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  #1  
Old Nov 15, 2022, 11:57 PM
Tart Cherry Jam Tart Cherry Jam is offline
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Is there anyone with narcolepsy on here?
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  #2  
Old Nov 17, 2022, 07:40 AM
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Lokebee Lokebee is offline
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This is a test
  #3  
Old Nov 17, 2022, 07:44 AM
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Quote:
Originally Posted by Tart Cherry Jam View Post
Is there anyone with narcolepsy on here?
I worked with a lady who has it in a call center. She would fall asleep on a call.
  #4  
Old Nov 25, 2022, 04:38 PM
Tart Cherry Jam Tart Cherry Jam is offline
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My symptoms are not that bad. I can only imagine, to fall asleep while on a call.
  #5  
Old Jan 12, 2024, 12:09 AM
Tart Cherry Jam Tart Cherry Jam is offline
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So apparently I have it, it probably started as a result of Covid I had in August 2022, but luckily it responds to amphetamine.
Dextroamphetamine Sulfate TABLET 5 MG which is the lowest dose of it. I have been on it for 5 days. It works like a miracle.
__________________
Bipolar I w/psychotic features
Last inpatient stay in 2018

Lybalvi 10 mg
Naltrexone 75 mg


Gabapentin 1500 mg+Vitamin B-complex (against extrapyramidal side effects)

Long-term side effects from medications, some of them discontinued:
- Hypothyroidism
- Obesity BMI ~ 38
  #6  
Old Feb 03, 2024, 04:30 PM
Tart Cherry Jam Tart Cherry Jam is offline
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Quote:
Originally Posted by Tart Cherry Jam View Post
So apparently I have it, it probably started as a result of Covid I had in August 2022, but luckily it responds to amphetamine.
Dextroamphetamine Sulfate TABLET 5 MG which is the lowest dose of it. I have been on it for 5 days. It works like a miracle.
Unfortunately, side effects piled up after that initial "like a miracle" effect and I cannot tolerate taking Dexedrine continuously. I might still take it as a PRN, infrequently, when I cannot afford taking a midday nap.

Will be looking for other solutions.
__________________
Bipolar I w/psychotic features
Last inpatient stay in 2018

Lybalvi 10 mg
Naltrexone 75 mg


Gabapentin 1500 mg+Vitamin B-complex (against extrapyramidal side effects)

Long-term side effects from medications, some of them discontinued:
- Hypothyroidism
- Obesity BMI ~ 38
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  #7  
Old Feb 03, 2024, 05:55 PM
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SquarePegGuy SquarePegGuy is offline
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I think you wrote that Nuvigil didn't work at all. I hope you find something quickly!
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Nuvigil 50mg; Wellbutrin 150mg; meds for blood pressure & cholesterol
Thanks for this!
Tart Cherry Jam
  #8  
Old Feb 03, 2024, 09:16 PM
Tart Cherry Jam Tart Cherry Jam is offline
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Originally Posted by SquarePegGuy View Post
I think you wrote that Nuvigil didn't work at all. I hope you find something quickly!
No, unfortunately, Provigil and Nuvigil did nothing at all. I could wake up with an alarm, feeling sleepy, take one of them, as instructed, and go straight back to bed for several more hours of sleep.

My psychiatrist wrote to the state disability office (I was on temporary disability at that time) that I was "resistant to Modafanil".
__________________
Bipolar I w/psychotic features
Last inpatient stay in 2018

Lybalvi 10 mg
Naltrexone 75 mg


Gabapentin 1500 mg+Vitamin B-complex (against extrapyramidal side effects)

Long-term side effects from medications, some of them discontinued:
- Hypothyroidism
- Obesity BMI ~ 38
  #9  
Old Feb 05, 2024, 09:38 AM
avlady avlady is offline
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i have sleep apnea. the machine is bothersome but it does help in the long run.
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  #10  
Old Feb 05, 2024, 10:42 AM
Tart Cherry Jam Tart Cherry Jam is offline
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Quote:
Originally Posted by avlady View Post
i have sleep apnea. the machine is bothersome but it does help in the long run.
My sleep apnea is well treated with the machine. I still need naps during the day and overall sleep excessively. So it is not sleep apnea but a different disease.

I am glad CPAP is helping you.
__________________
Bipolar I w/psychotic features
Last inpatient stay in 2018

Lybalvi 10 mg
Naltrexone 75 mg


Gabapentin 1500 mg+Vitamin B-complex (against extrapyramidal side effects)

Long-term side effects from medications, some of them discontinued:
- Hypothyroidism
- Obesity BMI ~ 38
Hugs from:
avlady, Travelinglady
  #11  
Old Apr 18, 2024, 03:52 PM
Tart Cherry Jam Tart Cherry Jam is offline
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Member Since: Mar 2021
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So Ritalin is working for this. And very gently, with no side effects at the lowest dose. I tried two tablets (not at the same time) last week and got terribly dizzy. It felt as if something inside my head were spinning. I then look up dizziness and it is a common side effect of Ritalin. Luckily at the lowest dose I do not get dizzy.

For now I am in a state of (happy) disbelief that a solution has been found that works so very gently.
__________________
Bipolar I w/psychotic features
Last inpatient stay in 2018

Lybalvi 10 mg
Naltrexone 75 mg


Gabapentin 1500 mg+Vitamin B-complex (against extrapyramidal side effects)

Long-term side effects from medications, some of them discontinued:
- Hypothyroidism
- Obesity BMI ~ 38
  #12  
Old Apr 18, 2024, 08:47 PM
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SquarePegGuy SquarePegGuy is offline
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Location: Northeastern USA
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Such great news! Good for you, you deserve it!
__________________
Major Depressive Disorder; Sleep Apnea; possibly on the spectrum
Nuvigil 50mg; Wellbutrin 150mg; meds for blood pressure & cholesterol
Thanks for this!
Tart Cherry Jam
  #13  
Old Apr 18, 2024, 11:32 PM
Tart Cherry Jam Tart Cherry Jam is offline
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Member Since: Mar 2021
Location: California
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Quote:
Originally Posted by SquarePegGuy View Post
Such great news! Good for you, you deserve it!
Thank you, my friend! You know how I went through despair and disappointment before landing safely.
__________________
Bipolar I w/psychotic features
Last inpatient stay in 2018

Lybalvi 10 mg
Naltrexone 75 mg


Gabapentin 1500 mg+Vitamin B-complex (against extrapyramidal side effects)

Long-term side effects from medications, some of them discontinued:
- Hypothyroidism
- Obesity BMI ~ 38
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