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#1
Dec 19, 2015, 08:45 AM
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I have to do this in a few weeks and I'm scared. I've been on Seroquel for a long time (8 years I think, maybe 9) and so my body is very used to it. I've been on a really high doses for 5 or 6 years and 1200 mg for nearly 2.
I'm scared that coming off will be horrible. My body hasn't like lowering the dose in the past just a little. I'm also afraid that since I've had some psychosis lately that coming off this is just going to make me fully psychotic. I've got people watching for that and will be in the hospital for much of the taper but it just sounds unpleasant I don't know how fast they'll go but once I'm IP it will be fast I'm sure. It's just a very scary thing. Which I am not going to back out of this time  .
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Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily |
 wildflowerchild25
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#2
Dec 19, 2015, 09:43 AM
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((( hugs ))) ...
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 BeyondtheRainbow
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#3
Dec 19, 2015, 12:49 PM
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I have had problems in the past going off seroquel. Like the withdrawal of the med actually sent me into an episode. So you might go through a huge episode just from the taking away of the drug
I think it will probably be pretty tough but thank God you will be in a hospital!!! Good luck!!!!
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I used to rule the world Seas would rise when I gave the word Now in the morning, I sleep alone Sweep the streets I used to own I used to roll the dice Feel the fear in my enemy's eyes Listen as the crowd would sing Now the old king is dead! Long live the king! One minute I held the key Next the walls were closed on me And I discovered that my castles stand Upon pillars of salt and pillars of sand |
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#4
Dec 19, 2015, 12:59 PM
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I will say too during the episode don't think you should jump back on seroquel. You may have worse symptoms but a lot of the time it's not because seroquel was fixing those symptoms but the withdrawal causes worse symptoms. Many ppl have shared that experience with me as well
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I used to rule the world Seas would rise when I gave the word Now in the morning, I sleep alone Sweep the streets I used to own I used to roll the dice Feel the fear in my enemy's eyes Listen as the crowd would sing Now the old king is dead! Long live the king! One minute I held the key Next the walls were closed on me And I discovered that my castles stand Upon pillars of salt and pillars of sand |
| BeyondtheRainbow
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#5
Dec 19, 2015, 01:15 PM
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I am expecting to be very, very mixed during this. I'm very worried about the psychosis as well. When I started Seroquel I had not had much psychosis in years and Seroquel stopped what I had. I have had rare hallucinations when manic and without sleep a couple of times since then. But this year there's been a lot more psychosis and I'm terrified that I'll go into full-fledged psychosis. I need to let my mom know this is possible but have no idea how to approach that without scaring her. I'll wait until I've seen my pdoc though and until after Christmas.
I am not looking forward to this. I know I have to do it but I feel a great sense of doom. I know how I felt going off just my AD to go on my MAOI and that was nothing like the power of Seroquel. Oh well.....
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Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily |
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#6
Dec 19, 2015, 04:16 PM
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So can thy give you anything to help that is the question ! Clozaril probably complicates that but u hope thy will have a knockout relief med for you
__________________
I used to rule the world Seas would rise when I gave the word Now in the morning, I sleep alone Sweep the streets I used to own I used to roll the dice Feel the fear in my enemy's eyes Listen as the crowd would sing Now the old king is dead! Long live the king! One minute I held the key Next the walls were closed on me And I discovered that my castles stand Upon pillars of salt and pillars of sand |
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#7
Dec 19, 2015, 08:55 PM
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I don't know. IF I have to come off Klonopin too (and I've been on benzos for 16 solid years except for a few months here and there so long ago I can't remember when so that will be massively difficult) I'm not sure how I will ever be calmed down. Right now hydroxyzine is extremely sedating for me so hopefully that will continue. I take a low dose of gabapentin and am ok with it but in the past being on a higher dose of it made me completely loopy. Like could only function in the hospital on it loopy, but it might be an option.
Being on an MAOI is going to be a big problem here because it eliminates some meds that might help. I think my pdoc mentioned once something about trying to use another AP without QT syndrome as a bridge to get me on Clozaril but she hasn't mentioned it since and that's tricky because I can only afford generics and the atypical generics I'm either allergic to or they don't work for me or they cause EPS and typicals I'm at really high risk for EPS because I have had it numerous times. So I'm not sure what they'd use. Zyprexa maybe although in the past we tried it and found it did absolutely nothing for me. I don't know; I guess I'll find out Monday when I see my pdoc. I'm going to have her describe exactly what to expect with this and what might happen as well even though we'll hope that those things don't. But I need to know if my mom needs to be aware that I might suddenly be psychotic and completely out of touch with reality or at any other extreme she has never seen and which I might not be able to help myself. I hate the idea that I may not be able to make decisions but she may have to decide it is time to go to the ER. So it's only fair she have some understanding in advance. Based on the past I expect that I will need to be IP with only a small dose reduction. I made it to 800 mg this summer before I needed to go in but I was on another AP at the time. So it may be that 1000 mg is as low as I can go OP. I guess I'll see and hopefully my pdoc will have some idea what to expect Monday although trying to predict what my body will do with a medication can be tricky.
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Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily |
| wildflowerchild25
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#8
Dec 20, 2015, 06:20 PM
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Let us know how your appointment goes tomorrow! Hugs.
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The darkest of nights is followed by the brightest of days. 😊 - anonymous The night belongs to you. 🌙- sleep token "What if I can't get up and stand tall, What if the diamond days are all gone, and Who will I be when the Empire falls? Wake up alone and I'll be forgotten." 😢 - sleep token |
| BeyondtheRainbow
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