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#1
Jun 16, 2009, 11:35 AM
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I have partial complex seizure. My symptoms are more like a blank stare and a fainting will occur. It looks alot like I'm sleep if you sitting up. It can last up to a mintue to 5 mintues. At the aftermath is the worst part because I wake up confused, poor memory, tired, weakness throughout my body and a pounding heavy headache. I don't understand why these few weeks I've been having more random seizures. Usually my seizures come about from not taking my medication or not taking them at the usual time. It could also be physical strain from working outside or working out for too long. Lately I've been doing things right and on time and still my seizures occurs and it is becoming so frustrating because no matter how well I take care of myself the happen anyway. Just a few days ago I had a short seizure while in the middle of having sex with my boyfriend. OMG that was so embarrassing!!!!! Then last night after dinner I was in bed watching tv and before I knew it I had another one, my little sister who is 13 had to take care of me. Here are some of my questions and if anyone knows anything about seizures please respond and help me out.
Does seizures occur more often because you're on your period? How do you manage your emotional stress? How do you not feel like such a burden to those who must watch over you while you're having a seizure? How do you deal with the embarrassment and shame? |
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#2
Jun 16, 2009, 12:47 PM
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From what I know...
Yes, hormonal changes can trigger seizures though it doesn't happen all the time. Any kind of hormonal influx can be a trigger from a period to orgasm or anything in between. If you find yourself getting stressed out and know that is a trigger then try square breathing...you inhale and count to four (in your head) then exhale to the count of four...then inhale to four and exhale to four. Do this as long as it takes for you to calm down. If the people you love and that love you know that you have an issue, then they probably don't feel like it's a burden to take care of you and watch over you when you have a seizure. As for being embarrassed...don't worry about it...we all do things when we are in a concsious state that are probably a lot more mortifying than what happens when you seize...embarrassment is a state of mind, you can't help what's happening so embrace it until you get through it...then get past it... Make sure you take your meds and take them at the same time every day and watch your diet... Hugs, Stormy |
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#3
Jun 16, 2009, 01:39 PM
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Hi,
Stress can sometimes cause seizures, but it depends on what your diagnosis is. I urge you to go to or call your Dr. right away. You may need a medicine change. I know it's hard not to be embarrassed when you have a seizure, but the people who take care of you don't think one bit less of you. Your family, boyfriend and friends know you and care for you. It's not an imposition. My ex-husband had seizures. It was just part of our lives. I didn't think any less of him and it had no bearing on our break-up. Again, please call or see your Dr. right away. I hope things settle down very soon. January
__________________
I still dream and I still hope, therefore I can take what comes today. Jan is in Lothlorien reading 'neath a mallorn tree. My avatar and signature were created for my use only and may not be copied or used by anyone else. |
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#4
Jun 16, 2009, 05:37 PM
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Please check in with your neurologist and bring him/her know up to date on what is happening with you.
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#5
Jun 17, 2009, 11:00 AM
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Quote:
Stress is a huge culprit of seizure activity. Different techniques of managing stress work for different people. Some sz's are triggered by sex. Some by exercise. Many by emotional stress. Poor sleep is a trigger for many. Drinking alcohol or using drugs is also a trigger. Not just recreational drugs, but many over-the-counter mends and prescriptions. Depending upon the AED (anti-epileptic drug/s) that you take, you may be seriously limited in med's that you can take. For that reason, all doctors must know the meds you take, and breakthrough complex partials. The embarrassment and shame suck. I'm sorry.  We really shouldn't feel ashamed of the abnormal brain activity. In many cases, we can't control it. It isn't our fault. Paying attention to your personal triggers is a biggie, and avoiding (or controlling) those as best we can is your responsibility. Talking w/ the doc about your recent sz increase is also your responsibility. If he/she isn't a lot of help or supportive, look elsewhere for a more compassionate and helpful neurologist or epileptologist. People don't necessarily have to watch over you during a complex partial. It depends upon where you are & your typical activity when one hits. Really, just keeping an eye out for you, to be sure you don't walk out into the middle of the road or start playing with knives or stove burners (that type of thing), and gently guide you away from those things is only real necessity. Also staying with, until you regain full consciousness, would be helpful. They can reassure you that you're okay ~ you didn't do anything "crazy", etc. Feel free to PM me ~ I've got lots of experience in this area. Hugs to you! Shez 
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