[Moose72]

Bedsides the ones for side effects. That means no antipsychotics or mood stabilizer. I’m going to try therapy. There are no meds I haven’t or won’t react to is why. Plus I still have TD.

[Nammu]

Oo I hope that works. Back in 2000 I went off everything because I was on opiates for physical issues and didn’t want to mix the two. Surprisingly things evened out and I was relatively stable. Then after my back surgery in 2013 or so I slipped into a severe depression, but it wasn’t until that turned into a mixed episode I sought help. I’m now on only one AP. Less meds than I’ve ever been on since the 80’s and doing well. I hope you have the same luck.

[raspberrytorte]

I hope your TD goes away Moose. Is it very bad?

[Blueberrybook]

I hope the TD goes away now. Are you worried about going off those meds? What meds are you still on?

I hope therapy helps you.

[Moose72]

I called and left a message for the therapist today.

[Moose72]

Originally Posted by raspberrytorte

I hope your TD goes away Moose. Is it very bad?

It was on vacation but I think the meds are helping. Far from perfect but it’s something.

[BeyondtheRainbow]

It's been a while....how's it going?

[Moose72]

The new t doc wants me to have Medicare. Sounds like a lot of work. Mentally I’m just fine. Didn’t sleep last night.

[bizi]

I am sorry you did not sleep.
you know how important sleep is so be mindful.
bizi

[Moose72]

Originally Posted by bizi

I am sorry you did not sleep.
you know how important sleep is so be mindful.
bizi

Only slept from 4:30 to 7 last night. Was up all night online. Already been through finding a decent sleep med for me and of course they failed from side effects! And of course it’s Saturday so Pdoc isn’t around and neither is my case manager. I hate to just try to nap later because I’ll be all turned upside down any worse than I am right now. There is the after hours line but they can only report to your Pdoc or tell you if you need to go to the ER or not.

[Moose72]

Found out new tdoc will take my insurance in the fall.

[Moose72]

Originally Posted by Blueberrybook

I hope the TD goes away now. Are you worried about going off those meds? What meds are you still on?

I hope therapy helps you.

I am on levothyroxine 125 mcg, eliquis 2.5 twice a day, propranolol 10 mg twice a day, atorvastatin 20 mg, benztropine 1 mg twice a day, vitamin b6 50 mg per day and clonazepam 1 mg twice a day.

[Moose72]

I feel antsy. Nobody is around to talk or visit with. I’ve been listening to the same cd over and over again. Well there’s my cat but she wants petted and fed all the time. I think I’ll explode with this energy! I’m trying to fold and put away my clean laundry- trying is the operative word!

[Moose72]

Now I’m being ignored

[MuddyBoots]

Did you and your doc have a plan for what to do if you start getting manic? Might be good to implement it, or come up with one quickly

[Moose72]

Originally Posted by MuddyBoots

Did you and your doc have a plan for what to do if you start getting manic? Might be good to implement it, or come up with one quickly

No we don’t have one of those especially manic without meds! I can always call the crisis team if things get really bad.

[raspberrytorte]

@Moose72

Sorry your sleep has been shyt and you're manic feeling and antsy. Try a rest period. Put on your headphones or put in your ear buds and just lay in bed, in as dark and cool as you can make it, and listen to music. Helps me to take a rest period when I'm feeling that way.

I hope you feel better soon. 🫂 ❤️

[Moose72]

Originally Posted by raspberrytorte

@Moose72

Sorry your sleep has been shyt and you're manic feeling and antsy. Try a rest period. Put on your headphones or put in your ear buds and just lay in bed, in as dark and cool as you can make it, and listen to music. Helps me to take a rest period when I'm feeling that way.

I hope you feel better soon. 🫂 ❤️

Thanks. I’m having the command hallucinations again. Think the lack of meds is starting to catch up with me., I don’t have anything that headphones can plug into but I do have I heart radio on my iPad. I have that next to my bed.

[raspberrytorte]

Originally Posted by Moose72

Thanks. I’m having the command hallucinations again. Think the lack of meds is starting to catch up with me., I don’t have anything that headphones can plug into but I do have I heart radio on my iPad. I have that next to my bed.

It sucks you have such bad reactions to seemingly all antipsychotics. Are the command hallucinations very bad? I hope they're not. You can try listening to your radio without headphones, yes. Just try taking a rest period, hun.

[Moose72]

Originally Posted by raspberrytorte

It sucks you have such bad reactions to seemingly all antipsychotics. Are the command hallucinations very bad? I hope they're not. You can try listening to your radio without headphones, yes. Just try taking a rest period, hun.

Yes all antipsychotics. I’ve tried the vast majority of them. The command hallucinations are always the same but they still are annoying. Got my iPad playing 101.5 The River.

[MuddyBoots]

I've exhausted the AP list too, either they don't work or the side effects are as bad as the psychosis for me. There is a "least shyttiest option" for me though. I haven't been on any meds most of this year, and so far psychosis has only come up with substance use or withdrawal. If it comes back, I'm going with seroquel because it kinda works and the side effects are tolerable.

Is there a certain amount of time he wants you off the meds? or as long as possible? or is he going for forever? maybe generally off meds but put back on when needed?

It just seems like a bad idea when you have multiple psychotic episodes under your belt and not have a back up plan in place if you have a pdoc.

[raspberrytorte]

I can't remember if I asked you this, but have you tried haldol, moose? As far as side effects go that had the least for me, besides weight loss, which is obviously totally fine! Lol. It only caused me a bit of muscle rigidness after being on it for seven years (and it stopped working).

What side effects did seroquel give you? It just makes me a tad sleepy and made me gain fifty pounds. Ugh. But it's great for my anxiety and delusions/paranoia are gone.

[raspberrytorte]

Oh, and I'm happy you're taking a rest period! Is it helping at least a little bit?

[Moose72]

Originally Posted by MuddyBoots

I've exhausted the AP list too, either they don't work or the side effects are as bad as the psychosis for me. There is a "least shyttiest option" for me though. I haven't been on any meds most of this year, and so far psychosis has only come up with substance use or withdrawal. If it comes back, I'm going with seroquel because it kinda works and the side effects are tolerable.

Is there a certain amount of time he wants you off the meds? or as long as possible? or is he going for forever? maybe generally off meds but put back on when needed?

It just seems like a bad idea when you have multiple psychotic episodes under your belt and not have a back up plan in place if you have a pdoc.

I see my Pdoc in 3 weeks. We will see how my td is then. Vraylar is basically my last hope as the other two that I haven’t taken are too much like others I’ve reacted badly to. But right now I’m taking a month off meds to get the TD under control. So far the psychosis is manageable. No mania or depression. I caught up on my sleep last night.

[Moose72]

Originally Posted by raspberrytorte

Oh, and I'm happy you're taking a rest period! Is it helping at least a little bit?

I did end up sleeping last night! Yay!