[Inny2009]

I posted on the health support a couple times about my health issues, needing a laprascopy (female issues) as well as general overall health issues that no doctor has been able to diagnosis for over 2 years. I recently went back to my internist (i have no health insurance but they insisted i come). I ended up seeing the physicans assistant who was covering for my doctor. Im so glad i did..i guess. He asked me a bunch of questions. Did my reflexes, pressure points and had me do things like walk on my toes and stand still. I failed all of it completely. I have no reaction to reflexes or pressure points and can no longer do those other simple tasks without falling over. He said that what i have very well could be a neurological disease and that what i have is progressing really fast at this point and im in need of an immediate diagnosis and wants me to go to a large teaching hospital near where i live. Not that i can because now i was just denied today for medical assistance for making too much money (i make 350 dollars every two weeks). The only way i can qualify is if my doctor deems me disabled (at 22..this is getting so much better). I was wondering if it IS a nuerological disease would that explain why I keep getting worse but my blood tests keep coming out relatively normal? Can nuerological diseases cause multiple body mishaps like enlarged lymph nodes or reproductive organ failure along with other issues? I tested negative for the ANA (autoimmune disease test) so i dont know if that is able to rule neuro diseases out either. I was wondering if it might all be connected or im just a physical failure. Im starting to worry about something like multiple sclerosis, due to my weakening of muscles and inability to be stable in walking and what not. Please dont think im asking for a diagnosis im just kinda ranting and asking questions. My work is getting really angry at me for being slow (im a housekeeper). Im finding that im getting more bad days than good days and i can no longer keep up in anything i try and do. They know of my health issue, i told them after i had an emergency doc app made but that doesnt make them any more understanding...I just used to have a couple good days where i could walk like normal and use my hands without shaking and all that jazz. But now it seems no day passes by where i dont shake and drag. I told my husband its like im trying to wade through mud. My mind is foggy and i can no longer comprehend some things. ITs amazing im actually typing this. Yesterday i couldnt even spell sunday to save my life. I guess todays a good day then I can spell sunday! Thanks. ((((Everyone))))

[shezbut]

Inny2009,

I'm sorry that you're having such a rough time. Honestly, I don't know if the ANA test can rule out diseases like MS. I *think* that MS can be difficult to diagnose, as it often goes into periods of remission. I have taken care of several people with MS, as a CNA. I would advise you not to look too far into the list of possibilities.

So many different illnesses can cause different symptoms in different people. Really! I definitely understand your desire and thirst for understanding what's wrong with you. (I've been there myself, several times) BUT, I'd advise you to go to top doctors to find out what's happening. Personally, I wouldn't even take cost into consideration. You need to take care of yourself. With these things getting in the way, you've got a major problem that needs to be figured out before you can start to worry about how you will pay the bill. You deserve to get answers to your problems.

Best wishes to you!

[Inny2009]

Your right, i cant focus on one thing..its so hard not to though when no one knows what is going on with you so its like i grasp at a disease like grasping at straws just trying to figure out whats going on with me. Im a CNA too and that really really doesnt help...not only do i know too much information but ive seen diseases..especially neurological ones at work and they arent pretty...and im terrified. Absolutely, off my rocker, through the door petrified. Im 22 and my doctor just told me i very likely have a neurological disease that can...and probably will render me unable to take care of myself. I dont want that..not that anyone would of course...I called my doctor today to let them know i have no insurance but they still want to me go to the appointment july 2nd and i will get a reference to the larger hospital..im guessing...its just ive had this mystery disease for over two years and i cant take it anymore im gonna scream....i just want to know what it is...ill stand on my head(ill try) ill try and run up and down roads, quack like a duck...ill do whatever he asks me to do to get a dang diagnosis..two years of people calling me crazy, yelling at me and making fun of me for not being able to do things i should be able to do or the guilt, massive extreme guilt for not being able to take care of my son by myself. I should have waited for a diagnosis before bringing him into this world. I dont regret him for a second!!!!! Im just afraid as his mother i failed him and thats the last thing i want. I love him soo much and i want whats best for him but a useless mother to weak to get off couch to tuck him in at night is just wrong. sorry..now im having a pity party ....lol i cant seem to just be happy and be done with it.

[shezbut]

((((Inny2009))))

Gentle hugs and very best wishes to you ~ I will keep you in mind. Chances are that you won't immediately get answers on 7/2. Practice the patience Whoooo...that takes time...I suck at that skill! LOL!!

[Inny2009]

thanks im not expecting any answers for awhile yet..and definitely not now! Im really upset because i just talked to my internist yesterday and they want to send me to a clinic where they take uninsured people which i can understand about the no insurance thing but this clinic has a 2 month waiting list and it is well known that they are only good for minor things if that...im going to be taking some action my self because obvivously no one wants to help me. Im getting mad and sicker and im sick of sitting around shaking my head in obdience and just not getting anywhere...I think my claws are going to be coming out very soon.

[Perna]

I think you have to have the tests, no matter about work or anything else as you aren't functioning well enough for a "normal" life. Whether you can afford it or not or whether work will end up laying you off and/or you may have to go on disability; those things are in the future but your problems now are here now and need to be sorted out. There is nothing whatsoever to be gained by putting off the medical tests or guessing about what their results might be and whether it all fits together, etc. If the next step is neurological tests, then you need those and the neurologist can interpret the results. The physician's assistant just did preliminary stuff, go get the tests.

[shezbut]

Originally Posted by Inny2009

thanks im not expecting any answers for awhile yet..and definitely not now! Im really upset because i just talked to my internist yesterday and they want to send me to a clinic where they take uninsured people which i can understand about the no insurance thing but this clinic has a 2 month waiting list and it is well known that they are only good for minor things if that...im going to be taking some action my self because obvivously no one wants to help me. Im getting mad and sicker and im sick of sitting around shaking my head in obdience and just not getting anywhere...I think my claws are going to be coming out very soon.

aaargh! How frustrating that must be. What area do you live in? There may be other clinics somewhat nearby....it's worth a shot! I'd definitely recommend making an appointment with that clinic now while you're looking for someone else to take you sooner. Sometimes, times flies by. Even in misery.