[RainFall]

I was diagnosed with schizzoaffective disorder a few years ago.i have recieved no help or information and was told i was better off not knowing.i don't understand why i'm being so cut off and ridiculed by family and doctors.i'm so confused and hurt.i can't reason this out no matter what i do.

[Tsunamisurfer]

Welcome, RainFall.
I agree it seems very strange. What is the point in receiving a diagnosis and not being treated? Isolation and stigma are significant problems that come with diagnoses of any serious mental illness, and they need to be addressed. Fortunately there is a lot of information on Schizoaffective on this site and elsewhere on the web. Are you at least receiving appropriate medication for it? If so, is it meeting your needs as you experience them?

[RainFall]

i was on geodon and it almost killed my kidneys.anti-psychotics are too sedating but are the only effective meds.so im on none right now.tried ones for fibromyalgia and it worked til i threw it up consistently.none of my family understands and call me lazy and weak for not getting myself out of this.any argument i have with my dad is met with 'your crazy' wich i assume means nothing i say is valid.doctors believe theres something physically wrong until they read the report that i havn't even seen.is there any way i can explain it cuz my adrenal glands almost shut down and i don't have the right words anymore?

[mgran]

Hi Rainfall. I don't know what your full situation is, but I know that if you want to talk this is a very good and friendly site. As Tsunami says, I hope you're getting the medical help you need. If you have any questions about schizoaffective disorder you can ask here. I've been diagnosed with this condition.

[RainFall]

Originally Posted by mgran

Hi Rainfall. I don't know what your full situation is, but I know that if you want to talk this is a very good and friendly site. As Tsunami says, I hope you're getting the medical help you need. If you have any questions about schizoaffective disorder you can ask here. I've been diagnosed with this condition.

Do you ever have trouble communicating? i can't seem to get it right.i want to talk but my head is swimming.i can't remember the right things and repeat things i think.i don't know if this is where i ask.i don't know what to ask.my friends don't seem to think my inability to speak is that bad or important but their drunk most days.its not that i don't have a support system its that it refuses to stand upright.i think my speaking abilities have landed me unemployed.im not mean but they think im on drugs.how do you deal with this?

[mgran]

Sometimes when I'm acutely ill I struggle to communicate. I have several languages, and when I'm confused I can't figure out what language I'm supposed to be speaking, so I'll come out with a sentence that contains English, French and Irish, or whatever. The only person who seems able to translate for me when I'm like this is my son, but I suppose he grew up with it. It's horrible when it happens, and particularly if I'm out of the house. I've been known to become completely inarticulate in shopping centres and supermarkets, on the London Underground. It seems to come on most acutely when I'm in crowded spaces, but it can happen any time.

I've thought of having something printed and laminated that I can show people if I start gabbling, but there seems little point, since I'd not remember to show it to people, and anyway, to me at the time it seems that other people are the problem rather than me. I might get one printed anyway, so that if I'm picked up by the police or an ambulance etc they have some idea of where I'm coming from.

I really don't know that it's something I can cope with when I'm in the middle of it. It's very distressing, and always leaves me feeling humiliated.

[likewater]

Rainfall, you have a right to know about your disorder and be involved in your treatment. It's called informed consent.