[susan888]

Does anyone have any experience with this? My daughter was at the park with her boyfriend and my grandson and had a seizure.....she ended up in 2 ICU's having seizures because they could not get them to stop. These were very scary seizures.....eyes rolled back, toung biting..etc...Ended up at the ICU at a university hospital and they did the EEG.

She is not epileptic. They told me these seizures are caused by emotional disturbance, but they are real seizures (she is not faking). Moved her and my grandson in with us for a few months as she was not able to drive. However, she made some bad choices while here and I took her home (after she was seizure free for 3 weeks). She lost her new job (hasn't worked in 7 years). I just don't know what to think.

This was definitely a very physical seizure (we all saw it in the hospital). They are saying that stress and psychological issues can cause this. She was very sick when she first came to live with us and I had to hire our neighbor to watch our grandson....the last few weeks...her behavior was simply not wanting to be responsible for anything (staying up all night partying with the neighbors and sleeping in the next day when we both had to get up for work).

Any advice would be appreciated......I am just so distraught and lost.....

Thanks,
Susan

[Rohag]

((((((( Susan888! )))))))

From Medscape: Psychogenic Nonepileptic Seizures (PNES)

I don't know what the current status of PNES is, but a decade or more ago some doctors would automatically associate PNES / NES / Pseudoseizures with faking. One medical doctor specifically told me that NES was their way of saying a patient was faking seizures.

Of course, I don't believe that. What your daughter is experiencing is real and uncontrolled. Whether or not she is suffering from a conversion disorder would have to be determined by a psychiatrist or specialist.

[Elysium]

Susan,

Please check out this link regarding Conversion Disorder. It sounds like this could be what the Doctors are talking about.

I read a previous post of yours regarding these same incidents and I had mentioned it then. It might make some sense to you if you read about it.

If your Daughter is experiencing symptoms of Conversion, she is not faking it. The psychological stress is manifesting itself as physical and physiological symptoms as opposed to manifesting in more psychologically rooted ways.

Keep posting for questions.

http://www.nlm.nih.gov/medlineplus/e...cle/000954.htm

[susan888]

We were out at the lake on our little boat last Sunday to celebrate my birthday and she was on the tube (we were going slow getting ready to beach the boat). She let go of the tube and starting seizing in the lake.. OMG!! My husband jumped in and held her head up and a fellow boater found the lake police and we managed to get her out of the water after about 30 mins. My grandson (and everyone else) was terrified....I was terrified...so was my husband.

I just don't understand why they can't figure out why these seizures continue.

[madisgram]

usually if more than one episode of seizure occurs it's best to be on epileptic meds. i'm no doc, tho. just speaking from experience.
sounds like your daughter has some growing up to do as well. i know it's troubling but she's grown and your detaching with love works. if it were me i'd have the grandchilren over to visit at your liking. don't know if yr daughter uses u for a babysitter for partying or not.
sorry you are upset. we all love our chilren no matter what age and want the best for them.
oh and worrying won't change anything so you and hubby go for an ice cream cone.

[PurpleFlyingMonkeys]

And please, do not let others convince you that this is her faking, getting attention or using you. She would not have faked in the middle of a lake where she obviously could have died (horrifying story by the way, so glad things ended up OK). This is something that is 100% uncontrollable. It will probably continue to happen until she can find the root to her problem. If it is stress, have you talked to the doctor about getting her on anti anxiety meds? These helped a great deal when I was discharged from the ER for the same thing. I was able to function at least 85% normally on them, off them I function about 50% normal... The stress after knowing about this is the worst too. Finding out you have this problem that could be life threatening and could all be just "in your head" but you can't stop it... It's not an easy pill to swallow.

[shikantaza]

Originally Posted by susan888

Does anyone have any experience with this? My daughter was at the park with her boyfriend and my grandson and had a seizure.....she ended up in 2 ICU's having seizures because they could not get them to stop. These were very scary seizures.....eyes rolled back, toung biting..etc...Ended up at the ICU at a university hospital and they did the EEG.

She is not epileptic. They told me these seizures are caused by emotional disturbance, but they are real seizures (she is not faking). Moved her and my grandson in with us for a few months as she was not able to drive. However, she made some bad choices while here and I took her home (after she was seizure free for 3 weeks). She lost her new job (hasn't worked in 7 years). I just don't know what to think.

This was definitely a very physical seizure (we all saw it in the hospital). They are saying that stress and psychological issues can cause this. She was very sick when she first came to live with us and I had to hire our neighbor to watch our grandson....the last few weeks...her behavior was simply not wanting to be responsible for anything (staying up all night partying with the neighbors and sleeping in the next day when we both had to get up for work).

Any advice would be appreciated......I am just so distraught and lost.....

Thanks,
Susan

Hi Susan,

Well, this is my story, and don't despair she can get better.

Complex partial seizures, because they occur so deeply in the brain are often not picked up on with a traditional EEG (in fact sometimes they have to be invasive to actually record them). Try if you can, to find a good neuro-psych and see if they might try a anti-convulsant (I do well with Lamictal).

My seizures are a result of Celiacs disease. I was diagnosed as having Celiacs disease a few years ago by a Mayo Clinic Endocrinologist. I was referred to his office because I was having so many funky neurological issues and horrible hypoglycemia (my blood sugar would get as low as 45 sometimes and then, "hello seizure").

It is common with many Celiacs to also have epilepsy. My seizures start in my occipital lobes and then spread throughout my brain - it's a trip because I am usually with it enough to experience the whole thing and keep my cool (lot of meditation helped me with that).

Also, try going gluten free and see if you notice a difference, bet you will. (I have to be completely grain and sugar free - but sure helped with all the neuro problems).

Peace!

[jk2833]

Originally Posted by susan888

Does anyone have any experience with this? My daughter was at the park with her boyfriend and my grandson and had a seizure.....she ended up in 2 ICU's having seizures because they could not get them to stop. These were very scary seizures.....eyes rolled back, toung biting..etc...Ended up at the ICU at a university hospital and they did the EEG.

She is not epileptic. They told me these seizures are caused by emotional disturbance, but they are real seizures (she is not faking). Moved her and my grandson in with us for a few months as she was not able to drive. However, she made some bad choices while here and I took her home (after she was seizure free for 3 weeks). She lost her new job (hasn't worked in 7 years). I just don't know what to think.

This was definitely a very physical seizure (we all saw it in the hospital). They are saying that stress and psychological issues can cause this. She was very sick when she first came to live with us and I had to hire our neighbor to watch our grandson....the last few weeks...her behavior was simply not wanting to be responsible for anything (staying up all night partying with the neighbors and sleeping in the next day when we both had to get up for work).

Any advice would be appreciated......I am just so distraught and lost.....

Thanks,
Susan

Hi Susan, I'm 33 year old female and I have the exact same thing as what you have described in your post,I was diagnosed with conversion disorder which basically means that when I'm over tired,anxious or stressed I have a seizure.
I'm also a mental health sufferer with episodes of hypomania which means I stay awake,think I can do anything I want etc.
Yes they are very physical and distressing to witness so I understand your worry.
I would describe it as psychological problems turning into physical problems eg; I have seizures,body numbness,Bells Palsy and memory problems,so it is very real indeed.
I know there are sites you can read about it but I prefer simple terminology and unfortunately this is the best way I can describe it,but its important to remember symptoms vary for each person.
Hope I've helped even a little
Take care
JK