[Shadowghost]

This past Monday I had a seizure. Didn't know what it was at first. Wound up going to the hospital where they gave me every test known to man. They repeated some tests. All the tests came back negative. The only thing they are sure of is that I had a seizure. There's no history in the family of epilepsy, or heart disease, nothing that could cause seizures. Has anyone on this forum ever heard of anything similar happening to anyone? At the hospital, they gave me x-rays, an MRI, a CAT scan, stress test, tilt-table test(twice with the tilt table, once with isopro), an EEG, EKG's, blood tests, they all came back normal. I never had seizures before in my life. Was always the healthy one in the family. Any advice??? Anyone???

[Fresia]

I hope you are feeling ok now. I know this must have been scary.

Did you have any indication it was coming on before it occurred? Did anything happen that day, unusual (lights, foods, smells, sounds, sights)? Some times there are pre-indicators (not always), this can help you in the future make sure you are in a safe position (lying down with something soft under your head) and to tell someone to get help. Some times they just pass without incident but should contact doc about it even if so.

My experience has been friends and animals with seizures, varying degrees and onset in life. It could be a one time incident or may continue, one never knows. If they continue and depending on frequency, to discuss treatment options with your physician. One friend had one and never again; another would have them every few years; another was epileptic with multiple bouts daily and was on medication. There are so many reasons and causes. Treatment depends on many things. Hopefully it is one time incident and has passed.

Be sure to take good care of yourself, be safe, and be in contact with your doc. Sending well wishes meanwhile.

[Shadowghost]

Thank you, Fresia. The only indicators I had, and I didn't recognize them as indicators beforehand, were feelings of diziness and nausea. Before the nausea and diziness, I had this weird sensation, it was like I had a massive caffeine rush. That feeling morphed into the diziness and nausea, and when that happened, the intensity of those feelings sky-rocketed. Not more than two minutes later, I had the seizure. I don't remember the seizure, all I remember was I was at the front door, reaching for the door-knob, which I couldn't reach, for some strange reason, then I was coming to, sitting on the floor with my brother holding me by one arm while my mother was holding the other. Not to restrain me, but to support me. I had a bout of incontinence while I was out. The doctors couldn't find anything with all the tests they ran. So hopefully this was just a once-and-done event.

[ECHOES]

I would follow up with a neurologist to see if you can find a better explanation for why this happened.
Also, should this should happen again, you would already have a neurologist on board.

[shezbut]

I agree with Echoe's response to your latest post.

It's good that all of the tests came back normal. Your description does sound like a tonic-clonic ("grand mal") seizure. Allergies can cause them, as can many different medications. If those things have been ruled out, I'd recommend getting a VEEG. EEG's aren't always picking up a good line of activity in the brain. A video recorded EEG, usually lasting an hour or so, so they can see your brain activity in sleep, wakefulness, light stress, and being "normal".

For future reference, a small pillow under your head. Loosen tight neck gear (buttons, collar). You don't want to be held down ~ someone could get seriously hurt. People can help by easing your body down into laying position (on your back), that's helpful in avoiding injury. I'd also recommend someone staying with you until you've become fully conscious and have regained strength.

Best wishes to you ~ hope that you get answers & treatment very soon. Please do see a neurologist or epileptologist to find the answers.

[iluuvpups]

I have a girlfriend who has had 3 seizures in her lifetime. I think she's 47 years old. She had one a few weeks ago. The last time previous to that was 8 years before. She's had every kind of test and they have never found a reason for it. She is on anti-seizure meds since the last one I think. Sometimes the medical profession just can't find a cause for things. They don't know everything unfortunately.

[Shadowghost]

Sometimes I think science and medicine are closer to being an art than they are "hard science".

[shezbut]

Originally Posted by Shadowghost

Sometimes I think science and medicine are closer to being an art than they are "hard science".

Very true Shadowghost! There are always variables in different people's bodies. Some people react well to some meds, some see no change, and some react dangerously. Up and down and all around. It is no fun going through med changes, as it almost always brings up something! Add variable hormones and seizure control really is an artform.

[Jenn1fer82]

I've lived with a seizure disorder for the last 8 years. Like yourself I had to go through intensive testing to finally find out my seizures were caused by a lesion on my brain. I've never had a brain injury so the doctor told me that as our body changes that through time the lesion began to disrupt my brain activity. I'm 28 years old now and things are still difficult to cope with. I would recommend you to talk to people from the Epilepsy Foundation. They also have forum that people can get in touch with one another and provide support in dealing with living with epilepsy. I wish you the best of luck in searching for all the answers for yourself. Keep a open communication with your doctors and ask any and all questions and do your own research.

http://www.epilepsyfoundation.org/