[bri77_09]

hey im bri and im new.......i have had endometriosis for 4 years and its really hard living with it because no one else knows how bad the pain is and they think your being dramatic when you say your hurting so i hardly ever tell anyone when im in pain

[silver_moon]

(((((((((((((( bri ))))))))))))))))
Welcome to PC ... and I can tell you I know how bad the pain is and can appreciate that it's hard when no one else understands (even doctors I've found!).
Have you had any ops for it or anything?

Take care,
Molly

[cantstopcrying]

I'm there with you--or I was. For years I took birth control non-stop to totally stop my periods, then when I came off them after my girls were born I had a horrendously painful period for 4 months--nonstop. I was 31. The thing is I had zero problems in my teenage years. None. Regular as could be, no pain, rarely cramps. Then I missed a period, went to the doctor and was told I had a cyst on my ovary. They did a laparoscopy and I came out with the diagnosis of endometriosis. At that time they took 3/4 of one ovary. When I was 31 I begged for a hysterectomy. Finally they agreed. While I am now pain-free as well as period free, there are other repercussions that I'm not thrilled with. I know there are books out there on how changing your diet can effect the endo, as well as new meds that have come along. I did find, actually, that it was harder to convince a female doctor than a male doctor. I wish you luck in finding treatment for this very painful condition. Oh, what I was told was that it doesn't matter how much endometriosis you have, if there is one pc sitting right on a nerve, that's what causes the pain. (However, when they did my hysterectomy, they said they had to literally peel my uterus off my bladder, that's how much I had that it fused the two together!)

[bri77_09]

Originally Posted by silver_moon

(((((((((((((( bri ))))))))))))))))
Welcome to PC ... and I can tell you I know how bad the pain is and can appreciate that it's hard when no one else understands (even doctors I've found!).
Have you had any ops for it or anything?

Take care,
Molly

yeah ive had 2 laparoscopys done but they dont help and they wont do a hysto because im only 17.........thanks : )

[bri77_09]

Originally Posted by cantstopcrying

I'm there with you--or I was. For years I took birth control non-stop to totally stop my periods, then when I came off them after my girls were born I had a horrendously painful period for 4 months--nonstop. I was 31. The thing is I had zero problems in my teenage years. None. Regular as could be, no pain, rarely cramps. Then I missed a period, went to the doctor and was told I had a cyst on my ovary. They did a laparoscopy and I came out with the diagnosis of endometriosis. At that time they took 3/4 of one ovary. When I was 31 I begged for a hysterectomy. Finally they agreed. While I am now pain-free as well as period free, there are other repercussions that I'm not thrilled with. I know there are books out there on how changing your diet can effect the endo, as well as new meds that have come along. I did find, actually, that it was harder to convince a female doctor than a male doctor. I wish you luck in finding treatment for this very painful condition. Oh, what I was told was that it doesn't matter how much endometriosis you have, if there is one pc sitting right on a nerve, that's what causes the pain. (However, when they did my hysterectomy, they said they had to literally peel my uterus off my bladder, that's how much I had that it fused the two together!)

thank you for your reply i have had it for about 4 or 5 years ive had 2 laparoscopys but they dont help the last one i had done i had a 4 cm cyst on my left ovary and a smaller one on the right and my left ovary was fused to my intestine and they had to burn stuff off of my uterus.......the drs wont do a hysto because im only 17.......thanks again for your reply

I just came to this forum to ask about endo - I have SOMETHING going on, and we haven't figured it out yet. I know I am in major pain

What were your symptoms?? I'm starting to suspect endo....

[skeeweeaka]

Originally Posted by bri77_09

yeah ive had 2 laparoscopys done but they dont help and they wont do a hysto because im only 17.........thanks : )

Hello, I have endometriosis and excess bleeding with it. I can tell you what worked for me. Because of this I am anemic, so I take iron so you might need that if you aren't taking it...get tested. I found out that iron can deplete the vitamin A in your body. I also found out that there was a study done on women with excess bleeding and female problems and that they gave the women Vitamin A. They found out that they had to use PURE forms of vitamin A and NOT betacarotene which is LABELED as vitamin A in most supplements. Unfortunately, most people don't CONVERT the betacarotene to Vitamin A in your body, therefore, they have to take forms such as cod liver oil...I take the Twinlab's Brand which I found to be superior to other brands that I had tried. The serving size is much smaller on this brand compared to others. For example for Twinlab's you get the same amount or more EPA VERSUS DHA in this brand for 1 teaspoon full as opposed to 1 Tablespoon full iin others... The suggested serving size in the study was 10,000 IU's for 3 months time...then half of that for maintenance... I take 1 Tablespoon a day with is about 12,000 IU'S....

You can find this at your local Health Food store.... I think the Twinlab brand had about 4000 IU...for that teaspoon serving size!

Please try this because you even consider a hysterectomy. For those considering hysterectomies, please check out the HERS FOUNDATION and read up on hysterectomies and the fact that most are done unnecessarily and can quickly throw the person into menopause which is ANOTHER nightmare in itself! Also THYROID DISORDERS are also linked to many FEMALE problems so please take a look at the link in my signature!

Best Wishes....

TJ

[brephi]

I believe you. It's no joke. People tend to be callous because they are uneducated about the disease. Years ago when I was in management, I had this 1 employee who had to call off sick when endometriosis hit. She finally went to a female specialist who put her on some medication to help with the pain and other related symptoms.

Many to you for going through such intense pain.

[confusedgurl08]

I to suffer from Endometriosis. I was diagnosed last March. I was having so much pain, and a lot of urinary tract infections. The doctors for years just kept giving me antibiotics and pain killers. Finally at the beginning of last year i had a Ct Scan, and they found 3 cysts on my ovaries, as well as Endometriosis. I had a laparoscopy in May of 08 to remove the cysts. The doctor said the Endo was moderate to severe. My husband and I had been trying to have a baby for 4 years, and I didn't know why we couldn't. I am still new to Endometriosis, and trying to understand it a little more. When people ask me exactly what Endometriosis is I don't really know how to explain it. But I do know what you are going through. I just wanted to let you know you are not alone.

[skeeweeaka]

Originally Posted by confusedgurl08

I to suffer from Endometriosis. I was diagnosed last March. I was having so much pain, and a lot of urinary tract infections. The doctors for years just kept giving me antibiotics and pain killers. Finally at the beginning of last year i had a Ct Scan, and they found 3 cysts on my ovaries, as well as Endometriosis. I had a laparoscopy in May of 08 to remove the cysts. The doctor said the Endo was moderate to severe. My husband and I had been trying to have a baby for 4 years, and I didn't know why we couldn't. I am still new to Endometriosis, and trying to understand it a little more. When people ask me exactly what Endometriosis is I don't really know how to explain it. But I do know what you are going through. I just wanted to let you know you are not alone.

Confused endometriosis is usually a result of too much estrogen in the body. All women need progesterone to balance out the estrogen in their bodies. Some women who have had infertility problems have found that progesterone helped them to balance out their hormones and get pregnant. You may want to request that your hormone levels be tested since you are trying to have children. Have them tested in the follicular (day 1-3 of your cycle) and luteal (day 19-21) to see where your levels stand. If you haven't already, you need your estradiol, progesterone, and total testosterone and free testosterone levels checked during these phase. Some people feel that blood tests are more reliable but some think saliva is more reliable. Recently, I had a saliva test and blood test done at the same time, the saliva test was dead on with my symptoms...now I'm rethinking the blood testing to track hormone status...

Wishiing you all the best...

TJ

[shezbut]

Hi bri77,

I have adenomyosis, which is like endo - except my growth occurs inside of the uterus. Long, painful heavy periods and very painful intercourse are a top result. <I also became unable to become pregnant at that time. Which was okay for me, because sex was too painful anyway.>

I can relate. It really stinks to you, take care!

Shez