth
Posts: 1,193
9 2,235 hugs
given |
#813
LT, it sounds like Dr. T is letting his own stuff get in the way. I think he does that sometimes. I'm sorry this happened on a Friday but you two have a 100% background of working things out.
|
LonesomeTonight
|
Grand Magnate
Member Since Feb 2017
Location: the upside down
Posts: 3,808
7 6,355 hugs
given |
#814
I feel too depressed to go to a team lunch today. Should probably go, but just don't want to go and fake it.
|
ArtieTheSequal, LonesomeTonight, unaluna
|
Luna's offical mini me.
Member Since May 2017
Location: Cafe Nervosa.
Posts: 9,700
(SuperPoster!)
6 10.2k hugs
given |
#815
I didn't see F in the end. It didn't feel right for me.
Did make an appointment and see an acupuncturist instead though. (My second appointment). Hoping I can work up to a smear test eventually. Had to remove my trousers. She was lovely. No comments about any of my scars. -Shame about my teeth - appointment done in october. -Shame about applying for benefits for 6 months -done but only because of F. -Hair appointment - it was free as I offered to be a hair model and replied to the stylist's instagram story. __________________ "Love, like life, flows Through the heart. Feel the thrill of the flow And say nothing." |
ArtieTheSequal, LonesomeTonight, unaluna
|
Luna's offical mini me.
Member Since May 2017
Location: Cafe Nervosa.
Posts: 9,700
(SuperPoster!)
6 10.2k hugs
given |
#816
__________________ "Love, like life, flows Through the heart. Feel the thrill of the flow And say nothing." |
LonesomeTonight
|
Luna's offical mini me.
Member Since May 2017
Location: Cafe Nervosa.
Posts: 9,700
(SuperPoster!)
6 10.2k hugs
given |
#817
Quote:
I did send you a PM. Always willing to listen, __________________ "Love, like life, flows Through the heart. Feel the thrill of the flow And say nothing." |
|
Always in This Twilight
Member Since Feb 2015
Location: US
Posts: 20,767
(SuperPoster!)
9 75k hugs
given |
#818
Quote:
Thanks, Polibeth. Yes, he does let his own stuff get in the way at times. He had seemed better with that lately (like past couple years). But then was I just not really challenging him? You're right that we've managed to work everything out before (even when I left briefly). I do feel there's healing in that in a way, that I can have conflicts, but it's ultimately OK. I missed that lesson growing up, and even a good ways into adulthood (conflict avoidance only goes so far). So I'm sure we'll work through this. It can just be exhausting, and I'm under a lot of stress from other stuff right now (which he knows), like my H recovering from surgery, so I have to do most everything in the household and related to D (like driving). How are you doing? |
|
Polibeth
|
Always in This Twilight
Member Since Feb 2015
Location: US
Posts: 20,767
(SuperPoster!)
9 75k hugs
given |
#819
|
Lemoncake
|
underdog is here
Member Since Sep 2011
Location: blank
Posts: 34,731
(SuperPoster!)
12 1 hugs
given |
#820
Art - I hope the trial helps your husband.
The primary and the oncologist mds for my person gave us their cell phones. I just kept reminding myself that it was her body and her life and she got to choose how she dealt with it. For example -she would go through all sorts of horrible chemo/radiation -but she adamantly refused a mastectomy. I remember that particular md looking at me and saying can't you talk her into it - and I was horrified the md would think I would interfere with her choices about her body. Sure we talked about it -but I was there to support her -not choose for her. __________________ Please NO @ Selfishness is not living as one wishes to live, it is asking others to live as one wishes to live. Oscar Wilde Well Behaved Women Seldom Make History - Laurel Thatcher Ulrich Pain is inevitable. Suffering is optional. Last edited by stopdog; Nov 18, 2022 at 05:41 PM.. |
ArtieTheSequal, LonesomeTonight, MobiusPsyche, Polibeth, ScarletPimpernel, unaluna
|