[99fairies]

I have dystonia and my pain is unbearable even with my side effect med. I know some of you have bad physical pain daily. How do you deal with it?

[Shazerac]

If the dystonia is so bad that it is unbearable even with side effect meds....it's time to consider different meds. Seriously. There are a lot of options. Please talk to your doctor. You don't need to suffer like this.

[99fairies]

The ap that's causing this is the invega injection. So it's not like I can just stop taking it. It'll be in my system for at least another month. I'm still going to keep taking the procycladine and see if it kicks in. The problem with changing my ap is that most ap's give me dystonia. The side effect med just worked so well I didn't notice the pain. But for some reason it's not working this time.

[Wild Coyote]

Oh, wow, I am so sorry you continue to go through this.
Pain from dystonia is difficult to endure.

Is there any chance a neurologist's consult might help? They deal with all types of dystonias.

(((((( 99fairies ))))))

I hope you find relief soon.

WC

[UpDownAround]

As weird as it sounds, I am habituated to low back pain. My lumbar region is a mess; spinal stenosis, 2 herniated discs, all other discs deteriorating and some arthritis thrown in for good measure. I don't want to eat a hole in my stomach from daily high doses of NSAIDs or become a statistic of the opioid epidemic. So I just put it out of my mind unless it gets really bad. But I doubt it hurts as bad as dystonia.

No, I don't have chronic pain, but I want to offer you my support.

I'm sorry you have to deal with this. Dystonia sounds very rough.

I agree with WC that a neurologist might help. It would be cool if that person could work together with the person prescribing your psych meds, too. I know that my grandma has advanced dementia, and her psychiatrist and neurologist work together, which helps A LOT. (She has severe anxiety, panic attacks, and depression that are independent of her dementia.) Some of her psych meds (like Seroquel) cause balance issues, which is a common side effect in the elderly, so her neurologist has some other meds that she takes to counteract that a bit.

[*Laurie*]

I have had chronic back pain for nearly 3 years. I take a couple of Advil every morning, and that allows me to get some chores and errands done with a lower level of pain. After the Advil wears off I don't want to take more, so I just live with the pain. It's discouraging.

[Fuzzybear]

[~Christina]

Im sorry that your dealing with dystonia.. I have heard it hell.

I have Fibro and psoriatic arthritis ..

My pain level stays at a 6-7 all the time.. How do I cope? I have no idea. I try to just go day to day. Maybe the new med for the arthritis will somehow help? I dunno.

I hope you find so relief , I am sorry this has happened to you.