[Alice_WonderlandCat]

Hello I’m new here. I was diagnosed with childhood schizophrenia disorganized type at age 7. I’m trying to learn to navigate the world now that I’m a young teen, and gained a little insight.

I was wondering here was also diagnosed with childhood schizophrenia or anyone for that matter. I feel really alone since all the people I met with schizophrenia are diagnosed recently as teens. Also my family doesn’t understand. But that’s beside the point. I’m sorry if any future post of mine comes disorganized. My psychiatrist said I maybe nearing a relapse.

I wish to know your experiences with mainly childhood or early onset schizophrenia. But if you were diagnosed as an adult, you can also tell your experiences. Also what you think about childhood schizophrenia.

Hi Alice I didn't start having issues until I was 21, but I wanted to say hello and welcome you to the forum.

*Willow*

[Victoria'smom]

My first voice started around 8 but wasn't dx. until my early 20's. I wasn't properly dx until last year.

[joshuas-mommy]

I do not believe that children should be prescribed anti-psychotics. I had some hallucinations as a child, but I wasn't diagnosed until my late 20s. I am sorry that you had to cope with schizophrenia at such a young age.

[Rincad]

I also expericed my psychosis from around the time of 5,7,9 on and off, each lasting months sometimes years at a time. It wasn’t until recently that my parents made go inpatient and then see a psychiatrist. I didn’t realize that I was psychosis or unusual at that age. I thought it was normal. Maybe I wouldn’t do certain things now if I had received help then. I think that not all children should be given antipsychotics, but children diagnosed with schizophrenia should be able to. Also certain mood disorders and those that it could really help them. Like severe autism.

[Erti]

What's your thoughts on Jani Schofield who was diagnosed with Child onset schizophrenia at the age of 6? She is now 15 years old.

[send.itt]

I used to get this feeling of detachment from reality very often when i was about 12.It came and went, starting with everything getting really bright for me, way brighter than it actually was.Then it just felt like i was dreaming and i couldnt concentrate on anything. I got it so often it eventually made me emotionally numb and it was really hard for me to communicate with people. It stopped after about a year, but its coming back again atm(age 16)

[Alice_WonderlandCat]

Originally Posted by Erti

What's your thoughts on Jani Schofield who was diagnosed with Child onset schizophrenia at the age of 6? She is now 15 years old.

I think she is very resilient and also her family. My own family didn’t like the diagnosis when I was diagnosed at 7 I think, but it was a relief since now proper treatment could start. I think that’s why jani’s parents looked for a correct diagnosis. I hate how people say it’s the parents fault, since that is anti wellness and is very ignorant and 1950s thinking. I’m glad she is doing better nowadays. Our symptoms are very different in terms of types. So I can not relate to certain things. But when you are young and experience schizophrenia you don’t know any different. I do hear voices and experience seeing things. But not like how she sees things. I think the full blown visual girl and animals are very interesting. She doesn’t have the typical symptoms. Like the disorganized speech and thought, typical of cos. But I don’t live with her so i don’t know all of it. But she is a very interesting person, and I’m glad she copes well with her illness.

[Erti]

Originally Posted by Alice_WonderlandCat

I think she is very resilient and also her family. My own family didn’t like the diagnosis when I was diagnosed at 7 I think, but it was a relief since now proper treatment could start. I think that’s why jani’s parents looked for a correct diagnosis. I hate how people say it’s the parents fault, since that is anti wellness and is very ignorant and 1950s thinking. I’m glad she is doing better nowadays. Our symptoms are very different in terms of types. So I can not relate to certain things. But when you are young and experience schizophrenia you don’t know any different. I do hear voices and experience seeing things. But not like how she sees things. I think the full blown visual girl and animals are very interesting. She doesn’t have the typical symptoms. Like the disorganized speech and thought, typical of cos. But I don’t live with her so i don’t know all of it. But she is a very interesting person, and I’m glad she copes well with her illness.

I agree... although there's a little dysfunction in the family (divorce and the father living in a different state now and fighting between the two of them about both Jani and Bodhi) I don't think they are that bad. Jani is so smart at a young age because they worked with her. Her mom and her new husband have been working with the two of them and they have made great progress with both kids. Then again Mom doesn't think Bodhi is autistic and that he just has schizophrenia... Honestly I think he has both but that's just my opinion. They also accuse the parents of abuse but honestly I think their father over exaggerated in his writing to make a point on how violent her behavior was.

[Alice_WonderlandCat]

I think that the divorce was very sad, but it can’t be helped. In the sense he felt that it was like working with a co worker rather than his wife. I think some people like to throw around ideas with a source that is untrustworthy. They aren’t experts. We see no reports of arrest or any court cases. Yes I think there was some desperate aeras in there life. It’s not accuseable if they did, but we don’t see arrests. I’m glad Susan found someone else to help her. It think people don’t actually understand the difficulties. My own parents didn’t know what to do. I experienced several odd and violent behaviors. I was disorganized and had some paranoia. I wouldn’t blame my family for thinking of suicide or wanting to leave me somewhere. Its emotionally draining. My father went to work at his job and my mom went into home business. Those insurance things. But that was after they finally found something that worked. You have to be watched a lot since they still have fear and worry. I can see Bohdi as having autism and some psychotic disorder. Since not all equal schizophrenia. He’s ten now and he hasn’t gotten a diagnosis for it. The usual age is 8-9. My own diagnosis changed a lot, by age those ages it was decided schizophrenia was the right one. So it’s hard to say.

[Erti]

I've been dealing with severe mental illness since I was 18-19 years old. I'm now almost 28 years old and I STILL gave my mom hell with my illness because she was in denial about my illness for the longest time. She has accused me of faking it and downright said I was only going to hospital stays because I didn't want to go to work. Then again my mom and I had a really bad past with each other. We fought a lot. She threaten to kick my ***, throw me down the stairs, and when my baby sister lied to my mom that I hit her my mom threaten to knock me out and see how it feels. Although I was young when I first started hearing voices It wasn't full blown schizophrenia. I've dealt with sexual abuse/rape as a young child. I've dealt with emotional abuse such as being threaten to get my head cut off with a knife or being killed. Neglect from always having lice missing school and my father and stepmother locking me and my siblings in a room all day without food or other basic needs. I've also dealt with physical abuse from when they pull my hair and sometimes picking me up by my hair and slamming me on the ground as a child. I was never violent as a child but violent things happened to me.

[Alice_WonderlandCat]

Originally Posted by Erti

I've been dealing with severe mental illness since I was 18-19 years old. I'm now almost 28 years old and I STILL gave my mom hell with my illness because she was in denial about my illness for the longest time. She has accused me of faking it and downright said I was only going to hospital stays because I didn't want to go to work. Then again my mom and I had a really bad past with each other. We fought a lot. She threaten to kick my ***, throw me down the stairs, and when my baby sister lied to my mom that I hit her my mom threaten to knock me out and see how it feels. Although I was young when I first started hearing voices It wasn't full blown schizophrenia. I've dealt with sexual abuse/rape as a young child. I've dealt with emotional abuse such as being threaten to get my head cut off with a knife or being killed. Neglect from always having lice missing school and my father and stepmother locking me and my siblings in a room all day without food or other basic needs. I've also dealt with physical abuse from when they pull my hair and sometimes picking me up by my hair and slamming me on the ground as a child. I was never violent as a child but violent things happened to me.

I’m sorry you suffered though this. I hope that your family is no longer giving your trouble. I’m sorry I took so long to reply. They sound extremely toxic. I hope your life is moving on and doing better, even if it’s a little. I offer you a billion hugs.