It hasn't been this bad in a long time.
My neurologist prescribed a 5 day course of steroids to break the cycle - I'm on day 4 of that and it's not helping.
He also upped my dose of Xanaflex, which I use as a daily preventative. I'm already on the highest dose of Topamax, my other preventative med.
I've been taking imitrex and fioricet every day which offer some temporary relief but it always comes back and with the prednisone is wreaking some major havoc on my stomach.

I know my husband is sick of hearing about them.
I'm definitely sick of having them.
Even if I go to the ER they won't give me anything more than injected imitrex so I'm not bothering.
I can't call the neuro again till tuesday so I'm stuck and i'm supposed to go to a wedding this afternoon.

UGH - SO FRUSTRATED!

[I had no idea]

I am leading a very similar life. People can't see migraines or feel them like you do, so the pain must not really be that bad...it's just a headache, right?

Many people don't get it and many neurologists don't get it and they act like there is nothing they can do to help. It leaves us backed into a corner, in so much pain that there is little you can do to help yourself, and everyone ignoring you. I was on Topamax as well and then they said they didn't want me taking it because I am a thin person (I was only ever on 25mg & they wouldn't give me more). I've tried nearly every preventative medication in the book, as well as everything to treat the migraines. I often have them for multiple days in a row and have to take Relpax day after day. I was on Imitrex injections, but they gave me horrible side effects & Relpax seems to have less side effects, although it is not perfect by any means. So now they really can't think of anything preventative to put me on b/c they have tried everything without success. I am on beta-blockers for high blood pressure so who knows if that does anything for my migraines. I always get multiple migraines a weak with little relief. Nobody seems to understand that I can't stay in bed day after day. The docs seem like they don't understand how much this interferes with daily life and they are out of solutions so they just throw in the towel. Narcotics have worked for me, but good luck finding any doc that will give you them for migraines.

Very frustrating!

[Woundedheart1]

I live with chronic migraña its a part of my neurological condition NF1. I have found building up to a high butt ggeraputic dose of topomax each night prior to deep is a great preventive if ii get breakthroughs I have 2 bc of the limited amount of esch you van take. One is maxalt 10 mg and toe second I'd migrant nasal sprat apron the same dosage. However when i et a cluster series like you are having I take theeds promptly lay in a dark quiet room with an icepack. If people fervent had them they dont understand. Dont let him intimidate you inti feelings badvi know your pain.

[MirrorMirror]

Originally Posted by jadedmoonbeam

It hasn't been this bad in a long time.
My neurologist prescribed a 5 day course of steroids to break the cycle - I'm on day 4 of that and it's not helping.
He also upped my dose of Xanaflex, which I use as a daily preventative. I'm already on the highest dose of Topamax, my other preventative med.
I've been taking imitrex and fioricet every day which offer some temporary relief but it always comes back and with the prednisone is wreaking some major havoc on my stomach.

I know my husband is sick of hearing about them.
I'm definitely sick of having them.
Even if I go to the ER they won't give me anything more than injected imitrex so I'm not bothering.
I can't call the neuro again till tuesday so I'm stuck and i'm supposed to go to a wedding this afternoon.

UGH - SO FRUSTRATED!

I totally understand. I had one for 2 weeks straight once, and got so sick that i ended up having to drop out of the college I was attending and lost like 15 pounds. I was then on the highest does of Topamax, and taking the triptans did nothing for me, then even Fioricet wasnt working, and I kept throwing up from the pain, so nothing stayed down anyway. I eventually got multiple infusions to break the cycle. Stay strong! Dont let anyone get you down, maybe refer your husband to a book he could read on migranes so next time he might be more understanding? Its hard for people who dont experience them to understand the debilatating pain of a migrane, becuase they think its just a bad headache. To those of us who unfortunatly know the difference, I have heard it compared to labor in the brain from another sufferer. Hope you feel better soon aand dont experience another cycle anytime soon!