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Old Sep 28, 2010, 08:06 AM
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Perna Perna is offline
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I was just reading about the ways we may have trouble with our senses as a child and not realize it. Some of our problems might stem from how the world seemed to us and our parents wouldn't necessarily have realized or had the time/inclination to check it out. I was reading it because my grandson has some "obvious" problems but that there are definite ways to work on them, hadn't occurred to me.

http://www.sensory-processing-disord...checklist.html
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  #2  
Old Sep 28, 2010, 09:11 AM
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Rapunzel Rapunzel is offline
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I have always had these symptoms and nobody would believe me. Even after becoming a mental health professional, with training in communicative disorders also, and discovering some of the physical basis behind my symptoms (I have no tensor tympani reflex - an automatic response that protects you from exposure to loud noise). People only tell me to stop complaining about nothing, or they tease me about my sensitivities or get offended when I automatically brace myself when the car I am a passenger in is about to turn. Sometimes they have used my sensitivities to torment me.

They only validation I ever find is online. I know that my sensory processing difficulties and the invalidating responses I have always received to my differences are a big factor behind my mental and emotional problems. It seems small, but is a never-ending source of trauma.
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Thanks for this!
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  #3  
Old Sep 28, 2010, 10:30 AM
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Beholden Beholden is offline
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Interesting postings everyone. My daughter has a friend who has 10 or 11 children. The newest infant has some issues that she is having evaluated.

First though I must tell you she hates doctors. So for her to even think about having the baby seen by specialists is a lot. Baby doesn't gain much weight, but eats well. Very underdeveloped for her age. Not failure to thrive we all agree. This lady is a very good mother in so many ways.

She told us the latest thing that really has her thinking. She accidently pinched the baby's skin in the car seat when she buckled her in a while back and the baby didn't even flinch! No pain perceived.

I'll call my daughter later today to ask what the mom was told when she had the evaluation a few weeks ago. But sensory processing disorder was something that jumped out at me when we all were talking together about this upcoming appt she had.

She also has one child with Down's syndrome, the next to the youngest baby, who is about 20 months old now I'm guessing. The newest baby has some of the same things going on but has not been dx'ed with Down's at all. I think she is 5-6 months old now.

What do you guys think? Ever hear of a baby who doesn't feel skin pain? It was a very deep pinch in the seat belt!
  #4  
Old Sep 28, 2010, 10:57 AM
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lynn P. lynn P. is offline
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Quote:
Originally Posted by Beholden View Post
Interesting postings everyone. My daughter has a friend who has 10 or 11 children. The newest infant has some issues that she is having evaluated.

First though I must tell you she hates doctors. So for her to even think about having the baby seen by specialists is a lot. Baby doesn't gain much weight, but eats well. Very underdeveloped for her age. Not failure to thrive we all agree. This lady is a very good mother in so many ways.

She told us the latest thing that really has her thinking. She accidently pinched the baby's skin in the car seat when she buckled her in a while back and the baby didn't even flinch! No pain perceived.

I'll call my daughter later today to ask what the mom was told when she had the evaluation a few weeks ago. But sensory processing disorder was something that jumped out at me when we all were talking together about this upcoming appt she had.

She also has one child with Down's syndrome, the next to the youngest baby, who is about 20 months old now I'm guessing. The newest baby has some of the same things going on but has not been dx'ed with Down's at all. I think she is 5-6 months old now.

What do you guys think? Ever hear of a baby who doesn't feel skin pain? It was a very deep pinch in the seat belt!
Sorry Perna is this is off topic.

Yes there is a genetic abnormality called 'Congenital insensitivity to pain with anhidrosis (CIPA) - person doesn't feel any physical pain. They can break bones and young kids often will chew their own fingers and even claw at their own eyes. I once saw a whole family on TV and it showed the mom preparing breakfast bacon and turning it with her fingers. Sorry for the bold print but this is what happened when I copied the name of the disease lol. Here a website:

http://en.wikipedia.org/wiki/Congeni...ith_anhidrosis
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  #5  
Old Sep 28, 2010, 11:05 AM
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Gus1234U Gus1234U is offline
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wow~! one of the things i lost when i "acquired" my brain damage, was the "ability to screen out sensory input",, it sounds so innocuous, but a barking dog is like being beaten in the head,, a ringing phone sends me Boing, to the ceiling,, loud voices hurt me, physically, and sudden noises banging will make me twitch like i've been electrocuted. people always tell me to just calm down, like,,, DUH, if i could , don't you think i would have by now ???? thanks for helping me not feel so all alone,, Gus
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  #6  
Old Sep 28, 2010, 12:26 PM
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madisgram madisgram is offline
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Quote:
Originally Posted by Beholden View Post
What do you guys think? Ever hear of a baby who doesn't feel skin pain? It was a very deep pinch in the seat belt!
most certainly and it needs to be looked in to. see other post, beholden. the child can hurt itself and not even know it. i'm no doc but it sounds like this child maybe has this condition, imho. no cure for it but the parents need to have this verified,
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  #7  
Old Sep 29, 2010, 08:47 AM
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Beholden Beholden is offline
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Thank you all for this information.

I'll call DD today and see how this is coming along for this mom and her infant.

  #8  
Old Sep 29, 2010, 04:50 PM
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shezbut shezbut is offline
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Quote:
Originally Posted by Gus1234U View Post
wow~! one of the things i lost when i "acquired" my brain damage, was the "ability to screen out sensory input",, it sounds so innocuous, but a barking dog is like being beaten in the head,, a ringing phone sends me Boing, to the ceiling,, loud voices hurt me, physically, and sudden noises banging will make me twitch like i've been electrocuted. people always tell me to just calm down, like,,, DUH, if i could , don't you think i would have by now ???? thanks for helping me not feel so all alone,, Gus
Very common effect of traumatic brain injury, Gus.

Personally, my senses were always hyper-sensitive. After my brain surgery, noises and activities became very overwhelming to me. My TBI came one year later, and those senses became even stronger. I did lose most of my sense of smell from brain surgery though.

Gentle hugs to you..
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