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  #1  
Old Mar 22, 2017, 08:00 PM
Gethprime1977 Gethprime1977 is offline
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Im a 39 yr old male from Texas. Back in mid Jan 2017 I suffered what I think was an excruciating anxiety/panic attack. Since then my mental health has deteriorated significantly imo. I have had constant panic/anxiety attacks throughout the day. Especially at night right when I am about to go to bed and sleep it gets really worse. My nerves/muscles go haywire to a point I cant sleep for days. The longest I havent slept (barely 1 hour sleep total) was just under 3 days. My depression has gotten worse since then. Me and my mother have had a falling out a few times over me lying to her about having a job. Yes I acknowledge I was in the wrong for doing such. But, recently I was diagnosed with a probable case of Syringomyelia (cyst in my spinal cord). I also suffer from Type 2 Diabetes along with scoliosis (born with) as well. She places blame on me about not having a job. I try but my scoliosis is so bad that I cant walk very far without being in pain. Couple that with my recent diag of Syringomyelia, its pretty hard on me both mentally and physically. Suffering from constant nerve and sometimes muscle issues. These are some of the issues that are at hand between the spats me and my mother have. I also have had other issues getting in contact with my primary Doc. Ive been unable to contact her quite a few times over the phone. Ive been hung up on by her answering service. And her receptionist says she doesnt/cant talk to me when the office was basically empty. I went to the ER once and they referred me to a spine doctor/neurosurgeon. I got a call from the Neurosurgeons office a few days later saying everything should be fine and my insurance should cover it. They called barely a day before the actual appnt day and tell me my insurance wouldnt cover it, and they would call me back. They never did.
Also my anxiety/panic attacks/depression have gotten so bad that I cannot sleep usually more than 1-2 hours at a time. It has been very rare since late Fen 2017 since I have slept more than 3 hours during one time.
I also have been suffering from constant nerve pains (neuropathy) and muscle spasms/twitching/etc. These things have also contributed to my decline in sleep. Which of course made my depression worse.
There have been also times when I try to take a short nap because I was tad sleepy, I would wake up because of a violent tremor/jolt/etc. I dont know why or what causes it, but it just happens.
I also had a few bouts of orthostatic hypotension. One time a few weeks ago I was sitting on the floor cleaning out/organizing a dresser drawer. After I was done and stood up, I started feeling dizzy a bit. So I walked over to the couch to brace myself on the arm rest. The dizziness got so bad that I felt the the inside of my arms twist get really tense. Almost like it was being twisted beyond the point it was unbearable.
The arguments me and my mom have, or disagreements as some of you might put it have gotten progressively worse with each one She accuses me of not trying to contact my Doc. I try to tell her I have tried constantly by phone, in person, and through her answering service (with no call back and been hung up on a few times). She yells at me a lot. I have been suffering from worsening depression ever since I tried to reason with her. I told her, reminded her about my scoliosis and my Syringomyelia and diabetes put me in near constant pain, sometimes to a point of it being unbearable. She was even with me when the Doc diagnosed me with poss Syringomyelia. What does she tell me? " I dont give a damn!", and she walks off. Those 5 words really put me down deeper into the darkness Ever since she uttered those words, my bouts of depression have gotten longer and more dark. This made me think of what I said to her when she was crying hysterically when my dad died. She wanted to kill herself and I snapped off at her for talking like that. I told/asked her if she killed herself....If she kills herself, what would happen to my grandmother who she was taking care of?
But hearing her utter I dont give a damn about my potential life threatening conditions, my feelings/depression/anxiety/panic attacks have gotten worse. I feel worthless and I feel I cant accomplish anything. I mean I dont even have the desire as I used to like playing games on my PC or watch TV. After being diagnosed with Syringomyelia and seeing my CT scans/x rays/MRIs of my spine and seeing a section of my spine (between my shoulderblades being nearly segmented by a half.......couple that with the words my mother uttered about my conditions. Then its understandable why I feel like Im more worthless than trash I tried to be upbeat but its really hard because of being constantly put down by my mother and because of my debilitating medical conditions.
Hugs from:
Fuzzybear, little turtle, MickeyCheeky, woe-be-gone

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  #2  
Old Mar 23, 2017, 08:57 AM
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Clara22 Clara22 is offline
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Hi Gethprime,
I am sorry you are going through this. Do you think that the your concerns about your untreated cyst in the spine trigger your panic attacks? What could happen if you do not get the surgery?
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Hope is definitely not the same thing as optimism. It is not the conviction that something will turn out well, but the certainty that something makes sense, regardless of how it turns out. Vaclav Havel
  #3  
Old Mar 23, 2017, 09:08 AM
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MickeyCheeky MickeyCheeky is offline
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I'm sorry..
  #4  
Old Mar 23, 2017, 09:33 AM
Gethprime1977 Gethprime1977 is offline
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Its more like the concerns of what can happen after the fact (surgery). It can go bad/good. I said probable case of Syringomyelia because when I went to the ER for neck pains I got the image CD and paperwork detailing the results. It said "findings likely consistent with Syringomyelia" I read about it on various sites from google.
  #5  
Old Mar 23, 2017, 10:10 AM
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Fuzzybear Fuzzybear is offline
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I'm sorry
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  #6  
Old Mar 23, 2017, 12:17 PM
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Clara22 Clara22 is offline
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Hi
I think you have syringomyelia, when they write the reports of RXs and other studies they always use terminology like the one you citated. Beyond the fact that your health insurance does not cover your surgery (according to the surgeon you visited) perhaps you could get a second opinion. Do you have a social worker working on your case? I am asking this because once while in the US I needed a very expensive practice. First it stemmed I would not get coverage for it but then a hospital social worker took my case, she fought for me, and finally the health insurance paid for it.
Have you make the decision to have the surgery or you have doubts on it?
Best wishes
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Hope is definitely not the same thing as optimism. It is not the conviction that something will turn out well, but the certainty that something makes sense, regardless of how it turns out. Vaclav Havel
  #7  
Old Mar 23, 2017, 01:30 PM
little turtle little turtle is offline
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gethprime---those panic attacks are awful...I am sorry that you are suffering...
  #8  
Old Mar 23, 2017, 01:59 PM
Gethprime1977 Gethprime1977 is offline
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Quote:
Originally Posted by Clara22 View Post
Hi
I think you have syringomyelia, when they write the reports of RXs and other studies they always use terminology like the one you citated. Beyond the fact that your health insurance does not cover your surgery (according to the surgeon you visited) perhaps you could get a second opinion. Do you have a social worker working on your case? I am asking this because once while in the US I needed a very expensive practice. First it stemmed I would not get coverage for it but then a hospital social worker took my case, she fought for me, and finally the health insurance paid for it.
Have you make the decision to have the surgery or you have doubts on it?
Best wishes
Not yet. Im in contact with a neurosurgeon now about 40 mins from me. He wants me to get another set of scans (MRI of my thoracic spine, CT Scan of the entire length and a 2 shot pic (standard X Ray) of the entire length just to make sure its not a true diag. Just waiting on the call from the Hospital where I am to get the scans done at to call me.
  #9  
Old Mar 23, 2017, 08:52 PM
Gethprime1977 Gethprime1977 is offline
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me and my mother got into it again. She was constantly yelling at me about getting a job and she knows about my severe scoliosis and the syringomyelia. She went with me to the ER as I had said before. Now shes telling me she didnt hear anything/know anything the doc said. Which was complete and utter BS. She was asking him questions about the diag when she was there, even I told her when I read about it on the net. She was poking me so bad about the doctors thing again. The pokes (constant barrage of the same damn questions to which I told her the answers) were so much, that my nerves were starting to go haywire all over my body. I nearly went nuts. My PVCs and heart palps started to come back a bit during this ordeal. As like yesterday she was doing the same thing. I had a hard time sleeping because my nerves were so shot parts of my body were jerking a bit when I was trying to sleep, but barely managed about 3-5 hours of broken sleep. It was not fun. I had to take her to her job interview early today. My eyes were heavy and all driving back home because I didnt want to wait at the employer for 2-3 hours for her orientation. Then I had to drive back to pick her up. Not even a thank you from her. Not even a stop at a McDonalds for a drink or something. Im still thinking and looking at all the options at my disposal for this BS she is putting me through.
  #10  
Old Mar 24, 2017, 12:39 AM
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Clara22 Clara22 is offline
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Quote:
Originally Posted by Gethprime1977 View Post
Not yet. Im in contact with a neurosurgeon now about 40 mins from me. He wants me to get another set of scans (MRI of my thoracic spine, CT Scan of the entire length and a 2 shot pic (standard X Ray) of the entire length just to make sure its not a true diag. Just waiting on the call from the Hospital where I am to get the scans done at to call me.
I am glad you are getting another doctor
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Hope is definitely not the same thing as optimism. It is not the conviction that something will turn out well, but the certainty that something makes sense, regardless of how it turns out. Vaclav Havel
  #11  
Old Mar 24, 2017, 12:41 AM
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Clara22 Clara22 is offline
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Quote:
Originally Posted by Gethprime1977 View Post
me and my mother got into it again. She was constantly yelling at me about getting a job and she knows about my severe scoliosis and the syringomyelia. She went with me to the ER as I had said before. Now shes telling me she didnt hear anything/know anything the doc said. Which was complete and utter BS. She was asking him questions about the diag when she was there, even I told her when I read about it on the net. She was poking me so bad about the doctors thing again. The pokes (constant barrage of the same damn questions to which I told her the answers) were so much, that my nerves were starting to go haywire all over my body. I nearly went nuts. My PVCs and heart palps started to come back a bit during this ordeal. As like yesterday she was doing the same thing. I had a hard time sleeping because my nerves were so shot parts of my body were jerking a bit when I was trying to sleep, but barely managed about 3-5 hours of broken sleep. It was not fun. I had to take her to her job interview early today. My eyes were heavy and all driving back home because I didnt want to wait at the employer for 2-3 hours for her orientation. Then I had to drive back to pick her up. Not even a thank you from her. Not even a stop at a McDonalds for a drink or something. Im still thinking and looking at all the options at my disposal for this BS she is putting me through.
I am sorry for this. Maybe your mom has a mental health condition herself
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Clara
Hope is definitely not the same thing as optimism. It is not the conviction that something will turn out well, but the certainty that something makes sense, regardless of how it turns out. Vaclav Havel
  #12  
Old Mar 24, 2017, 12:59 AM
Gethprime1977 Gethprime1977 is offline
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That's what I'm thinking. Maybe its called elitism. Think she knows everything.
  #13  
Old Mar 24, 2017, 08:50 AM
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Clara22 Clara22 is offline
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But this is her house, her rules. And, it is easier for you to change than for her
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Clara
Hope is definitely not the same thing as optimism. It is not the conviction that something will turn out well, but the certainty that something makes sense, regardless of how it turns out. Vaclav Havel
  #14  
Old Mar 24, 2017, 12:12 PM
Gethprime1977 Gethprime1977 is offline
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actually its mines and hers
  #15  
Old Mar 24, 2017, 01:33 PM
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Clara22 Clara22 is offline
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It is good that you share property, so you can have a say. Why does not treat as an equal? You are an adult that happens to be her son
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Hope is definitely not the same thing as optimism. It is not the conviction that something will turn out well, but the certainty that something makes sense, regardless of how it turns out. Vaclav Havel
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