Any others with lupus and lupus related illnesses?

I've had lupus since 1998 and lupus related kidney issues for several years now. I was just wondering if there are others like me out there? If so and you want to talk you can PM me or leave a post here.

Healthy thoughts,

BlueEyedMama

I have some chronic autoimmune issues... not yet too bad. Somehow learned to deal with them I know there are others with lupus here And they will reah out. Glad you are here

I have lupus with negative anti dsdna. That means I don't have a lot of kidney involvement. I just have things like severe fatigue, constant deficiencies, pains and aches, getting every sniffle and cold that will last for weeks or turn into pneumonia, reactions to exertion and sun sensitivity.

I am in a good spell since a few years with a lot, not much pain, a little better not getting sick all the time, I can tire myself out without getting fevers and end up in bed, I tolerate sun in the shade. On the other side, the deficiencies run wild.

I am not in any treatment else than the connected Hashimoto's. I opted out of prednisone treatment, I'd rather die than have it.

My permanent roommate is multiple sclerosis. Does that count?

I was just going to write a lupus/autoimmune related post and you beat me to it.

I was first diagnosed with ulcerative colitis when I was about 28 years old. I've had the symptoms for many years before that.

Then in 2014 I was diagnosed with Lupus after a doctor seeing that tell tale rash on my face and a crazy high ANA.

I wonder if I've had lupus all along and that caused the ulcerative colitis or if the ulcerative colitis made me vulnerable to lupus.

I hear that when you have one autoimmune disease, you can wind up with others as well.

I am also being tested for RA. RA runs in my family. My joints always hurt.