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Old Dec 06, 2014, 11:30 PM
XSleepingSiren21X's Avatar
XSleepingSiren21X XSleepingSiren21X is offline
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Location: Wisconsin
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For a while now I've had some trouble with joint pain in my wrist. First of all I should note that I have Ehlers-Danlos Syndrome so I naturally have joint discomfort and pain from time to time, depending if I overextend or being active with my body. However it's been a few months since I notice the constant pain, whether I have it resting or I'm continuously using my hands with things, in my wrist. I noticed that after a few months that it's started, the discomfort and pain felt like it was getting worse. After realizing it, I started to take some pain relievers and go with wearing a wrist brace that I owned back when I fractured the same wrist many years ago. When I told my family about the pain, none of us thought nothing of it, but when I noticed nothing was working, I looked up reason why it could be doing this and I found that with EDS patients, early onset osteoarthritis could be the cause. It's actually a common find in people like me with Ehlers-Danlos Syndrome and the fact that it could be possible I'm in a state of having signs of it makes me nervous. Of course I can't make a full prediction that it is and I can only be sure with a doctor, but it's a considered possibility. It concerns me that I'm only 21 and I'm showing signs of arthritis. It overwhelms me and makes me wonder where else I'm going to start showing complications. I'm really hoping that I'm not getting arthritis or possibly showing signs that my body is breaking down because of my EDS.
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Having complications with my EDSHaving complications with my EDSHaving complications with my EDSHaving complications with my EDS

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  #2  
Old Dec 07, 2014, 01:02 AM
geis's Avatar
geis geis is offline
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Fellow EDS'er here with early-onset arthritis. It's not a lot of fun, but there are ways to manage the arthritis, if that's indeed what it is. If you can take NSAID's, that's a good starting point. I took Celebrex for a while, and it worked really well for me. (Unfortunately, I had to stop taking it when I got ulcerative colitis, as it can make ulcers worse and started giving me really bad reflux.) I've gotten significant relief from steroid injections, too--they've given me as much as 9 months with no pain in the joint where I got the shot. Lidoderm patches help some, as does heat.

Are you doing PT already? I know it can be hard to find a PT who knows how to deal with EDS patients, but if you can find a good one, that can help a lot too.
  #3  
Old Feb 09, 2015, 08:34 PM
Anonymous200325
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Was just going to ask you, Siren, if you're taking an anti-inflammatory pain reliever. I'm sure you probably are.

I'm just hypermobile, not EDS, but I didn't learn until my late 30s that that's NOT a good thing and I discovered that I had lots of bad movement habits.
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