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  #1  
Old Jan 21, 2016, 01:47 AM
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BipolaRNurse BipolaRNurse is offline
Neurodivergent
 
Member Since: Mar 2012
Location: Western US
Posts: 4,831
First of all, I've lost my wonderful pdoc since I moved to another county and Medicaid requires one to get all their care through that county. I now have a therapist I see frequently, and a psych NP (who I don't get in to see till early March) for medication management. So far my T has been great, we've had three sessions and I've been able to get a lot off my chest that I never really got the chance to chew over with my pdoc thanks to the fact that I was always in some crisis or another.

But the worst thing is my husband is now in the process of dying. He has pancreatic cancer with metastases to his liver and bones, his oral chemo has stopped working and his oncologist wants him to take a course of IV chemo that is one of the hardest there is. Now, if it could cure him of his cancer, we both would be in favor of it, but it won't; he's in stage IV and the tumors are growing rapidly. I've spoken to an oncology nurse friend of mine and she told me what he would be in for...and if the chemo doesn't kill him, he would more than likely wish for death.

So he's made the decision to stop treatment and go on hospice, which I am only too willing to support. He's been ill for much of the past several months; he throws up at least once or twice a day, almost every day, and his strength is almost gone. He did well during our Caribbean trip last month, but I get the feeling he was just hanging on for that. He's gone steadily downhill ever since we got back. And it's so, so hard to watch him suffer...he doesn't deserve this. He's not in a lot of pain, thank God; it's just the nausea and vomiting and going back and forth to the hospital for pneumonia and dehydration.

I'm at peace with his decision, but I'm so sad and depressed. It feels like everything is going to hell all at once and I am overwhelmed. It's too many losses. I'm not suicidal or even close to it, but I am self-aware and won't hesitate to go to the hospital if I start getting that way. I also know this has little to nothing to do with my bipolar; it's strictly situational, and given the circumstances it makes sense that I'm depressed. But I continue to function, because I have no choice but to be strong.

Thanks for being here to read my little vent. Sometimes I don't know what I'd do if I couldn't come here to "talk" with people who understand.
__________________
DX: Bipolar 1
Anxiety
Tardive dyskinesia
Mild cognitive impairment

RX:
Celexa 20 mg
Gabapentin 1200 mg
Geodon 40 mg AM, 60 mg PM
Klonopin 0.5 mg PRN
Lamictal 500 mg
Levothyroxine 125 mcg (rx'd for depression)
Trazodone 150 mg
Zyprexa 7.5 mg

Please come visit me @ http://bpnurse.com
Hugs from:
Anonymous37930, Anonymous41403, Anonymous45023, Anonymous48850, Anonymous50101, boogiesmash, cashart10, cmorales, ColeM1100, gina_re, Hashi/bipolar mom, jacky8807, jbuttz, Keegan2015, kindachaotic, LettinG0, MistressStayc, Ocean Swimmer, Pastel Kitten, raspberrytorte, Secretum, seoultous, shezbut, Takeshi, Unrigged64072835, Victoria'smom, violet66, Wanderlust90, wildflowerchild25, wiretwister, ~Christina
Thanks for this!
Takeshi, Victoria'smom

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  #2  
Old Jan 21, 2016, 01:55 AM
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BeyondtheRainbow BeyondtheRainbow is offline
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Member Since: Apr 2015
Location: US
Posts: 10,225
I'm so sorry. I'm actually crying for you. Pancreatic cancer is cruel and I'm so sorry that the two of you have to go through this. I am glad that you have hospice and hope that they are as wonderful as most hospice I've worked with have been. My uncle died just over a year ago as a delayed response to trauma from an accident and hospice was so helpful. Like you my aunt is a nurse and aside from some time he spent in the hospice center getting adjusted to very high doses of pain meds she provided all his care to the end they were able to help progress his pain management and how it was delivered as he went from stage to stage. It made a big difference and I'm glad she opted for it; I wasn't sure she would after caring for him for many years with little help.

I am very glad that you had your trip; that will give you special memories forever.

I hope that you keep feeling that you can vent here and you are also welcome to PM me if you need to talk. I tend to be here for the late hours often.
__________________
Bipolar 1, PTSD, GAD, OCD.
Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily
Thanks for this!
BipolaRNurse
  #3  
Old Jan 21, 2016, 02:08 AM
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BipolaRNurse BipolaRNurse is offline
Neurodivergent
 
Member Since: Mar 2012
Location: Western US
Posts: 4,831
We've actually been blessed with 2 1/2 years of (mostly) good times since his diagnosis. He's already outlived the initial expectations and isn't actively dying, but hospice is definitely appropriate. I worked with hospice nurses for most of my career in long-term care, and I learned a lot from them including how NOT to be afraid of administering appropriate amounts of medication to provide relief from symptoms. He'll be as comfortable as we can make him.
__________________
DX: Bipolar 1
Anxiety
Tardive dyskinesia
Mild cognitive impairment

RX:
Celexa 20 mg
Gabapentin 1200 mg
Geodon 40 mg AM, 60 mg PM
Klonopin 0.5 mg PRN
Lamictal 500 mg
Levothyroxine 125 mcg (rx'd for depression)
Trazodone 150 mg
Zyprexa 7.5 mg

Please come visit me @ http://bpnurse.com
  #4  
Old Jan 21, 2016, 02:11 AM
Anonymous41403
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Posts: n/a
I don't know what to say, I'm so, so sorry. My mother died of lung cancer and it was so hard. This just must be devastating. I wish I could offer more comfort...
Thanks for this!
BipolaRNurse
  #5  
Old Jan 21, 2016, 02:19 AM
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jacky8807 jacky8807 is offline
Magnate
 
Member Since: Oct 2014
Location: jakevill
Posts: 2,622
So sorry
__________________
I used to rule the world
Seas would rise when I gave the word
Now in the morning, I sleep alone
Sweep the streets I used to own
I used to roll the dice
Feel the fear in my enemy's eyes
Listen as the crowd would sing
Now the old king is dead! Long live the king!
One minute I held the key
Next the walls were closed on me
And I discovered that my castles stand
Upon pillars of salt and pillars of sand
Thanks for this!
BipolaRNurse
  #6  
Old Jan 21, 2016, 07:09 AM
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Ocean Swimmer Ocean Swimmer is offline
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Member Since: Dec 2015
Location: Costa Rica
Posts: 2,171
Oh my Gosh. Much positive energy to both of you from me.
Love is very powerful. Please accept my prayers. Maxy
__________________
Bipolar 1
Day Vraylar 3 mg. Wellbutrin 150
Night meds Temazepam 30 mg or lorazepam
Hasn't helped yet.
From sunny California!
Thanks for this!
BipolaRNurse
  #7  
Old Jan 21, 2016, 09:42 AM
Hashi/bipolar mom's Avatar
Hashi/bipolar mom Hashi/bipolar mom is offline
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Member Since: May 2015
Location: Somewhere over the rainbow...
Posts: 672
I'm so sorry. Hugs
__________________
Hashi/Bipolar Mom

300mg Lamictal
1800mg Gabapentin
10mg Memantine (weaning off)
.6mg Clonidine (for sleep and anxiety)
40mg Propanol (for sleep)
3 mg Xanax
10mg Saphris
Thanks for this!
BipolaRNurse
  #8  
Old Jan 21, 2016, 10:49 AM
Anonymous45023
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Posts: n/a
(((((((((BipolaRNurse)))))))))
This has been such a journey for you, these 2 1/2 years. You know my thoughts have been with you through this. Be assured that they not on only continuing, but are redoubled in this especially difficult time. Much love to you sweetie.
Thanks for this!
BipolaRNurse
  #9  
Old Jan 21, 2016, 11:50 AM
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LettinG0 LettinG0 is offline
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Member Since: Nov 2014
Location: Itty Bitty City in the South, USA
Posts: 1,517
Hugs from my heart.........you seem to be coping admirably and to be self-aware.....take care of yourself as you take care of him....

My heart goes out to you.....
__________________


LettinG0
BP II
Thanks for this!
BipolaRNurse
  #10  
Old Jan 21, 2016, 03:01 PM
hopeless2015 hopeless2015 is offline
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Member Since: Feb 2015
Location: USA
Posts: 3,418
Hugs and prayers for you

Sent from my XT1058 using Tapatalk
__________________
Current Meds
Lamictal 200 mg x2
Seroquel 100 mg
Thanks for this!
BipolaRNurse
  #11  
Old Jan 21, 2016, 03:32 PM
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Pastel Kitten Pastel Kitten is offline
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Member Since: Oct 2015
Location: South Carolina
Posts: 972
I started tearing up. I'm so, so sorry you have to go through this. Neither you nor your husband deserve it. You are incredibly strong for bearing this and pulling through not only for your husband's sake, but for your own. I wish the best for you, no matter what happens.
__________________
Do at least one thing you enjoy each day.

Depressed...everything's changing.

Dx: BPD, OCD, GAD, and PTSD traits
Rx: Lamictal 200mg and 0.5mg Ativan as needed



"Now I can see all the colors that you see."
Thanks for this!
BipolaRNurse
  #12  
Old Jan 21, 2016, 03:43 PM
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cashart10 cashart10 is offline
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Member Since: Oct 2013
Location: KY
Posts: 3,667
I cannot imagine what you are going through. I am so sorry.

__________________
*****

Every finger in the room is pointing at me
I want to spit in their faces then I get afraid of what that could bring
I got a bowling ball in my stomach I got a desert in my mouth
Figures that my courage would choose to sell out now

Tori Amos ~ Crucify

Dx: Schizoaffective Disorder
Thanks for this!
BipolaRNurse
  #13  
Old Jan 21, 2016, 04:04 PM
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wildflowerchild25 wildflowerchild25 is offline
Elder
 
Member Since: Mar 2013
Location: NJ
Posts: 6,434
I'm so sorry bpnurse. As you know I lost my husband last year and it has been very hard. I hope you are able to enjoy the time you have left with him. Keep coming here for support.
__________________
Of course it is happening inside your head. But why on earth should that mean that it is not real?
-Albus Dumbledore

That’s life. If nothing else, that is life. It’s real. Sometimes it
f—-ing hurts. But it’s sort of all we have.
-Garden State
Hugs from:
BipolaRNurse
Thanks for this!
BipolaRNurse
  #14  
Old Jan 21, 2016, 04:16 PM
Unrigged64072835 Unrigged64072835 is offline
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Member Since: Oct 2010
Location: Under the noise floor
Posts: 18,579
Lots of hugs and love to you. I lost my mother to ovarian cancer and my father to liver cancer about a year apart. It was hard to see my mom in particular go as it was really rough on her.

At least you had some good times with your husband and you'll be able to cherish them. Do take care of, and be gentle with, yourself during this time.
Hugs from:
BipolaRNurse, Pastel Kitten
Thanks for this!
BipolaRNurse
  #15  
Old Jan 21, 2016, 05:29 PM
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Keegan2015 Keegan2015 is offline
Member
 
Member Since: Jun 2015
Location: USA
Posts: 409
I'm so sorry you two are going through this, my thoughts are with you in this difficult time

Hang in there.
__________________
--Keegan

BP1
Substance Use Disorder -- Alcohol (In Recovery)

900mg Lithium
15mg Temazepam PRN


"Just Because You're Paranoid Doesn't Mean They're Not After You"
Thanks for this!
BipolaRNurse
  #16  
Old Jan 21, 2016, 06:23 PM
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scatterbrained04 scatterbrained04 is offline
Magnate
 
Member Since: Feb 2015
Location: Ohio
Posts: 2,868
I can't imagine what you are through. Sending love and hugs...
Thanks for this!
BipolaRNurse
  #17  
Old Jan 21, 2016, 08:35 PM
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Blue_Bird Blue_Bird is offline
Violinist
 
Member Since: Jun 2013
Location: Middle Earth
Posts: 38,935
I'm sorry you and your husband are going through this, my mother just passed away this past week from cancer. It's rough, but no matter what happens you have to hang in there It's completely normal to be depressed about these things
__________________
“All the darkness in the world cannot extinguish the light of a single candle.” -St. Francis of Assisi


Diagnosis:
Schizoaffective disorder Bipolar type
PTSD
Social Anxiety Disorder
Anorexia Binge/Purge type
Hugs from:
BipolaRNurse, Pastel Kitten
Thanks for this!
BipolaRNurse
  #18  
Old Jan 24, 2016, 06:38 PM
BipolaRNurse's Avatar
BipolaRNurse BipolaRNurse is offline
Neurodivergent
 
Member Since: Mar 2012
Location: Western US
Posts: 4,831
Thank you all for your support. He has good days as well as bad, and we're always grateful for them when they come. He's actually had several good ones in a row, although today he's thrown up once and is complaining of pain in his shoulder. The two seem to go hand in hand...don't know what's up with that.
__________________
DX: Bipolar 1
Anxiety
Tardive dyskinesia
Mild cognitive impairment

RX:
Celexa 20 mg
Gabapentin 1200 mg
Geodon 40 mg AM, 60 mg PM
Klonopin 0.5 mg PRN
Lamictal 500 mg
Levothyroxine 125 mcg (rx'd for depression)
Trazodone 150 mg
Zyprexa 7.5 mg

Please come visit me @ http://bpnurse.com
Hugs from:
Anonymous45023, shezbut
  #19  
Old Jan 24, 2016, 07:05 PM
Victoria'smom's Avatar
Victoria'smom Victoria'smom is online now
Legendary
 
Member Since: Apr 2012
Location: Earth
Posts: 15,957
I'm so glad you have a therapist in your corner and you're stable-ish. I'm glad the cruise went well. I'm so sorry things are going down hill. Please keep your therapists number handy and remember we all love you and support you here.
__________________
Dx:
Me- SzA
Husband- Bipolar 1
Daughter- mood disorder+


Comfortable broken and happy

"So I don't know why I'm tongue tied At the wrong time when I need this."- P!nk
My blog
Thanks for this!
BipolaRNurse
  #20  
Old Jan 25, 2016, 09:51 PM
ColeM1100's Avatar
ColeM1100 ColeM1100 is offline
Member
 
Member Since: Oct 2015
Location: Alberta
Posts: 92
So sorry your going through this
Thanks for this!
BipolaRNurse
  #21  
Old Jan 29, 2016, 01:19 AM
BipolaRNurse's Avatar
BipolaRNurse BipolaRNurse is offline
Neurodivergent
 
Member Since: Mar 2012
Location: Western US
Posts: 4,831
Well, we have a timeline now. Six to nine months without chemo, or this treatment where they inject radioactive beads right into the liver to kill the cancer cells. It's experimental so Medicaid wouldn't pay for it (we already tried that and it was a no go), and I don't think Medicare will either so it would be impossible to get, as we don't have tens of thousands of dollars lying around. So basically, it's...six to nine months.
__________________
DX: Bipolar 1
Anxiety
Tardive dyskinesia
Mild cognitive impairment

RX:
Celexa 20 mg
Gabapentin 1200 mg
Geodon 40 mg AM, 60 mg PM
Klonopin 0.5 mg PRN
Lamictal 500 mg
Levothyroxine 125 mcg (rx'd for depression)
Trazodone 150 mg
Zyprexa 7.5 mg

Please come visit me @ http://bpnurse.com
Hugs from:
Anonymous41403, Anonymous45023, BeyondtheRainbow, ~Christina
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