MS symptoms aggravating to me

having MS symptoms is so aggravating...while there are no new patches on my brain that suggest another major attack of the MS symptoms, the symptoms that I have had up until this time will probably NOT go away now...the numbness and tingling in my hands and feet, the cold fingers and hands, the feet that refuse to work right, the way my body reacts to cold...I have to get used to that...so not being better than I am now is ok because I know that I will be no worse for a while either...which is a very good thing...but sometimes the symptoms that I have are just aggravating to me...willing me to just sink into despair and depression and living in my home, going very few places where I would be in contact with any people...I am just finding myself closing myself off more and more as the physical pain and disability combine with the MH issues that keep me home every day...

Jewels

oh my goodness Jewels...
Who do you have for support irl = for company, to help with meds, to help with physio, to be there 4 appointments/tests, to just be by your side...?
I am sorry you are struggling so much right now. Here's yet another

I'm so sorry Jewels ~ I wouldn't wish MS on my worst enemy. But I do know how it is to be disabled. I live alone, so I do have to take care of my own needs, and luckily I can still do it ~ for how much longer, I don't know. I have severe spinal troubles, and have been disabled since 1995. Hopefully, things will stay as they are ~ but the pain is pretty awful.

I hope and pray that YOUR symptoms don't get any worse. I know they're bad enough as it is. You're in my thoughts and prayers. God bless. Hugs, Lee

oh jewels I can relate. My hole body hurts i'm cold all the time. Even when it's hot out side. I get my test results back today and will let everyone know what going on with me. so sorry pain pain go away. For Jewels give her a break of pain even is it's just one Day.

thanks you guys...IRL i have my 15 year old daughter to help me as much as I ask her to...she does it willingly and i can't ask her for more...she is so sick herself...she still has her mono symptoms and is still very tired and lethargic...dr wrote a letter to the principal stating that for the rest of the school year she needs a modified schedule...she can be picked up by the bus before second hour starts, and then she asked to have her biology class bumped up to the fifth hour so she can go home after fifth hour and not have to do physical activity, which actually depletes her energy and causes her to be extremely tired with no way to recoup her energy to go to her next classes. So we are talking with the principal next week Monday or Tuesday so that we can get that passed as quickly as possible. As for her absences, they have all the drs notes telling them of her having mono and being under a drs care...there are only a handful of days that are "unaccounted for", still the vice principal did not inform me that he was going to talk to my daughter about that...he chose to talk to her first and scare her half to death that if she misses more school, he will call the truancy officers to investigate. Of course they should NEVER call the child into a room and bully them by threatening the child will have to leave the home and in my case i would lose my child foster parenting license...they have no right or cause to be bullying a student...and they say that it is the vice principal's duty to call children in to talk about truancy...and this was after her IEP when the said vp told everyone present that she was "back on track, no problems"...and then he bully's my child again with the same days that he had just said no problems? what is wrong with this picture??? so the stress of that is NOT helping the pain level...which is now dangerously high...I can't believe that the school would allow that kind of thing to a student BEFORE or even IF he should talk to the student. I guess I am really angry, and it is aggravating my level of pain too much...guess i will rely on my meds a bit more so i can get comfortable again...thanks for all the hugs...i guess i can see where the pain is coming from now better than before...i just can't get over things when it comes to my flesh and blood...other than my daughter, i have a great big church behind me...beside me...supporting me...but for the major part of the day I am alone at home...and only go out to go to the dr, the Therapist, or to the pharmacy...but i feel loved and handled with the greatest grace and tenderness...my family may not really want to keep contact with me...but it's their loss not mine...because God keeps those who are in solitary places and places them in families...and I have this huge family in my church...and every one of them that I know i love so much...because they give something so special when they come up and give me a hug, or places a hand on my shoulder when i am up at the altar beseeching God about something...or they ask me how I am doing on a given day...at times when i feel the loneliness more...what a gift...

anyway, thank you for taking time to touch my life with your kindness and your loving thoughts...they are much appreciated!!!

Jewels