[yellowted]

please can anyone enlighten me as to how i can get out of this crack.
I live in the Uk and was diagnosed with dissociative motor disorder 19 months ago, from what i have read it usually gets better in a matter of a few months, if it hasn't as in my case it usually lasts for many years to come and should be treated as if it were as a result of the 'physical' equal.
yet i am unable to get help from adult services for a referral for a grant to adapt my home, (i live alone in my own house, loo and bath are upstairs as is my bed, kitchen is downstairs. I am unable to bear weight through my legs so use a wheelchair downstairs and outside, I have been given half a ramp, yes half a ramp to allow me to get out if there was a fire, a bath lift and a wheelchair which is too small for me but is the largest which will fit through my kitchen door!)Adult services refuse to take my case on because dissociative motor disorder is classed as a mental haelth one, but my mental health team will not apply for the grant on the grounds that dissociative motor disorder usually gets better in a few months and although my condition is still deteriorating after 19 months they still say it could possiblyget better but no one can guarantee if it will ever or how long it could take! seems to me there is too much uncertainty to be sure ! but on those grounds it could possibly never improve and it seems if that is the case i will be left shuffling downstairs like a one yearold, pulling myself up by my hands and shuffling around upstairs like a baby for the indefinite future! All because of a diagnosis which has no clear guidelines of treatment or timescales. I have wrote to my MP most months for over a year keeping him up to date on all the circles i have 'jumped through' I have talked to the head of adult services and an advocate who couldn't help me. I am totally at a loss as to how i can make my home safe and suitable for me for however long this takes. the only option i seem to have is to sell my home which is my late partners family home since 1929 when it was built! if anyone knows of any charities or things i can try to get funding to adapt my home i would be very grateful if these please xx

[Perna]

I think if no one would help me adapt my house, I'd try to get help with adapting myself to my house? Are you in mental health therapy to help see if you can work to get better/sooner?

The "experts" can't tell you when you will get better because it's an individual thing, dependent on you. I would set goals on working to get better and/or adapt my downstairs to help me, etc. but with the expectation that you'd be able to get upstairs and down in X period of time and working toward that as a goal.

Is there no one in your late partner's family that "should" be in the home? I don't know why you would hang onto a building that isn't helping you, is making things harder for you. Could you maybe rent out the place for awhile and fine a better flat for taking care of yourself and working on getting well? Maybe it's the circumstances of the house that are helping hold you "in place" instead of allowing you to move freely about your life.

[yellowted]

hi perna, I have been trying to help me adapt to my home for 19 months to little avail, (its pretty difficult when my only loo is upstairs!) i am always setting tiny stepping stones /goals, but even those are not working as i am still deteriorating! I am not able to rent out my home as it does not meet the regulations set for rental properties and really do not want strangers in my home! I should not have to move, this is my home and i love it, i have a good network of neighbours around me who i know i could call on if i get really stuck. I really would not be happy living in a flat, i have lived in my detatched house for 17 years! i lived in a flat once and hated it, noisy neighbours coming in at all hours banging around waking me up!!! I admit the circumstances around my living arrangements are not helping me, but if i am to get better i would rather live here when i am, i do not want to sell it because there is money to be made in selling part of my garden to developers, i just have to hold on for the right price to be offered (hopefully this will be in 2012 when they finish the development being built on my neighbours gardens!) If i am still struggling when a decent offer is made i will accept it and adapt my home myself! I just think it is so wrong that I am being left to cope without the help others get so easily when my needs at present are just the same