[Jenn1fer82]

It was such a horrible day for me yesterday. It was proven to me that after all I'm not invisible and I don't have control of my body. I was at the store and suddenly I was overcome with a seizure. I had fallen to my side where it left me with bruises along the left side of my body. It was possible that I had a concussion. The ambulance was called but I decided not to go to the hospital because I know too well that there's nothing that could be done for me because once the seizure pass all I need is to rest. I'm left with bruises and a big knot on my head and an never ending headache. Later that day I had one other seizure but it was mild.

I feel so depressed because it reminds me that my life isn't as stable as I thought it could be. It reminds me that I do have flaws in my life and how I don't have control in my own life and I am limited. For awhile now I was doing well and for the first time in a long time I actually felt normal but with such a big incident it just put me back in the mindset that I'm not as normal after all

My doctor just recently approved for me to drive again and I just got off of disability and started a great job. Now I feel I have to go back to my doctor and let her know exactly what I've been going through but I know she'll go back on her words and won't let me drive and possiblly take me off of work and remind me that I should have the brain surgrey. She's been wanting me to do for years now but I refuse because I'm scared.

What am I suppose to do? Should I tell her or just go on my life and hope something like this won't happen again.

[ECHOES]

Be honest with your doctor. Two seizures in one day is something she needs to know about most definitely. Hoping it won't happen again (and I'm with you as far as hoping it won't) is okay, but not to the point of denying that they did happen just now.

You don't want to be driving and have a seizure and possibly hurt yourself and others and then have that regret to deal with.

Keep working with your doctor who wants the best for you. Have you told her that you refuse the neurosurgery because you are afraid? I am not minimizing your fear at all when I say that I would imagine anyone who has had the surgery was very scared too. Have you talked with a neurosurgeon about the surgery, to learn more and to hear some reassurance from the person who knows most about the surgery?

Tell your doctor so she can help.

[shezbut]

((((hugs)))) to you Jenn1fer82!!

That does suck, I am sorry

Yep, you're going to have to call your doctor and tell him what's been happening. I'd imagine he's going to want to check blood levels of the medication and make some changes. Don't know what med you're on, but some meds do work better than others for most of us.

Unfortunately, there are people that are medication treatment-resistant. That's when doctors begin looking into VNS (vagus nerve stimulation) or partial lobectomy. If you are treatment-resistent, I highly recommend going to an Epilepsy Treatment Center. When I lived in Ca, Stanford was highly regarded for their treatment of E. There is also UCSF and UCLA. They're good too, but not as good (according to my neuro anyway). Now I live in MN, so I go to Mayo Clinic. Epileptologists at these centers are neurologists who then became "Fellows" in epilepsy for 2 or 3 more years. Then, they can anywhere and practice simply in treatment and care for people with E.

Gentle hugs to you ~ I'm sorry it was such a bad day
Shez