 |
| FAQ/Help |
| Calendar |
| Search |
|
#101
Mar 10, 2021, 07:42 AM
|
||||
|
||||
|
Morning,
Me and my teenager utilize Pinterest. It’s very convenient to create boards with our favorite food categories. Vegan Pastas Bento Box Asian Mediterranean Comfort foods Lunch ideas Vegan Salads Soups Vegetables Smoothies Desserts Gut healthy foods Easy plant based Gluten free or vegan breakfast ideas Healthy snacks
__________________
#SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
 Anonymous41006
|
|
#102
Mar 10, 2021, 09:02 AM
|
|||
|
|||
|
Thanks for this information @Cocosurviving ...
I'd never heard of a Bento Box so I googled it and am surprised to pfind a restaurant near me that has that. It sounds exceptionally healthy so I'm going to give it a try the next time I do a curb-side to go order! 
|
|
#103
Mar 10, 2021, 09:43 AM
|
|||
|
|||
|
Hi everyone. My first comment. I will do an introduction post when my brain fog clears a bit haha and tell you about myself. I also suffer fibromyalgia along with many other health problems and my mental health. I'm glad I've found a place to talk to others with same problems. Wishing you all well (((((gentle hugs)))))
|
| Anonymous32451, Anonymous41006, lizardlady
|
|
#104
Mar 10, 2021, 12:20 PM
|
|||
|
|||
|
#105
Mar 10, 2021, 04:11 PM
|
|||
|
|||
|
Quote:
hey liverpool mummy, welcome. how many children do you have?. |
| Anonymous41006
|
|
#106
Mar 10, 2021, 04:13 PM
|
|||
|
|||
|
I just finished dinner
chicken wings and fries... not as good as I hoped but was okay |
| Anonymous41006
|
|
#107
Mar 11, 2021, 02:56 AM
|
||||
|
||||
|
Yesterday (Wednesday) I made a lot of calls and returned emails. I’m excited and nervous about meeting my new immunologist. I hope he listens and doesn’t have an ego. I’m starting to pull through this dang sinus infection.
I ordered ginger lollipops for nausea, iPhone armband and more bujo stickers. I walked 1.24 miles. I’m planning on purchasing another pair of sneakers tomorrow. I purchased an air fryer and I’m excited about everything that can be cooked in it. Sending hugs  to everyone.
__________________
#SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
| Anonymous41006, lizardlady
|
|
#108
Mar 12, 2021, 06:23 AM
|
|||
|
|||
|
showered today and I am in ****ing agony with my back, especially the left side. it's friday though, so the plus side is I'm having mcdonalds
|
| Anonymous41006
|
|
#109
Mar 14, 2021, 03:45 AM
|
||||
|
||||
|
Saturday was decent. I never say my day is “great” and the term “good” makes me equally as uncomfortable. Why? I’ve had depression since I was 16 years of age. Depression is like any other chronic illness....chronically flaring up. I don’t like labeling my days as “great or good” because of the off chance I jinx myself. Yes, seriously and toxic positivity (which is gaslighting) will not change my view. I had a close friend with bipolar, asking about her day was a trigger.
Although I’m no longer in remission, my autoimmune diseases and rare diseases impact my life more than depression. I’m still cautious about labeling my days. Most of my flare ups happen after midnight. A few months ago, I was having a fun day. I was asked about my day and got caught up in the fun I had  I said, “it’s great.” I **** you not, that night I had a horrible Chronic Idiopathic Urticaria flare up. I actually don’t see the purpose of sales clerks who are complete strangers asking customers about our day. A simple greeting would suffice. I doubt these sales clerks wanna hear about my crappy insurance coverage and **** load of medical bills. I usually respond with, “I’m alive.”
__________________
#SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
| Anonymous41006, lizardlady
|
|
#110
Mar 14, 2021, 11:26 AM
|
|||
|
|||
|
I certainly hear you on all that @Cocosurviving ...
Often I pfeel as if I'm betraying myself (& my experience) by providing those stock answers instead of saying how I really pfeel. "Above The Dirt" has become my latest usual response ... Still pfeels like a bit of a betrayal though. This one cashier at the grocery store (I go at 6:00 a.m. to avoid crowds) carps and moans about all the crap she's dealing with as she's ringing me up. It's obvious the amount of pain I'm in as well as my struggles (mobility cart / two canes / difficulty ambulating) but on & on she goes ... Sometimes I want to tell her to STFU and to just be thankful that she's still able-bodied & able to work! Then I think well hell maybe we're all simply doing the best we can with what we've got ... It sure as hell can be absolutely pfrustrating as hell sometimes though! 
|
| lizardlady
|
 Cocosurviving
|
|
#111
Mar 16, 2021, 01:25 PM
|
|||
|
|||
|
I checked my SSDI account this morning and it stated that my application for disability is 90% complete.
Shouldn't be too much longer now. My attorney is right confident that they'll approve it. I'll be glad when everything is settled and in place pfor rizzle. In the meantime ... 
|
| lizardlady
|
| Cocosurviving
|
|
#112
Mar 17, 2021, 10:06 AM
|
||||
|
||||
|
90% complete sounds good pfrog. Fingers crossed for you.
|
| Anonymous41006
|
|
#113
Mar 17, 2021, 10:08 AM
|
||||
|
||||
|
I'm getting my first Covid shot today. Am a bit worried after reading it can trigger fibro or CFS flares. Cross your fingers for me folks.
|
| Anonymous41006
|
| Cocosurviving
|
|
#114
Mar 17, 2021, 04:54 PM
|
|||
|
|||
|
Pfroggy Pfingers Crossed & Also Sending Good Thoughts ...
|
|
#115
Mar 17, 2021, 05:19 PM
|
||||
|
||||
|
So far, so good with the shot. My arm is a little sore where I got the shot but feels the same as any other vaccine.
|
| Anonymous41006
|
|
#116
Mar 19, 2021, 06:05 AM
|
||||
|
||||
|
I’m very frustrated. Thursday, March 18th 2021, an urgent care clinic told me to go to a local hospital. The urgent care- was not able to help with the my Chronic Idiopathic Urticaria flare up.
Local hospital- Nurse practitioner did not know what to do and just checked my basic vitals. Male medical doctor- Verified my vitals. I was asked multiple times if I fell, hit my leg or was hurt by someone.  Me: “No, it’s called Chronic Idiopathic Urticaria. This just happens to be the worst flare up I’ve ever had.” Female medical doctor- Had a little knowledge. She was aware that dexamethasone, prednisone and triamcinolone would not help at all. The first two would only cause weight gain. She failed to know that also offering to give me hydroxyzine (which I do take for emergency  flare ups) would be a horrible idea being that I was at the hospital alone. Hydroxyzine- is a antihistamine generation one sedative.  Being recommended and prescribing a medication (Doxepin) with possible side effects of: thoughts about suicide or dying * attempts to commit suicide * new or worsened symptoms of anxiety * feeling very agitated or restless * panic attacks * trouble sleeping (insomnia) * new or worsened irritability * acting aggressive, angry, or violent * acting on dangerous impulses * an extreme increase in activity and talking (mania) * other unusual changes in your behavior or mood Xolair - Been offered this by multiple immunologist and it has too many “possible” side effects that could make other autoimmune diseases I have worse. Hair loss and increased pain. I also have Fibromyalgia and Alopecia. I don’t need the possibility of more hair loss or more pain. Me: I decline Xolair and Doxepin prescription
__________________
#SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
| Anonymous41006, lizardlady
|
|
#117
Mar 19, 2021, 06:12 AM
|
||||
|
||||
|
I’ve been asked about getting a Covid-19 vaccine by my primary care provider and new immunologist.
My thoughts: First let’s focus on assisting me with my current chronic illness flare ups. I’ve been thinking  about it however I’m not interested in opinions from able bodied people or individuals without the exact rare diseases and autoimmune diseases that I have. Our situations are not the same.
__________________
#SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
| Anonymous41006, lizardlady
|
|
#118
Mar 19, 2021, 09:23 PM
|
||||
|
||||
|
Today was better. My appointment with my new immunologist went good. All the news was not good but I appreciated that he thoroughly went over 5 pages of labs line by line. I do feel he’s very knowledgeable, it’s still important to me that all my providers not lash out like a narcissist when I decline a treatment recommendation. At the end of the day they need to respect my final decisions. It’s my body and I’m not willing to roll the dice on medications that have severe side effects. I have a lot of medical discussions to make very soon. I’m just trying to relax this weekend and take it easy.
__________________
#SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
| Anonymous41006, lizardlady
|
|
#119
Mar 22, 2021, 08:43 AM
|
|||
|
|||
|
Happy Monday!
Me & The Girls ... - Album on Imgur Volume "On" pfor a special message pfrom me & the girls ... PS: The volume button is kinda pfaint but located in upper right corner of video. |
| lizardlady
|
| lizardlady
|
|
#120
Mar 23, 2021, 07:54 AM
|
|||
|
|||
|
Sometimes, more often than not, I hate my life.
That's all. Have a good day. 
|
| lizardlady
|
|
#121
Mar 25, 2021, 05:35 AM
|
|||
|
|||
 
|
| lizardlady
|
|
#122
Mar 26, 2021, 06:38 AM
|
|||
|
|||
|
suffering from the shower. whoooo
well, actually I was suffering before, shower just made it worse.. |
|
#123
Mar 27, 2021, 02:38 PM
|
|||
|
|||
|
Just wanted my chronic pain pals to know that I will be taking a break so I can pfocus on my physical health issues.
I've requested my account to be closed because I don't want it left open and unattended. Not sure when I'll be able to come back, but when & if I'm able, I will let y'all know it's me when I return. In the meantime I'll keep y'all in my thoughts & prayers ... Love, Peace & Safe Journeys!
|
|
#124
Mar 28, 2021, 07:54 AM
|
||||
|
||||
|
Oh pfrog! I respect your choice, but damn you will be missed.
|
| Anonymous41006, Pflowers
|
| Pflowers
|
|
#125
Mar 30, 2021, 05:15 PM
|
||||
|
||||
|
just wanted to stop by and give you all a big hug. I am falling daily seeing a neurologist on the 9th I literally dont have the energy to be on PC .. Take care of yourselves
__________________
Helping others gets me out of my own head ~ |
| Pflowers
|
| Pflowers
|
My Support Forums is the online community that was originally begun as the Psych Central Forums in 2001. It now runs as an independent self-help support group community for mental health, personality, and psychological issues and is overseen by a group of dedicated, caring volunteers from around the world.
Linear Mode
