[Wild Coyote]

Please see news article here:

Her body was attacking her brain - CNN

I've just sent this link to my pdoc and to my rheumatologist.

I hope awareness increases.

Love to All!


WC

[BeyondtheRainbow]

My pdoc always recommends books to me because we share a lot of interests and she recommended the Brain on Fire book a few years ago. I actually already had read it but I really liked that she thought it might be interesting to me and brought it up on her own.

[liveforsummer]

I read Brain on Fire too. Certainly smart to be aware of all possibilities.
Thanks for the post

[Wild Coyote]

I have multiple autoimmune conditions, as many of you know.

For 2 years, I'd had auto-antibodies to components of my own blood, which also interfered with the function of my central nervous system. I was confused, dazed, had severe headaches 24/7 and was confined to dark rooms.
The ER thought I was simply nuts. My PCP was at a loss. My rheumatologist found the antibodies and treated me. Fortunately for me, the antibodies disappeared after 2 years. We still do an annual check for them.

My pdoc was telling me, just last week, that a very high percentage of his MI patients also have overt autoimmune conditions, which causes him to wonder about any potential correlations between autoimmunity and MI.

Maybe we'll know more about this some day.

Love to All!

WC

Thank you for sharing this. I bought the Brain on Fire book but never read it. I've often felt my mental health issue is related to physical health. My son has a serious Autoimmune disease and my doctors have said for years I present as someone with an autoimmune disorder but my blood tests have yet to show one (except Lupus but they said it was drug induced lupus) they keep checking.

I'm so sorry for all you go through WC. I too deal with horrible symptoms which cross all systems in the body. It's greatly effected my quality of life so my heart goes out to you. I know what it means to be so sick and all you've probably lost and missed out on as a result. I hope a cure is soon found for you and all us others who battle chronic illness of any kind. (((Hugs)))

[liveforsummer]

I've experienced many different autoimmune symptoms over the past 20 years from joints I couldn't move without a brace to bald patch (perfect shape of egg) on side of my head that finally grew in few months later. Only thing that ever showed on blood work was ANA positive. But none of it ever enough to make a diagnosis.

Hugs to all those with all these struggles.

Now that is interesting. Does make you wonder about a connection.

Thanks for this thread

[Unrigged64072835]

I haven't read the book. However, my husband has MS and now has depression due to the disease. He's doing fine on meds but he still has side effects from the MS med everyday. He just tries to focus on things other than his headaches and fatigue.