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Old Dec 06, 2008, 12:54 AM
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kimmydawn kimmydawn is offline
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Please pray for, or keep in your thoughts and meditations, my daughter Jessica.

Many of you know of the extreme difficulties we had through my daughter's Graves disease diagnosis while pregnant...as well as the liver and heart involvement, the race to get the thyroid out, etc. It's been crazy scary

Jess is doing really well since their getting her post surgical levels more stable...however, one thing hasn't improved and that is these weird "episodes" that began when she was 16 (about the same time that her Graves went out of control but when didn't know what it was).

Something she said a couple of months ago made me realize that it sounded like she was having seizures. We got her to the dr. and they dx'ed her with temporal lobe seizures and amnesia (she can't remember during the episode).

At the time (seven weeks ago), here PCP took a CBC and her white blood count was high. She went back for a follow-up (where she's doing great with everything but still having seizures...2-4 over a couple of days every 2-3 weeks) where the dr. drew more blood and her white blood count was very high. During this time she also had a normal EEG.

The PCP has ordered a special "blood smear" to check white kind of white blood cells, etc. Daughter pointed out that she'd just gotten over a virus and said it was probably that and dr. said it could be, but her count it awfully high to be that. We can only assume it's been pretty high for more than two months now. She called a neuro as well.

I don't know what the connection might be to the very high white blood cell count and the seizures. I don't know that the two are connected for her, but the two together definitely have both dr. and neuro jumping.

Well, the neuro called and wanted to see her the next day! That only happens in the hospital almost. Daughter said she couldn't do it that day and they made room for her on the next first available which is Monday.

Needless to say I'm very concerned. I'm concered about another auto-immune disease process (as it's not uncommon to have more than one), but also afraid acroos the board of many things.

She's been through so much, and I can't believe that she's still having to deal and more is going on.

Please remember her, as well as the doctors, right now.

Thanks and love,

KD
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  #2  
Old Dec 06, 2008, 05:48 AM
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silentandscared silentandscared is offline
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((((((((Kimmy dawn)))))))))

((((((((((Jessica))))))))))))

All in my thoughts and prayers

Praying hard for good outcomes for your daughter and here for you too lean on should you need it.
Take good care of you
Mandyxx

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  #3  
Old Dec 06, 2008, 08:11 AM
Lenny Lenny is offline
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I dearly hope and pray for the best of all possible outcomes for you and yours Kimmy....

Lenny
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Old Dec 06, 2008, 09:52 AM
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((((Hugs)))) Kimmy, I am honored to pray for specifics. Please realize though, that as you said, this is something she has been living with all these years. Yes, it may be another complication for her now. How great is it that God is allowing the doctors to now find out what has been upsetting her system all this time? God has His timing, and reasons. Sounds to me like He has her in his arms...
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Old Dec 06, 2008, 10:04 AM
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cantstopcrying cantstopcrying is offline
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((((((((((((((((((kd))))))))))))))) I will definately keep your family in my prayers.
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  #6  
Old Dec 06, 2008, 12:53 PM
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bebop bebop is offline
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kimmy I am so sorry you and your family are going thru such a rough time. my prayers are with you hon
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Old Dec 06, 2008, 11:08 PM
nowheretorun nowheretorun is offline
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praying for Jessica now and always Kimmy
  #8  
Old Dec 07, 2008, 09:50 AM
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kimmydawn kimmydawn is offline
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((((((((((((((((( everyone )))))))))))))))))))

Thank you so much for the thoughts and prayers. I stand on them right now.

Sky, I really appreciate your reminder that this has been going on all this time...unchanged...and we finally have the opportunity to find out what's going on (if they even find anything...alot of the time they don't know the source of these seizures).

Anyhow, that reminder added an immediate peaceful feeling to aid in countering the other.

I'll update here tomorrow with what the neuro says.

KD
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  #9  
Old Dec 07, 2008, 11:09 AM
Anonymous091825
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((kimmy and Jessica.))))))))))))))))))
my prayers are with you both
  #10  
Old Dec 07, 2008, 11:19 AM
SweetSunshine SweetSunshine is offline
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((((((((((((( Kimmydawn & Jessica )))))))))))))))) Keeping you both in my thoughts and prayers as you go thru this trying time. I hope they are able to figure things out as soon as possible.
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