[united]

It stated when I try to understand the feeling of my 7 year girl who is spastic quadriplegic due to cerebarl palsy. She can not move any of her limbs voluntarily. She can not even turn herself from one side to other. When I come home after a whole day work being awfully tried, my girl start crying to come to me and she throw all her limbs to and fro to show that she is very very happy to see me. For few days when I go to sleep ,I don't know why I did it but I just can not resist it, relax all my limbs as they are paralyzed don't move them to any stimuli and at each night I woke up at midnight being suffocated and with air hunger. Now I try to get rid of it but can't. She can't breathe when she is lying on her back so we have to keep her lying on her front most of the time. I know a time will come when I won't have any feeling for this girl because everone has a limit to bear , can anyone tell me when it will come , I can not bear it any more (((((

[kindachaotic]

United, Hello & Welcome! Look around at the forums & keep posting.

I'm not in your shoes & can't imagime the struggles you & your daughter face.

Again, knowing nothing about how tiring this can be, do you really think there will be a time when you won't have any feelings for her anymore? If so this is a very brave & honest statement. I say that because I raised a mentally challenged son & many times I had to leave work to "handle something". There was more than one time I remember saying I just wanted him to go away or I wish he'd never been born. Those things were said under extreme stress & I didn't think I could take another day. But I do & always will love my son & he is happy to see me. No one knows what you go thru until they walk in your shoes.

You say there's a limit as to how much you can bear. Do you have a spouse or relatives to help? Also any services nurse, therapy, an aid for bathing, dressing, diapers, to wheel her for a walk outside? Just trying to think of anything to help you not feel so overwhelmed. In my city there is a Society for Cerebral Palsy or something like that you might check on what they offer. You may know all this stuff already but thought I'd offer anyway.

As for your sleep troubles maybe a call to your own doc, or therapist if you have one, is in order. We're not professionals here & just try to make it thru the day also. Not to minimize your anguish but we are always here to listen & let you know we care.

Sending many hugs your way!