[BNLsMOM]

I really thought the neurologist would tell me that there is nothing wrong with my son, but when we walked out of the appointment today we left with three conditions, two of which are definite and not dangerous in themselves, but could have an underlying cause, and one condition that is very frightening, althought I don't know what it is, really. He needs to have a MRI to rule it out and that will be scheduled soon. The condition is called Neurofibromatosis, and I guess can cause tumors anywhere in the body along the nerves. They are usually benign, but can grow to be large or grow enough to cause nerve damage.

I don't know if I can take this on right now.

[Shakti]

On the one that needs the MRI to rule out, try to not fret too much until you have a definite reason to. I know--absolutely retarded thing to say. I'm a huge worrier--anxiety disorders and ocd with my O being worries about disease, sickness, etc, so I get it!!

The two that are definite are NOT dangerous in and of themselves! So...yay! That's actually good news. The underlying condition could be an issue, but the two conditions they the underlying issue is causing are not, so try to let it go until you know more. Or just don't worry until you have a reason to.

God, I feel so inadequate trying to give any sort of advice--hopeful, inspiring, or otherwise. I just really relate, also having mental issues myself and a son who has put me through the wringer with health issues.

I hate to say this, but whether or not you can take this on right now, you have to. For you son, you have to. It may be the hardest thing you deal with and it may be more than you can take, but try to rely on the support that you have and then get some more and try try try to have hope.

I'm a crappy advice-giver. GAH! My heart goes out to you and to your son and your family. It will be ok. All in all, it doesn't sound life threatening or like something that cannot be managed, so try to find some hope or solace in that. I'm still a crappy advice-giver. I wish I could say something useful. We're ALL here for you, all cyber and whatnot though we are....

[perpetuallysad]

Wow, that is scary. I think that Shaki said everything really well. I hope that whatever is happening things are going to be ok. Which son are you talking about? The 2 year old or 8 year old?

[sanityseeker]

You can and will cope BNLsMom. When you need the strength it will be there. Distractions are the only way I can manage worrying about things yet to come. Keeping my mind off what it is I am worried about with other busy work sometimes helps me make it through the waiting time. Try not to imagine the worst but rather speak the outcome you want. Declare it to be true and take on a spirit of thanksgiving.

I hope he can get the MRI sooner rather than later and I pray the news is good.

Shakti.... I think you give great advice.

[sugahorse1]

((HUGS)) We are here for you. I know you've been through a lot recently, but hang in there and be strong for your son.
I wish I could give you more than a virtual hug right now, but you are in my thoughts.
Please try remain as calm as possible - let the tests be done and don't worry until then.

[kadesgirl09]

(((bnlsmom))) hugs to you and your son. The advice above is great. Just wanted to let you know im a fellow mother and i understand your worries. Peace be with you during this time.

[sanityseeker]

((((((bnlsmom))))))) hope you having a peacefilled day. Take good care.

[Shakti]

Thinking of you and hoping you are doing ok and coping. Let us know, ok? We care.

[MickG]

I wish you and your son the very best.