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Grand Magnate
Member Since Jan 2015
Location: UK
Posts: 3,282
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#21
My physical problems, including pain in neck, head and other joints also affect what I can physically do to help my depression though not as bad as yours sounds to be.I really feel for you!!
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EnglishDave
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EnglishDave
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Member
Member Since Nov 2015
Location: Yorkshire, England
Posts: 390
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#22
Quote:
Imagine a white hot railroad spike driven into your brain behind your temple/eye for 45 minutes to 3 hours. Being a Chronic sufferer, I get no Seasonal or months-long breaks like most afflicted. I get hit about 5-8 times a week and I cannot use the most common, most effective treatment for curtailing Attacks - breathing pure Oxygen. I am incapable of breathing deeply enough for long enough for it to work. Thank you for your words of concern. Dave. __________________ You and I are yesterday's answers, The earth of the past come to flesh, Eroded by Time's rivers, To the shapes we now possess. The Sage. Emerson, Lake and Palmer. |
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anon72219, Fizzyo, vonmoxie
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MO715
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Member
Member Since Nov 2015
Location: Yorkshire, England
Posts: 390
8 252 hugs
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#23
Quote:
I am sure your, and other's, physical issues are just as draining as mine. That is why we need each other in this Community of ours. The support I receive here and at our Sister Site, NeuroTalk, is what keeps me going and is more than I get in the Real World. I do appreciate your kind words and hugs. Dave. __________________ You and I are yesterday's answers, The earth of the past come to flesh, Eroded by Time's rivers, To the shapes we now possess. The Sage. Emerson, Lake and Palmer. |
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Fizzyo, MO715
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deus ex machina
Member Since Jul 2014
Location: Ticket-taking at the cartesian theater.
Posts: 2,379
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#24
We have so much in common! I get cluster headaches too though not as continuously as you; it's sort of seasonally triggered for me and can last for up to around 9 months, but I do get breaks. Topiramate was the only thing that ever helped me, but strangely when I was taking anti-depressants at the same time it stopped working for me, and now it doesn't even work for me on its own. Which leaves me a bit stranded. Other prophylactic drugs I've tried either don't work (most everything), or have given me permanent injury via their side effects (depakote! grr.).
I actually get what seems like almost every kind of headache there is, and some trigger the others.. I get tension headaches because of some botched spinal surgery I'll forever be suffering the after effects of, and migraine with aura since I was a kid. Clusters started in about my mid 30s. It's probably no coincidence that it's only now I've been cluster free for 6 months or so that my last major depressive episode finally had a chance to break. I don't think people that haven't had experience with persistent severe pain can entirely imagine just how much it can impact one's mental and spiritual powers. It really does stack the deck, I feel for you. Is the topiramate still working well for you? P.S., Your white hot railroad spike in the eye description is indeed apt.. very similar to how I describe mine to my friends, right before they wince. I always feel badly afterwards, but I'm just trying to be accurate.. __________________ “We use our minds not to discover facts but to hide them. One of things the screen hides most effectively is the body, our own body, by which I mean, the ins and outs of it, its interiors. Like a veil thrown over the skin to secure its modesty, the screen partially removes from the mind the inner states of the body, those that constitute the flow of life as it wanders in the journey of each day.” — Antonio R. Damasio, “The Feeling of What Happens: Body and Emotion in the Making of Consciousness” (p.28) |
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EnglishDave
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EnglishDave, MO715
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Member
Member Since Nov 2015
Location: Yorkshire, England
Posts: 390
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#25
Vonmoxie,
I am never happy to hear of another Clusterhead Pleased you are in a lull, long may it continue. I had to increase my dose of Topiramate this time last year. It has cut my Attacks from constant, up to 5 a day, usually an hour long, to 5-8 a week (sometimes 3 a day, sometimes none). The duration has increased but the intensity remains the same. One of the positive side effects of the Topiramate is it dulls my constant Neuropathic Facial Pain/Paresthesia and TN by about 25%. The rest of the side effects are terrible, but they get washed out amidst all my other meds. Dave. __________________ You and I are yesterday's answers, The earth of the past come to flesh, Eroded by Time's rivers, To the shapes we now possess. The Sage. Emerson, Lake and Palmer. |
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vonmoxie
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MO715, vonmoxie
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