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Tart Cherry Jam
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Default Nov 15, 2022 at 11:57 PM
  #1
Is there anyone with narcolepsy on here?
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Default Nov 17, 2022 at 07:40 AM
  #2
This is a test
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Default Nov 17, 2022 at 07:44 AM
  #3
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Originally Posted by Tart Cherry Jam View Post
Is there anyone with narcolepsy on here?
I worked with a lady who has it in a call center. She would fall asleep on a call.
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Tart Cherry Jam
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Default Nov 25, 2022 at 04:38 PM
  #4
My symptoms are not that bad. I can only imagine, to fall asleep while on a call.
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Default Jan 12, 2024 at 12:09 AM
  #5
So apparently I have it, it probably started as a result of Covid I had in August 2022, but luckily it responds to amphetamine.
Dextroamphetamine Sulfate TABLET 5 MG which is the lowest dose of it. I have been on it for 5 days. It works like a miracle.

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Confirmed dx: Bipolar I w/psychotic features, since 2009 or earlier
Suspected dx: Narcolepsy type 2, since 2022

Current rx:

Geodon 40 mg (for mood)
Seroquel 75 mg (for sleep)
Gabapentin 1200 mg (against extrapyramidal side effects from the ^)
Dextroamphetamine 5 mg (for narcolepsy)

Past rx:
Way too many to list
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Tart Cherry Jam
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Default Feb 03, 2024 at 04:30 PM
  #6
Quote:
Originally Posted by Tart Cherry Jam View Post
So apparently I have it, it probably started as a result of Covid I had in August 2022, but luckily it responds to amphetamine.
Dextroamphetamine Sulfate TABLET 5 MG which is the lowest dose of it. I have been on it for 5 days. It works like a miracle.
Unfortunately, side effects piled up after that initial "like a miracle" effect and I cannot tolerate taking Dexedrine continuously. I might still take it as a PRN, infrequently, when I cannot afford taking a midday nap.

Will be looking for other solutions.

__________________
Confirmed dx: Bipolar I w/psychotic features, since 2009 or earlier
Suspected dx: Narcolepsy type 2, since 2022

Current rx:

Geodon 40 mg (for mood)
Seroquel 75 mg (for sleep)
Gabapentin 1200 mg (against extrapyramidal side effects from the ^)
Dextroamphetamine 5 mg (for narcolepsy)

Past rx:
Way too many to list
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Default Feb 03, 2024 at 05:55 PM
  #7
I think you wrote that Nuvigil didn't work at all. I hope you find something quickly!

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Major Depressive Disorder; Sleep Apnea; possibly on the spectrum
Nuvigil 50mg; Effexor 37.5mg; meds for blood pressure & cholesterol
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Thanks for this!
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Default Feb 03, 2024 at 09:16 PM
  #8
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Originally Posted by SquarePegGuy View Post
I think you wrote that Nuvigil didn't work at all. I hope you find something quickly!
No, unfortunately, Provigil and Nuvigil did nothing at all. I could wake up with an alarm, feeling sleepy, take one of them, as instructed, and go straight back to bed for several more hours of sleep.

My psychiatrist wrote to the state disability office (I was on temporary disability at that time) that I was "resistant to Modafanil".

__________________
Confirmed dx: Bipolar I w/psychotic features, since 2009 or earlier
Suspected dx: Narcolepsy type 2, since 2022

Current rx:

Geodon 40 mg (for mood)
Seroquel 75 mg (for sleep)
Gabapentin 1200 mg (against extrapyramidal side effects from the ^)
Dextroamphetamine 5 mg (for narcolepsy)

Past rx:
Way too many to list
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avlady
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Default Feb 05, 2024 at 09:38 AM
  #9
i have sleep apnea. the machine is bothersome but it does help in the long run.
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Tart Cherry Jam
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Default Feb 05, 2024 at 10:42 AM
  #10
Quote:
Originally Posted by avlady View Post
i have sleep apnea. the machine is bothersome but it does help in the long run.
My sleep apnea is well treated with the machine. I still need naps during the day and overall sleep excessively. So it is not sleep apnea but a different disease.

I am glad CPAP is helping you.

__________________
Confirmed dx: Bipolar I w/psychotic features, since 2009 or earlier
Suspected dx: Narcolepsy type 2, since 2022

Current rx:

Geodon 40 mg (for mood)
Seroquel 75 mg (for sleep)
Gabapentin 1200 mg (against extrapyramidal side effects from the ^)
Dextroamphetamine 5 mg (for narcolepsy)

Past rx:
Way too many to list
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