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  #1  
Old Aug 19, 2008, 07:57 PM
Soveh Soveh is offline
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Location: Utah, USA
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It all started yesterday, my husband went to a neurologist. This morning he went for blood tests, tomorrow he goes for an EEG and then for an MRI and an MRA...I am scared to death and so is he, this is starting to affect my job..... Signed, anxious and terrified

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  #2  
Old Aug 19, 2008, 08:11 PM
kebsfroggy's Avatar
kebsfroggy kebsfroggy is offline
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Member Since: Aug 2007
Location: Lily Pad, USA
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I do understand.

I'm not sure which is worse all the testing with no definite answer or hearing the Dr. tell you what you both expected.

As a frog of little brain the only thing I can suggest is

For now....give each other a hug tonight and prey for the light of another day. In the morning when you both awake give each other another hug for you get to spend another day together.

What to do???
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kebsWhat to do???
  #3  
Old Aug 19, 2008, 08:12 PM
Anonymous091825
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Soveh
i am hoping your husband is ok
those are big tests
if you want to say whats they are looking for I am listening
  #4  
Old Aug 19, 2008, 08:23 PM
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Einna Einna is offline
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Member Since: Aug 2008
Posts: 69
Wish I could be there just to be there for you. These are very hard times - the tests, the waiting, then the diagnosis. Know that folks here really do care and listen. Sounds so blah... but keep up with the daily routines as much as you can stand... sometimes the same-o, same-o... helps to think about something else even if your heart and mind just isn't into it and it seems so empty.
Remember, you are not alone.
  #5  
Old Aug 19, 2008, 08:33 PM
Soveh Soveh is offline
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Member Since: Jul 2008
Location: Utah, USA
Posts: 38
He started taking Seroquel about 8 months ago. Now he has tremors, his psychiatrist put him on Artane to ease those tremors, but it isn't working. He stands up and if he isn't careful, he blacks out. Sometimes it isn't ataxia, his muscles just refuse to hold him up and he goes down...all this since starting on the Seroquel...he DOES need this medicine otherwise he has no impulse control and goes into violent rages....we are BOTH scared.
  #6  
Old Aug 20, 2008, 03:59 AM
kipper55 kipper55 is offline
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Location: Cali
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Soveh
I hope everything goes well w/ your husband
sounds like alot of big tests and lots of waiting
you can always break away think about something else more positive while you're going through all those routines
hope it all works out What to do???
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I'm just a girl I guess. Walking through on auto-pilot,stuck in pause while everyone else is in fast forward,with the world of color..in black and white for me
  #7  
Old Aug 20, 2008, 07:33 AM
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Einna Einna is offline
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Member Since: Aug 2008
Posts: 69
Soveh,
I'm not well versed in the medication area... what works with what - but hang in there, both of you - be sure to tell the doctors everything so that they can more accurately put the pieces of the puzzle together to help your husband out. Even if you may think it's a teensy detail, it can be enough to give them a clue as to what to do. The doc's aren't gods, but they'll do their best with what they know.
Many, many hugs to you both,
Einna
  #8  
Old Aug 20, 2008, 08:24 PM
Doh2007 Doh2007 is offline
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Member Since: Sep 2007
Posts: 1,383
That sounds frightening. It sounds like he's having side effects. There are other drugs the doctor might prescribe once he's ruled out some things. Best wishes. I know it's hard.
  #9  
Old Aug 21, 2008, 06:24 PM
Soveh Soveh is offline
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Member Since: Jul 2008
Location: Utah, USA
Posts: 38
The problem is, they don't have any idea what they are looking for, much less what they might find...we are both terrified. He starting having tremors before he got on the Seroquel, but after a few months they started to get worse. It's getting to the point where I can't hardly sleep at night, because I don't want to miss a minute of being with him and I am worried to death about him---when I can't sleep, I lay there next to him and just watch him....i feel like I'm going crazy---I don't want to go to work or anything that takes me away from him.
  #10  
Old Aug 22, 2008, 08:39 PM
nowheretorun nowheretorun is offline
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hi Soveh, it sounds very intense for you.. have you been able to rest? hoping you are feeling safer now..
  #11  
Old Aug 23, 2008, 12:20 AM
Soveh Soveh is offline
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Member Since: Jul 2008
Location: Utah, USA
Posts: 38
Not really well nowhere, I think I have slept...maybe 5-7 hours since last Friday. Tuesday he had labs, Wednesday it was an EEG, Thursday it was suppposed to be the Cardiologist, but it was cancelled until today(friday the 22nd)...the Cardio is sending him for more tests next week, he's wearing a heart monitor until tomorrow, then he's supposed to see the Cardio again Monday for an ECG, Thursday the 28th he'll finally get the MRI/MRA that the Neurologist ordered....I am depressed, sad...I don't think I can live without him...he has been my rock for 7 years now. He's brought me out of a shell I went into when I was about 15 y/o, he has taught me that not all men are bad...he has taught me so much....
  #12  
Old Aug 23, 2008, 09:19 AM
nowheretorun nowheretorun is offline
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Location: Rocky Mtn High, love all :)
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this is a lot Soveh... keep the faith and hope, even when life goes bad and we ask why why why... hope, faith and love are the boat you need in the darkest times... sending you hopes for healing and faith..
  #13  
Old Aug 29, 2008, 06:41 PM
Soveh Soveh is offline
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Member Since: Jul 2008
Location: Utah, USA
Posts: 38
Still not sleeping well, I feel an awful wreck...he's got an MRI on the 3rd of Sept.....wouldn't you know it, my 44 b-day!
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